Re: Neurologist help

October 12, 2009

Hi Caroline,I don't know a neurologist, but I do know a lot of Autistic adults... many of whom will not eat solid food at all, ever. It could be texture issues... if this is the case, then any time he can't stand the way it feels in his mouth, he'll spit it out. Have you tried feeding him smoothies, shakes, and/or soups run through a blender to have a smooth consistency?

Good luck, and I hope you discover a successful solution!: )Sincerely,~Lydia

Firstly, i want to say thanks to those who put me in touch with Dr. (GI) in Boca. He was really great with my youngest ASD son who he dx'd with 2 chronic ulcers - he says caused by the stress of not being able to communicate effectively. We are working on those issues.

Now, I want to attack his eating issues again. He has had no interest in food since 7 months and lives off formula most of the time (this too, has to be a cause of the ulcers). I want to take him to a really good neurologist who is willing and able to think outside the box to find out how I can help him with his feeding issues. To date, I have tried practically everything and I can't help but think there might be be a thyroid imbalance or such like that could possibly be corrected. I don't want someone who is going to throw medication at him as an answer to his problems but someone who is willing to give it some thought, do some testing and just see if there is something out of whack. He was dx'd at MCH 3 years ago with an " empty sella " but I was told there was nothing I could do about it.

Maybe I'm grasping at straws? I don't know, but I do know I have to try something new to help him. If I can get him eating then I feel a lot of other things will improve too.

Any thoughts would be much appreciated.Thanks.Caroline

-- Lydia Glider-Broward County Special Needs Parents Examinerwww.examiner.com<3 <3 <3 <3 <3 <3 <3

WE CAN DO THIShttp://www.nopom.info<3 <3 <3 <3 <3 <3 <3Hear the REAL Voices of Autism:www.iamautism.org

<3 <3 <3 <3 <3 <3 <3 " First they ignore you, then they ridicule you, then they fight you, then you win. " ~~Mahatma Gandhi

October 12, 2009

Caroline,

Is it possible that the food is causing stomach discomfort? Perhaps if you give

a papaya enzyme pill and then slowly introduce the foods he will eat and then

add in others. You might also try absorb aid which can be purchased at Whole

Foods. It helps w/ the digestion and absorbtion of nutrients. I don't as a rule

like to give my son soda, but I used to give him ginger ale with his meals to

help settle his stomach. He said, food made it " wiggly " in his stomach. These

might help, but I must tell you that he only really improved after we stared

taking him to a bio medical clinic in Illinois. After vitamin nutrient therapy

he now eats anything we feed him and has a great appetite. (He even went to a

restaurant and tried pickled eggs.)

Good luck.

G.

>

> Firstly, i want to say thanks to those who put me in touch with Dr.

> (GI) in Boca. He was really great with my youngest ASD son who he

> dx'd with 2 chronic ulcers - he says caused by the stress of not being able

> to communicate effectively. We are working on those issues.

> Now, I want to attack his eating issues again. He has had no interest in

> food since 7 months and lives off formula most of the time (this too, has

> to be a cause of the ulcers). I want to take him to a really good

> neurologist who is willing and able to think outside the box to find out how

> I can help him with his feeding issues. To date, I have tried practically

> everything and I can't help but think there might be be a thyroid imbalance

> or such like that could possibly be corrected. I don't want someone who is

> going to throw medication at him as an answer to his problems but someone

> who is willing to give it some thought, do some testing and just see if

> there is something out of whack. He was dx'd at MCH 3 years ago with an

> " empty sella " but I was told there was nothing I could do about it.

>

> Maybe I'm grasping at straws? I don't know, but I do know I have to try

> something new to help him. If I can get him eating then I feel a lot of

> other things will improve too.

>

> Any thoughts would be much appreciated.

>

> Thanks.

>

> Caroline

>

October 12, 2009

Hi G!Thanks for all the info. I will definitely try your suggestions. I think he has a lot of sensory issues and he currently has stomach discomfort from the ulcers. The problem has been around a long time, ten years in fact (!) although I do remember him eating blended veggies and meat when he was a toddler. I have tried so many different approaches and nothing has worked. He's not afraid to try foods but won't swallow them. There is no rhyme or reason to his eating; he may demolish a bag of chips one day or a whole meal and then not eat again for two weeks.

I have also been down the biomed route with no luck but it really depends who you get. Who/where did you go in Illinois? Do you know of somewhere nearer who does the same?Appreciate all your help.

Caroline'

Caroline,

Is it possible that the food is causing stomach discomfort? Perhaps if you give a papaya enzyme pill and then slowly introduce the foods he will eat and then add in others. You might also try absorb aid which can be purchased at Whole Foods. It helps w/ the digestion and absorbtion of nutrients. I don't as a rule like to give my son soda, but I used to give him ginger ale with his meals to help settle his stomach. He said, food made it " wiggly " in his stomach. These might help, but I must tell you that he only really improved after we stared taking him to a bio medical clinic in Illinois. After vitamin nutrient therapy he now eats anything we feed him and has a great appetite. (He even went to a restaurant and tried pickled eggs.)