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Dear Teri, Hi sweet gal. Use whatever gives you freedom, Ive had a chair

since 97, walkers,forearm cruchtes,canes since 96 and now a wonderful new

scooter I use them all or Id be REALLY stuck. Im only 41, BUT!!!!! you have

to live no matter what. Remember when I called you in the hopistal a while

back, you were strong then and are now, there are many members on here some

who dont even write that I know who are in pretty bad shape Pysicaly

speaking, but thier minds and will's and Faith keep them going I know even I

could be in much worse shape so I pinch

myself each morning and know that Im alive and Thank God.

Keep going Dear just Keep going.

Love ya

Dahli Dawn

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  • 4 weeks later...

Hi,

Lately I've been hearing a lot of questions/fear about people getting worse

after surgery. Has anyone out there actually gotten worse due to the

decompression surgery? I know many do not improve after surgery (I am one of

them), but I only remember 1 or 2 members saying they thought the decompression

surgery left them worse off than before. Is this correct?

Pam J.

mbpdlw@... wrote: Hi,

It's Debbie from NC. I went to see Dr.Rosner today for a second

opinion. He wants me to have a table tilt test (which I don't know anything

about) and another MRI that shows spinal fluid flow. Then I get to make the

decision whether I want the surgery or not. I don't have symptoms that are

real painful and I can do just about anything I want to. I have nystagmus in

the left eye and a slight droop of my right eye. I have a few other symptoms

that are irritating.

Dr. Rosner said I have one of the biggest chiari malformations he has

seen. I also have a syrinx that is 30 mm x 8 x 8 mm. I just don't want to be

worse off after surgery if I decide to do it. If anybody has any advice I

would be glad to hear it.

Debbie

NC

Melvin /Debbie

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Hi,

For what it is worth, I will tell you what I know about Rosner. He was one of

the first to connect Fibromyalgia/Chronic Fatigue Syndrome with Chiari

Malformation. In this respect, he has helped lots of people. He also feels

that milimeters of herniation is not the most important test of whether a person

has Chiari. I agree with him, and so does Dr. Milhorat.

He has a controversial reputation for doing surgery on people who other doctors

will not do surgery on. Like persons who have less than 5 mm herniation.

I have heard persons on this website who have said he operates on people who

have no physical problems. I do NOT believe this is true. I think he is

willing to operate on close cases, whereas other surgeons will not touch the

person with a ten foot pole. I think this is corageous on his part.

The only thing he does that I disagree with, is he usually removes the tonsils.

Mine were cauterized, instead of totally removed. Most neuros will tell you

that the tonsils have no purpose. However, I feel that we don't really know

enough about them to just chop them off. In some cases this may be

necessary, because there is just no room for them. However, I wouldn't go

removing them on the first surgery.

I have heard of many patients having good results with Dr. Rosner, and a few who

haven't. I think you should talk to him if you have a problem.

Pam J.

mbpdlw@... wrote: Hi,

I have had negative information on Dr.Rosner. He is my doctor and will

be doing my surgery if I choose to have it. If anyone has Rosner for their

doctor, I would like to hear about their experiences with him.

Debbie

NC

Help section: http://www.yahoogroups.com/help/

NOTE: NCC refers to posts with No Chiari Content

To Unsubscribe Yourself: chiari-unsubscribeYahoogroups

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> Hi,

> For what it is worth, I will tell you what I know about Rosner. He

was one of the first to connect Fibromyalgia/Chronic Fatigue Syndrome

with Chiari Malformation. In this respect, he has helped lots of

people. He also feels that milimeters of herniation is not the most

important test of whether a person has Chiari.

Just for the record, If I needed surgery today and Dr Rosner was the

going to be my surgeon, I'd be very comfortable with his expertise.

Chip

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Dear Kim,

I am sorry that you don't have the support that you need. I had a lot of

complications with a faulty shunt and meningitis at the same time I was

having my decompression surgery. This caused me to loose my short term, and

now my long term memory. I dont' know how my husband was before surgery, but

I know that when I first came home it was rough. I had spent two months in

ICU and rehab and I didn't know my husband or family. My mom tells me that

my husband was an a**. I am glad that I don't remember. But now he is my

lifeline. He is so understanding and compationate. He and I have reached a

point in our relationship that goes beyond everything. He and I have gone

through hell and we are still together. He now accepts me for who I am now

and lets me go at my own pace. He has also given up his life and dreams to

take care of me and make me and our girls happy. I don't know what kind of

man my husband was before my surgery, but he is now the kind of person that I

wish I could be. Don't give up on your husband just yet. When everything is

over, he may just surprise you and be everything that you need.

I hope that your surgery goes well. We will keep you in our prayers.

Best of Luck,

Debbi

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Kim,

If you don't have a church home, that'd be a good start. I got a lot of support

before and after my surgery from my friends at church. Sounds like a pastor's

counseling might be helpful for the marriage as well.

