- Research on the Youngest PSCers

[Guest guest]

Hey --

You know I'm biased because I absolutely love him, but Dr.

Shneider collaborates with Dr. Black ( Foundation) and is

participating in the North American PSC database project. Print off

or email Noah's doctor the abstracts of the pediatric speaker

presenations that should still be posted in the files area on the

Mom's group. Dr. Eve , Dr. Meili-Vergani and Shneider's

abstracts are there. I'll email you privately with some of this info

so we can get our young Noah on the proper dose of Urso!

Dana

(Mom of Josh, UC 3/04, PSC 4/04)

> I am planning to write Eve today regarding her thoughts on

the

> high-dose urso and see what she has to say if she even replies. I

think my

> doctor might listen to something from her. I don't know what she

will say

> either way, but I think it is worth asking. I am also curious who

is doing

> research on the munchkins? With more being diagnosed as time goes

on, I

> think that is an avenue worth pursuing too.who would be the person

most

> well-suited to perform such a study and can it be done from

afar.with

> different centers adding data from their patients. Otherwise,

this is

> going to be an ongoing problem for new pediatric PSCers.

>

> All the best,

>

>