MO

[Guest guest]

Hey, thanks, !

Shoot-howdy, I know what you mean about

the “to do” list. Seems I get to check 3 things off the list

and want to declare it a good day, but can’t, ‘cause 5 additional

to-dos somehow managed to creep on the list while I wasn’t even

looking! Hee hee.

You know the saying “aw, if it ain’t

rats, it’s roaches”? Well, no sooner do we get Jim’s

skin in a better place, when the dermatologist has to switch gears & remove

something scary on me. I’m sure Jim & I are putting her son

through college, LOL!!! When I get myself in order, then it’s Jim’s

colitis that shoots off to mega-flare (he’s back on prednisone,

unfortunately, but it’s a necessary evil we hope will be temporary, ‘cause

with slight improvement in the colitis, finally, he’s now able to proceed

with the taper). So back & forth he & I go, passing the baton of

medical issue, until one of the kids (or a friend) experiences some kind of crisis,

just for good measure. And so it goes – I keep reminding myself, though,

in the thick of whatever “it” is, that “it” all pales

in comparison to the latter half of 2001. That’s always effective

in reminding me that *these* are the good times J

I wouldn’t miss reading a single

post in our group, but these days, with so darned much going on, it takes a lot

to unlurk me… like wanting to spare anyone else the kinda difficulty we’ve

experienced! Don’t get me wrong, the liver tx department at USC is

nothing short of awesome, but as I’ve said, we took Jim’s

dermatologist’s & oncologist’s counsel (on lowering Jim’s

Prograf, to reduce the skin cancer jiffy-popping) to heart… yet, every

time we’re there for clinic, it’s like we must gear ourselves up

for stepping in the ring with boxing gloves on. Initially, after the

first 2 malignant melanomas, they did agree to eliminate Jim’s prednisone

altogether, without a fight, but the issue of Prograf has always been another

story with them. Last clinic visit (with the hep who’d just lost

his mom to melanoma) was a welcome exception to their norm, & happy to say Jim’s

labs experienced nary a blip on the screen as his Prograf got dialed down one

notch further. Next clinic is in a little over 2 weeks; I wonder if we’ll

see the same hepatologist?

I do think about you ( & others in the

group), often. It’s also really good to read updates on KC Rich, Cheryl,

Peg, , JQ …which in turn makes me wonder how others are doing,

too. (Michigan Hunter , , Andi, Darin, et. al., are you there?

Consider this your Mouseketeer roll-call, jot off a post to us, & let the

group know how things are, if you can!)

Thanks again, . Take care.

Hugs,

Maureen

From: [mailto: ] On Behalf Of MO425@...

Sent: Wednesday, April 05, 2006

6:34 AM; To: ; Subject: Re: Hep C &

Livers

Maureen,

EVERY time I read a post from you it makes me miss

you that much more! I understand what you're saying, and appreciate your

post. I, like you, would love to see the " presumed consent "

come to pass.

Thanks for the " guestbook " entry on my

site, I've been meaning to write you privately, but it seems I can never

get caught up on my " to do " list.

(MO)