I'm not big on criticizing others and how they conduct their marriage, all I'll

say on the topic is this...I don't consider your husband's attitude ordinary or

acceptable. What you choose to do about it is your choice, but please don't feel

like that's something that anyone would think in that situation, something you

" deserve, " or something you ought to have to put up with. Being married to

someone who is chronically ill is very difficult, and I have a lot of sympathy

to my wife, your husband, all our spouses. But what he's suggested is either a

poorly thought out attempt at humor or incredibly thoughtless if he's serious.

Making arrangements for some alternate entertainment (what the heck is a

spoonbill, anyway?) would be appropriate and thoughtful...our partners go

through a lot over the years when we're this sick. But no, putting off the

surgery in order to hunt or fish or whatever that is doesn't cut it.

Darren

kimwolfe132@... wrote: hi all. i dont mean to dump on you but it seems

this is the only place i have

right now. today has been kind of bad. i dont feel good and im doe\wn to top

it all off. but what burns me the most is this...how do you handle a husband

who isnt very sympathetic? yesterday i found out my surgery is scheduled for

mar 18th. well here in missouri the 15th of march is the beginning of

spoonbill season, fishing, and all my husband could say was " cant you

reschedule? " . i dont know what to do. i have a feeling that this is testing

our marriage beyond its limits..or behind his i should say. again im sorry to

come here and dump this but besides you all all i have is my kids and well, i

dont want to put them through this as well. thanks for reading this.

kim

5mm acm

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Would you believe that I don't know ......I just remember asking the

resident when was he removing them one day during his surgical round....5

am! He said: " right now " and removed them in a couple of minutes.

Does it make a difference?

My zipper is beautiful!!!!

Hugs zipper heads

Alba

(no subject)

hi

stitches here.

pat

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Hi Debbie,

Wow, that would make a great story. Everybody gets a second chance here.

Can you imagine, if you were having marrital problems prior to your surgery

and after your amnesia you come home and hubby now appreciates you more than

he ever realized, after almost losing you and he becomes the most wonderful

man. In the meantime, you're accepting him as he now is, WONDERFUL, and

you're not torchured by the past (if you were having problems) for you can't

remember. Wow, great story with a really good ending!!

Leanda

Re: (no subject)

> Dear Kim,

> I am sorry that you don't have the support that you need. I had a lot of

> complications with a faulty shunt and meningitis at the same time I was

> having my decompression surgery. This caused me to loose my short term,

and

> now my long term memory. I dont' know how my husband was before surgery,

but

> I know that when I first came home it was rough. I had spent two months

in

> ICU and rehab and I didn't know my husband or family. My mom tells me

that

> my husband was an a**. I am glad that I don't remember. But now he is my

> lifeline. He is so understanding and compationate. He and I have reached

a

> point in our relationship that goes beyond everything. He and I have gone

> through hell and we are still together. He now accepts me for who I am

now

> and lets me go at my own pace. He has also given up his life and dreams

to

> take care of me and make me and our girls happy. I don't know what kind

of

> man my husband was before my surgery, but he is now the kind of person

that I

> wish I could be. Don't give up on your husband just yet. When everything

is

> over, he may just surprise you and be everything that you need.

> I hope that your surgery goes well. We will keep you in our prayers.

> Best of Luck,

> Debbi

>

> Help section: http://www.yahoogroups.com/help/

>

> NOTE: NCC refers to posts with No Chiari Content

>

> To Unsubscribe Yourself: chiari-unsubscribeYahoogroups

>

> WACMA Home: www.pressenter.com/~wacma

>

> WACMA List: www.eGroups.com/group/chiari

>

>

>

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Hi,

I talked to my husband about everything we've been talking about and he told

me that my mom has never liked him because he doesnt' let her control our

lives. He has loved me since we were twelve and has always tried to hang the

moon and stars for me. Actually, he said ever since the first moment he saw

me threw a peep hole. I love him so much now, not just because of what he

does, but mainly because he supports me so much and accepts me for me. When

I look in the mirror now I think God what happened to me. How in the past

few years have I become what I think of as a monster. But when I look in my

husbands eyes I am so amazed that he doesn't see the ugliness. It's like he

still sees me the way he did the first time he fell in love with me. He has

a way of making me feel like I am the only beautiful woman in the world. He

is the only person who does look at me. Most people look at my chair or at

my body, but they don't look me in the eye. Even my mother does that. She

and my aunts and uncles can't accept me like I am now. They say that they

only want me not to give up, but I have asked them, what will you do if I

don't walk again. What if the nerves in my spine don't regenerate. What if

the brain cells I have lost dont' one day come back? Will you still love me.

Will you accept me and still be proud of me? Everyone just says, we don't

want you to give up trying. Is accepting myself as I am giving up. When

neurosurgeons say that so much time has past that you probably won't regain

control of your body, what do you do? I think I have given up, I just want

to live and be happy with me. And I dont' understand how so many people can

care about me so much, but won't come see me. They don't call me. They

don't understand why I can't remember who everyone is. I say that maybe it's

because I dont' know what everyone looks like. Maybe seeing people in my

family will spark some kind of memory, if only a smell or glimps of one

moment, just something to connect to. These are the reason that I wouldn't

go anywhere at christmas. I didn't want to be in a room full of strangers

and be ignored. Sometimes I feel like they thing I am contagious or

something.

I am so sorry for venting like this. I guess I needed it or it wouldn't all

come out.

My husband and brother inlaw told me tonight that my family has never liked

them and they aren't sure why, but I don't let anyone put them down.

And you are right, even if there were any problems they are gone now. I

wrote my husband a poem for our anniversary this year that I will have to

post for everyone who experiences the memory loss.

I will close now, sorry I have taken up so much time.

Good luck to all,

Debbi

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Right on!

Re: (no subject)

Kim,

If you don't have a church home, that'd be a good start. I

got a lot of support before and after my surgery from my friends at church.

Sounds like a pastor's counseling might be helpful for the marriage as well.

I'm not big on criticizing others and how they conduct their

marriage, all I'll say on the topic is this...I don't consider your

husband's attitude ordinary or acceptable. What you choose to do about it is

your choice, but please don't feel like that's something that anyone would

think in that situation, something you " deserve, " or something you ought to

have to put up with. Being married to someone who is chronically ill is very

difficult, and I have a lot of sympathy to my wife, your husband, all our

spouses. But what he's suggested is either a poorly thought out attempt at

humor or incredibly thoughtless if he's serious.

Making arrangements for some alternate entertainment (what

the heck is a spoonbill, anyway?) would be appropriate and thoughtful...our

partners go through a lot over the years when we're this sick. But no,

putting off the surgery in order to hunt or fish or whatever that is doesn't

cut it.

Darren

kimwolfe132@... wrote: hi all. i dont mean to dump on

you but it seems this is the only place i have

right now. today has been kind of bad. i dont feel good and

im doe\wn to top

it all off. but what burns me the most is this...how do you

handle a husband

who isnt very sympathetic? yesterday i found out my surgery

is scheduled for

mar 18th. well here in missouri the 15th of march is the

beginning of

spoonbill season, fishing, and all my husband could say was

" cant you

reschedule? " . i dont know what to do. i have a feeling that

this is testing

our marriage beyond its limits..or behind his i should say.

again im sorry to

come here and dump this but besides you all all i have is my

kids and well, i

dont want to put them through this as well. thanks for

reading this.

kim

5mm acm

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  • 3 weeks later...

Also has anyone heard from /carollyn Wess from Western Australia? We were

corresponding regularly but I did not write her address down and i am getting

worried about her. warm regards Ann in Brisbane Australia

mbpdlw@... wrote:

> Hi,

> Has anyone heard from Cherry ? The last I heard she was ready to

> start home after her surgery. I would like to know how she is doing.

>

> Debbie

> NC

>

>

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  • 2 weeks later...

--- mbpdlw@... wrote:

> What other visual problems besides nystagamus are

> chiari related?

>

> Debbie

> NC

Hi Debbie and gang,

I have visual disturbances.Flashing lights,wierd

almost aztec like patterns of light,double vision when

tired.They are called optical migraines.I don't always

get a migraine.I do feel pressure behind my eyes after

an episode.

I can't say they are chiari related because my 24 yr

old daughter gets them and she just had an MRI that

was negative for chiari.Hope this helps!

Gentle hugs,

Lee

=====

" Make yourself a blessing to someone.Your kind smile or pat on the back might

pull someone back from the edge. "

Carmellia Elliot

http://www.restministries.org

chronicpaindevotionals

__________________________________________________

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  • 2 weeks later...

In a message dated 2/17/2002 12:52:02 PM Eastern Standard Time,

vicky81551@... writes:

>

Hemangioma is a non-malignant tumor that is made up of rapidly growing

endothel or vascular cells.

Joanna/Atlanta (16 years)

CM-17mm/SM-C1-T6<---And its Shrinking!

Neurocardiogenic Syncope (Meds are helping tremendously!)

Decompressed, Duraplasty, Laminectomy-7/27/01

Dura Exploration and Debridement of Staph infection-9/8/01

Allergic to everything! Finally found a few that work for me!

I am still having some residual problems, but I am doing wonderfully!

~****~****~****~****~****~****~****~****~****~****~****~

" Angels Can Fly Because They Take Themselves Lightly. "

~****~****~****~****~****~****~****~****~****~****~****~

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  • 3 months later...
Guest guest

THAT SUCKS !!!! IS THERE SOMEONE THEY CAN CONTACT TO GET SOMETHING DONE?

HOW DID INSURANCE COMPANIES GET SO MUCH POWER OVER US? POOR ROBIN THIS

IS THE LAST THING SHE NEEDS OR ANYONE ELSE FOR THAT MATTER. GIVE HER A

HUG AND MY LOVE. SHE IS IN MY THOUGHTS AND PRAYERS. LUV JO

                              

http://community.webtv.net/jowaca/JOSFAVORITEPICTURES

HI ALL,

IN LOTS OF PAIN, BUT I WANTED TO GIVE YOU AN UPDATE. THE LOVELY HEALTH CARE IN OREGON IS AT IT AGAIN. ROBINS DAUGHTER, JOANA, IS NOT IN THE HOSPITAL IN PORTLAND YET. FIRST REASON, THEY REFUSE TO PAY FOR THE TRANSPORT FOR HER BECAUSE SHE IS TERMINAL SO WHY SHOULD THEY SPEND THE MONEY. SECOND REASON, NOW THE INSURANCE IS SAYING THEY WILL ONLY PAY FOR ONE "DAY" ON OUT PATIENT CARE. SHE CAN'T EVEN SPEND THE NIGHT. AGAIN, THEY DON'T WANT TO PAY, IT WOULD BE A WASTE OF MONEY.

SORRY, HAVE TO GO, I WILL LET YOU KNOW IF ANYTHING CHANGES.

TONI

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Guest guest

TONI,

THANKS FOR LETTING US KNOW. WITH KEEP YOU GUYS IN MY THOUGHTS AND PRAYERS

HUGS

SHARON

When your up to your butt in alligators, it's hard to remember your 1st objective was to drain the swamp.Sharon

-----Original Message-----From: CoffeeBarista@... Sent: Friday, June 07, 2002 11:17 PMTo: cfidsfms-friends Subject: (no subject)HI ALL,IN LOTS OF PAIN, BUT I WANTED TO GIVE YOU AN UPDATE. THE LOVELY HEALTH CARE IN OREGON IS AT IT AGAIN. ROBINS DAUGHTER, JOANA, IS NOT IN THE HOSPITAL IN PORTLAND YET. FIRST REASON, THEY REFUSE TO PAY FOR THE TRANSPORT FOR HER BECAUSE SHE IS TERMINAL SO WHY SHOULD THEY SPEND THE MONEY. SECOND REASON, NOW THE INSURANCE IS SAYING THEY WILL ONLY PAY FOR ONE "DAY" ON OUT PATIENT CARE. SHE CAN'T EVEN SPEND THE NIGHT. AGAIN, THEY DON'T WANT TO PAY, IT WOULD BE A WASTE OF MONEY. SORRY, HAVE TO GO, I WILL LET YOU KNOW IF ANYTHING CHANGES.TONI

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BET YOU MADE HIS DAY TONI!!!!! I'M GLAD I'M NOT THE ONLY PERSON WHO

OPENS MOUTH AND INSERTS FOOT. I NEEDED A GOOD LAUGH AND GOT 2 OF THEM

TONIGHT. LUV JO

                              

http://community.webtv.net/jowaca/JOSFAVORITEPICTURES

HI ALL,

I WANTED TO TELL YOU WHAT I DID TODAY BEFORE MY APPT. I REALLY PUT MY FOOT IN MY MOUTH.

I DON'T HAVE A CAR, SO I HAVE TO TAKE BUSES. I ARRIVED A 1/2 HOUR EARLY, SO I WENT TO A COFFEE SHOP FOR COFFEE. FIRST I HAVE TO TELL YOU ABOUT A CUSTOMER I HAD AT MY COFFEE DRIVE-THRU. I KNEW SHE WAS FLIRTING WITH ME AND SO DID ALL MY STAFF. SHE ALWAYS GOT A DRINK THAT CAME WITH WHIP CREAM, BUT I ALWAYS ASK JUST IN CASE. THIS ONE DAY INSTEAD OF,"DO YOU WANT WHIP CREAM ON IT", I ASKED IF SHE WANTED IT ON HER. NO MATTER WHAT I SAID, I MADE IT WORSE.

TODAY WHILE I WAS GETTING COFFEE, THE OLD CUSTOMER WAS WALKING BY AND SAW ME. SHE CAME IN TO SAY HI AND JUST AS SHE WAS STANDING THERE, THE GUY AT THE COUNTER ASKED IF I WANTED HIM TO SPREAD THE CREAM CHEESE ON THE BAGEL FOR ME, BUT WHEN I ANSWERED I SAID, " I'D LOVE IT IF YOU WOULD SPREAD THE CREAM CHEESE ON ME". THE OLD CUSTOMER BLUSHED, I WANTED TO DYE, AND THE GUY JUST STARED. I HAVE SUCH A WAY WITH WORDS AND OF COURSE SHE REMEMBERED THE WHIP CREAM COMMENT.

CAN'T TYPE ANYMORE,

TONI

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  • 2 weeks later...
Guest guest

Me to ,

Wish I had been the obne to write it..LOL but anyway I am glad you enjoyed it..love

"Treat the other man's faith gently; it is all he has to believe with. His mind was created for his own thoughts, not yours or mine."

Henry S. Haskins

http://www.geocities.com/Paris/Musee/2534/rosa.htm (my home page)

http://www.warestore.com/cgi-bin/auction.cgi ( auctions listed under emeralddragon)

http://www.onelist.com/community/cfidsfms-friends A friendly list for peole with fibro and or cfs..

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Guest guest

THIS IS A REALLY GOOD KEEPER!! THANK YOU!!!!!

MARCY

(no subject)

Don't Mess with Mom

My son came home from school one day, with a smirk upon his face. He decided he was smart enough, to put me in my place. "Guess what I learned in Civics Two, that's taught by Mr..? It's all about the laws today, The "Children's Bill of Rights." It says I need not to clean my room, don't have to cut my hair. No one can tell me what to think, or speak, or what to wear. I have freedom from religion, and regardless what you say, I don't have to bow my head, and I sure don't have to pray. I can wear earrings if I want, and pierce my tongue & nose. I can read & watch just what I like, and get tattoos from head to toe. And if you ever spank me, I'll charge you with a crime. I'll back up all my charges, with the marks on my behind. Don't you ever touch me, my body's only for my use, not for your hugs and kisses, that's just more child abuse. Don't preach about your morals, like your Mama did to you. That's nothing more than mind control, And it's illegal too! Mom, I have these children's rights, so you can't influence me, or I'll call Children's Services Division, better known as C.S.D. Of course my first instinct was To toss him out the door. But the chance to teach him a lesson made me think a little more. I mulled it over carefully, I couldn't let this go. A smile crept upon my face, he's messing with a pro. The next day I took him shopping at the local Goodwill Store. I told him, "Pick out all you want, there's shirts & pants galore. I've called and checked with C.S.D. who said they didn't care if I bought you K-Mart shoes instead of those Nike Airs. And I've canceled that appointment to take your driver's test. The C.S.D. is unconcerned so I'll decide what's best. I said "No time to stop and eat, or pick up stuff to munch. And tomorrow you can start to learn to make your own sack lunch. Just save the raging appetite, and wait till dinner time. We're having liver and onions, a favorite dish of mine. He asked "Can I please rent a movie, to watch on my VCR?" "Sorry, but I sold your TV, for new tires on my car. I also rented out your room, you'll take the couch instead. The C.S.D. requires just a roof over your head. Your clothing won't be trendy now, and I'll choose what we eat. That allowance that you used to get, will buy me something neat. I'm selling off your jet ski, dirt-bike & roller blades. Check out the "Parents Bill of Rights," It's in effect today! Hey hot shot, are you crying, and why are you on your knees? Are you asking God to help you out, instead of C.S.D..? "Treat the other man's faith gently; it is all he has to believe with. His mind was created for his own thoughts, not yours or mine." Henry S. Haskinshttp://www.geocities.com/Paris/Musee/2534/rosa.htm (my home page)http://www.warestore.com/cgi-bin/auction.cgi ( auctions listed under emeralddragon)http://www.onelist.com/community/cfidsfms-friends A friendly list for peole with fibro and or cfs..

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Guest guest

THANKS, I AM COPYING THIS!!!!

CINDY

> Don't Mess with Mom

>

>

> > >> >>>

> >>> My son came home from school one day, with a smirk upon his face.

> >>> He decided he was smart enough, to put me in my place.

> >>>

> >>> " Guess what I learned in Civics Two, that's taught by Mr..?

> >>> It's all about the laws today, The " Children's Bill of Rights. "

> >>>

> >>> It says I need not to clean my room, don't have to cut my hair.

> >>> No one can tell me what to think, or speak, or what to wear.

> >>>

> >>> I have freedom from religion, and regardless what you say,

> >>> I don't have to bow my head, and I sure don't have to pray.

> >>>

> >>> I can wear earrings if I want, and pierce my tongue & nose.

> >>> I can read & watch just what I like, and get tattoos from head to toe.

> >>>

> >>> And if you ever spank me, I'll charge you with a crime.

> >>> I'll back up all my charges, with the marks on my behind.

> >>>

> >>> Don't you ever touch me, my body's only for my use,

> >>> not for your hugs and kisses, that's just more child abuse.

> >>>

> >>> Don't preach about your morals, like your Mama did to you.

> >>> That's nothing more than mind control, And it's illegal too!

> >>>

> >>> Mom, I have these children's rights, so you can't influence me,

> >>> or I'll call Children's Services Division, better known as C.S.D.

> >>>

> >>> Of course my first instinct was To toss him out the door.

> >>> But the chance to teach him a lesson made me think a little more.

> >>>

> >>> I mulled it over carefully, I couldn't let this go.

> >>> A smile crept upon my face, he's messing with a pro.

> >>>

> >>> The next day I took him shopping at the local Goodwill Store.

> >>> I told him, " Pick out all you want, there's shirts & pants galore.

> >>>

> >>> I've called and checked with C.S.D. who said they didn't care

> >>> if I bought you K-Mart shoes instead of those Nike Airs.

> >>>

> >>> And I've canceled that appointment to take your driver's test.

> >>> The C.S.D. is unconcerned so I'll decide what's best.

> >>>

> >>> I said " No time to stop and eat, or pick up stuff to munch.

> >>> And tomorrow you can start to learn to make your own sack lunch.

> >>>

> >>> Just save the raging appetite, and wait till dinner time.

> >>> We're having liver and onions, a favorite dish of mine.

> >>>

> >>> He asked " Can I please rent a movie, to watch on my VCR? "

> >>> " Sorry, but I sold your TV, for new tires on my car.

> >>>

> >>> I also rented out your room, you'll take the couch instead.

> >>> The C.S.D. requires just a roof over your head.

> >>>

> >>> Your clothing won't be trendy now, and I'll choose what we eat.

> >>> That allowance that you used to get, will buy me something neat.

> >>>

> >>> I'm selling off your jet ski, dirt-bike & roller blades.

> >>> Check out the " Parents Bill of Rights, " It's in effect today!

> >>>

> >>> Hey hot shot, are you crying, and why are you on your knees?

> >>> Are you asking God to help you out, instead of C.S.D..?

> >>>

> >>

>

>

>

>

> " Treat the other man's faith gently; it is all he has to believe with. His

> mind was created for his own thoughts, not yours or mine. "

> Henry S. Haskins

>

>

> http://www.geocities.com/Paris/Musee/2534/rosa.htm (my home page)

> http://www.warestore.com/cgi-bin/auction.cgi ( auctions listed under

> emeralddragon)

> <A

HREF= " http://www.onelist.com/community/cfidsfms-friends " >http://www.onelist.com/\

community/cfidsfms-friends</A> A friendly list for peole

> with fibro and or cfs..

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TONI YOU HAVE MY PRAYERS GIRL. I HAVE BEEN THERE NOT QUITE THAT BAD

THOU. ITS HARD AND VERY DEPRESSING TO SAY THE LEAST. I'M NOT SURE

SOMETIMES IF WE WEREN'T LIVING WITH WAYNE AND WE HAD RENT AND UTILITIES

IF WE WOULD BE ABLE TO MAKE IT. THE WAY IT IS NOW I AM ABLE TO HELP MY

DAUGHTER OUT SOME. I KNOW IT MUST BE REALLY HARD ON DALE AS HE FEELS HE

SHOULD BE THE BREAD WINNER AND BE ABLE TO CARE FOR YOU AND THE KIDS. YOU

2 HANG IN THERE AND DO THE BEST YOU CAN THINGS WILL WORK OUT SOMEHOW.

YOU HAVE 2 GREAT GALS THERE FOR YOU IN ROBIN AND JOY I KNOW THEY WILL DO

WHAT THEY CAN TO HELP. HAVE YOU TRIED GOING TO A FOOD BANK IN YOUR AREA

TO GET HELP? IF NOT PLEASE DO SO THEY CAN ALSO DIRECT YOU TO GETTING

HELP WITH YOUR RENT ANDOTHER BILLS. ALSO APPLY FOR HUD YOU SHOULD MEET

THEIR GUIDE LINES FOR HELP WITH RENT IT MIGT MEAN HAVING TO MOVE BUT IT

SHOULD BE WORTH IT TO KNOW YOUR RENT WILL AT LEAST BE PAID. HAVE YOUR DR

FILL OUT THE PAPER WORK FOR YOU TO GET AT LEAST YOUR MOST COSTLY MEDS

FOR FREE. APPLY FOR MEDICAID YOU HAVE NOTHING TO GAIN AND A LOT TO LOSE

OUT ON IF YOU QUALIFY AND WITH NO INCOME COMING IN YOU SHOULD. DON'T LET

DALE'S PRIDE STOP YOU. YOU NEED HELP AND YOU NEED IT NOW. LUV JO

THANK YOU JO.

LOVE YA,

TONI

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TONI YOU HAVE MY PRAYERS GIRL. I HAVE BEEN THERE NOT QUITE THAT BAD

THOU. ITS HARD AND VERY DEPRESSING TO SAY THE LEAST. I'M NOT SURE

SOMETIMES IF WE WEREN'T LIVING WITH WAYNE AND WE HAD RENT AND UTILITIES

IF WE WOULD BE ABLE TO MAKE IT. THE WAY IT IS NOW I AM ABLE TO HELP MY

DAUGHTER OUT SOME. I KNOW IT MUST BE REALLY HARD ON DALE AS HE FEELS HE

SHOULD BE THE BREAD WINNER AND BE ABLE TO CARE FOR YOU AND THE KIDS. YOU

2 HANG IN THERE AND DO THE BEST YOU CAN THINGS WILL WORK OUT SOMEHOW.

YOU HAVE 2 GREAT GALS THERE FOR YOU IN ROBIN AND JOY I KNOW THEY WILL DO

WHAT THEY CAN TO HELP. HAVE YOU TRIED GOING TO A FOOD BANK IN YOUR AREA

TO GET HELP? IF NOT PLEASE DO SO THEY CAN ALSO DIRECT YOU TO GETTING

HELP WITH YOUR RENT ANDOTHER BILLS. ALSO APPLY FOR HUD YOU SHOULD MEET

THEIR GUIDE LINES FOR HELP WITH RENT IT MIGT MEAN HAVING TO MOVE BUT IT

SHOULD BE WORTH IT TO KNOW YOUR RENT WILL AT LEAST BE PAID. HAVE YOUR DR

FILL OUT THE PAPER WORK FOR YOU TO GET AT LEAST YOUR MOST COSTLY MEDS

FOR FREE. APPLY FOR MEDICAID YOU HAVE NOTHING TO GAIN AND A LOT TO LOSE

OUT ON IF YOU QUALIFY AND WITH NO INCOME COMING IN YOU SHOULD. DON'T LET

DALE'S PRIDE STOP YOU. YOU NEED HELP AND YOU NEED IT NOW. LUV JO

                              

http://community.webtv.net/jowaca/JOSFAVORITEPICTURES

HI ALL,

I HAVE TO MAKE THIS QUICK, I DON'T WANT DALE TO KNOW THAT I, AM, TELLING YOU GUYS ABOUT OUR PROBLEMS. I REALLY SHOULDN'T WHEN OTHERS HAVE SO MUCH GOING ON, BUT I KNOW YOU ARE HERE FOR ME.

I DON'T KNOW WHAT TO DO ANYMORE. I JUST GAVE DALE THE LAST OF MY JEWELRY TO TAKE TO THE PAWN SHOP. HE WAS GOING TO TAKE HIS GOLF CLUBS, BUT COULDN'T FIND THEM IN TIME TO GET THERE BEFORE THEY CLOSED. HE IS TAKING THEM TOMORROW.

I FEEL LIKE GOING TO BED AND PULLING THE COVERS OVER MY HEAD AND NOT COMING OUT OF MY ROOM FOR A VERY LONG TIME. I WANT TO CRY, BUT THAT DOES NOTHING TO HELP. WE NEED TO GET MEDS. AND HAVE NO MONEY TO GET THEM WITH. THE LITTLE MONEY HE WILL GET FOR MY STUFF WILL NOT BE ENOUGH. HE JUST CALLED AND LEFT A MESSAGE. THEY ARE ONLY GIVING HIM $75.00 FOR MY THINGS. I WONDER HOW MUCH HE WILL GET FOR HIS CLUBS?

ROBIN AND JOY GAVE ME MONEY ON WEDNESDAY TO BUY DISH AND LAUNDRY SOAP. WE HAD BEEN OUT FOR A COUPLE WEEKS. ROBIN AND I ARE TALKING ABOUT MY FAMILY AND HERS RENTING A PLACE TOGETHER, TO HELP US GET BACK ON OUR FEET. DALE THINKS HE HAS WORK FOR THE WEEKEND, WHICH IS GREAT, EXCEPT I HAVE TO BE SOMEWHERE, AT THE SAME TIME OF MORNING, IN THE OTHER END OF TOWN. I ALSO WILL BE DONE 2 HOURS BEFORE HIM, AND THE BUSES DON'T RUN WHERE I WILL BE AT, ON THE WEEKENDS.

ALSO, WE ARE OUT OF FOOD STAMPS UNTIL THE 4TH, WHICH IS A HOLIDAY, SO NOT SURE IF WE GET THEM THE DAY BEFORE OR AFTER.

SO, IF YOU HAVEN'T GUESSED ALREADY, I'M A LITTLE DOWN. I FEEL LIKE SCREAMING AT THE TOP OF MY LUNGS.

THANKS ALL FOR LISTENING. I KEEP HEARING THAT IT WILL GET BETTER AND I KNOW IT WILL, BUT THIS HAS BEEN GOING ON FOR FAR TO LONG. AT LEAST A YEAR AND A HALF, TO, TWO YEARS OF HIM HAVING A COMMISSION CHECK, ONE EVERY COUPLE MONTHS, BUT NOW, IT'S BEEN ONLY ONE FOR THIS YEAR.

I HAVE TO GET GOING. HE WILL BE HOME ANY TIME. I NEED TO ASK FOR YOUR PRAYERS, IF YOU DON'T MIND. THANK YOU FOR YOUR LOVE AND SUPPORT.

TONI

COFFEEBABE

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TONI I WOULD FEEL LIKE CRYING TOO. JUST DON'T STAY THERE TOO LONG AND HONEY I THINK YOU SHOULD LOOK INTO GETTING SOME HELP EVEN IF DALE DOESN'T WANT TO. IT'S TOO HARD ON YOU STRESS WISE NOT TO MENTION ALL THE OTHER WAYS. IS THERE ANY OTHER TYPE OF WORK HE COULD LOOK INTO. LIVING ON COMMISSION IS PRETTY ROUGH - I HAVE DONE THAT AND IF THERE'S NO DRAW AND NO BUSINESS ONE CAN GO HUNGRY. MAYBE HE COULD FIND SOMETHING MORE STEADY. IN THE MEANTIME, THOUGH PLEASE CHECK ON WHAT HELP IS AVAILABLE AND APPLY FOR IT CAUSE IT TAKES TIME TO GET IT GOING TOO. KNOW YOU AND YOURS ARE IN MY PRAYERS AND I SURE PRAY THIS TURNS AROUND FOR YOU SOON.

LOTS OF LOVE AND HUGS,

MARCY

(no subject)

HI ALL,I HAVE TO MAKE THIS QUICK, I DON'T WANT DALE TO KNOW THAT I, AM, TELLING YOU GUYS ABOUT OUR PROBLEMS. I REALLY SHOULDN'T WHEN OTHERS HAVE SO MUCH GOING ON, BUT I KNOW YOU ARE HERE FOR ME.I DON'T KNOW WHAT TO DO ANYMORE. I JUST GAVE DALE THE LAST OF MY JEWELRY TO TAKE TO THE PAWN SHOP. HE WAS GOING TO TAKE HIS GOLF CLUBS, BUT COULDN'T FIND THEM IN TIME TO GET THERE BEFORE THEY CLOSED. HE IS TAKING THEM TOMORROW.I FEEL LIKE GOING TO BED AND PULLING THE COVERS OVER MY HEAD AND NOT COMING OUT OF MY ROOM FOR A VERY LONG TIME. I WANT TO CRY, BUT THAT DOES NOTHING TO HELP. WE NEED TO GET MEDS. AND HAVE NO MONEY TO GET THEM WITH. THE LITTLE MONEY HE WILL GET FOR MY STUFF WILL NOT BE ENOUGH. HE JUST CALLED AND LEFT A MESSAGE. THEY ARE ONLY GIVING HIM $75.00 FOR MY THINGS. I WONDER HOW MUCH HE WILL GET FOR HIS CLUBS?ROBIN AND JOY GAVE ME MONEY ON WEDNESDAY TO BUY DISH AND LAUNDRY SOAP. WE HAD BEEN OUT FOR A COUPLE WEEKS. ROBIN AND I ARE TALKING ABOUT MY FAMILY AND HERS RENTING A PLACE TOGETHER, TO HELP US GET BACK ON OUR FEET. DALE THINKS HE HAS WORK FOR THE WEEKEND, WHICH IS GREAT, EXCEPT I HAVE TO BE SOMEWHERE, AT THE SAME TIME OF MORNING, IN THE OTHER END OF TOWN. I ALSO WILL BE DONE 2 HOURS BEFORE HIM, AND THE BUSES DON'T RUN WHERE I WILL BE AT, ON THE WEEKENDS.ALSO, WE ARE OUT OF FOOD STAMPS UNTIL THE 4TH, WHICH IS A HOLIDAY, SO NOT SURE IF WE GET THEM THE DAY BEFORE OR AFTER. SO, IF YOU HAVEN'T GUESSED ALREADY, I'M A LITTLE DOWN. I FEEL LIKE SCREAMING AT THE TOP OF MY LUNGS. THANKS ALL FOR LISTENING. I KEEP HEARING THAT IT WILL GET BETTER AND I KNOW IT WILL, BUT THIS HAS BEEN GOING ON FOR FAR TO LONG. AT LEAST A YEAR AND A HALF, TO, TWO YEARS OF HIM HAVING A COMMISSION CHECK, ONE EVERY COUPLE MONTHS, BUT NOW, IT'S BEEN ONLY ONE FOR THIS YEAR. I HAVE TO GET GOING. HE WILL BE HOME ANY TIME. I NEED TO ASK FOR YOUR PRAYERS, IF YOU DON'T MIND. THANK YOU FOR YOUR LOVE AND SUPPORT.TONICOFFEEBABE

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