Biomedical treatment for a Five Year old.

[Guest guest]

Hello and goodmorning:

Just read your detailed email regarding the biomedical approach

and steps you have taken with your little boy Austin.

I am new to this forum and have an appontment with a DAN-protocol

physician this coming Friday. His name is Dr. Udell in Weston.

I also bought the book: Children with Starving Brains, to learn of this

perplexing condition and so I am more informed for the first DAN Doctor

appointment.

May I politely ask how hold is your little one ?

I read that interventions such as biomedical are

more effective to children under 5? My heart breaks to think that for the

last 3 years my son's pediatrician kep telling us that he was delayed cause

of the blocked hearing due to successive ear infections. At age 4 his

grandparents finally drove me to a NEUROLOGIST, cause they KNEW.

I guess I was in denial or just overlooked his aloofness to his quiet

and calm personality. I cannot believe he had 3 different pediatricians

see him from birth thru age 4 and none of them recommended we see a

NEUROLOGIST. This is very disappointing to me and I am in disbelief

how much my son was just a number. And the Pediatrician

send me home with another round of antibiotics or recommendation

to see an ENT for his ears. Unbelievable! Anyways,

fastforward to the present....TAKING A BREATH.

I am seeing a DAN doctor for the first time this coming Friday Aug. 7th.

Do you think biomedical is still appropriate to start even if my son is

FIVE years old? did I miss a window of opportunity. I feel so

guilty cause I work full time and was not aggressive with the clueless

pediatricians......

Your opinion is valued...Ramona

To: sList Sent: Tuesday, August 4, 2009 3:28:11 PMSubject: Re: Re: Biomedical treatment

Just remember, not all the interventions work for every child. Every child is different. However, the mb12 has a huge success rate and many parents report positive changes from the use of it. You can check out the parent reports on the Autism Research Institute (ARI) website. It posts many of the interventions along with the parents report of efficacy. What you will find over the course of the next year or so is what type of kid you have in terms of responding. Our son is definitely a responder to all the things that help him with digestion and methylation. We have seen time and again how he cannot process any chemicals. Swimming in chlorinated pools is what really began to stand out for us with him. Also, all the methylation interventions are so effective on him. The mb12 shots, glutathione, nac and vitamin c IV's and DMG with folinic acid and

b12 have been amazing for him. Make sure you learn your child's specific deficiencies. This takes time and money and we do the labs in spurts as we can financially. But knowing his deficiencies (zinc for example) has helped immensely. The changes for him with smell and taste when zinc was boosted were also noteworthy.

It is also important to always be skeptical, never believe you are going to "cure" your child. And, if any well meaning professionals express they are going to "cure" your child, don’t continue seeing them. Many kids are getting better though, often referred to as "recovery," and there is a difference. Further, always keep data on each new supplement or intervention that you try and wait for 2 weeks before adding or making any changes. That way you can track what is actually working and what may not be. Don't assume you will always see some positive change or a negative one. Sometimes the negative ones lead to positive and in many cases, many of the interventions are implemented for overall good health. You may not always see some amazing progress or change from it but know that it is healthier for your child than not. Does that make sense? For example, we give

Austin several supplements that have never amounted to some outward change in language or whatever. However, we know the supplements are helping him to be healthier. We give him a slew of probiotics. Now, we never saw the changes that other parents have reported such as increased eye contact or language or socialization or whatever. But, we did see his belly go from distended all the time to nice and flat. Our son may never be typical or recovered and that is ok with us. Our goal with these interventions is for him to be the healthiest child, with autism, that he can be. I will not ignore his medical needs. If those needs are addressed appropriately and adequately and it minimizes his symptoms, great. If not, that is ok too.

Some people get caught up in the biomedical craziness, always looking for that "one thing." It is very important to keep a healthy perspective but continue to be skeptical and rational.

Hope this helps!

And, one more thing...if you have not tried the gfcf diet, try it before the child is too old to have any control over it anymore. We waited until recently and wished we had done it sooner. Not because of the changes (we have yet to see any), but because of now having so much history with all those foods, it's difficult to take them away. We have worked hard to teach him that we are all trying to be healthier and that this is not a punishment. We have had to show him how those foods have led to eczema outbreaks, which make him miserable.

From: Lena S

Sent: Tuesday, August 04, 2009 11:42 AM

To: sList@ yahoogroups. com

Subject: Re: Re: Biomedical treatment

Austin

Thank you so much for all the info. THis is so new to me and don't want to pump him with everything at once but I am so in shock with the progress he has made. We are due to start the b-12 shot along with the hyperbaric chamber at the end of the month. So hoping it all works. The potty training i can wait on...i am looking more for wors to come out. You put a smile on my face glad you have seen so many improvments hope they are contuning for you guys.

Thanks

Lena>> Love the MB12 shots!> > I cannot say enough about the mb12! It was one of the most amazing interventions we did with Austin, saw improvements within 2 days and substantial improvements, a clearing process, not just something that could appear to be "parent desire" (love that one). He was potty trained independently within 2 weeks. Hugh gains in language, clarity, processing. > > There are some side effects but they do not outweigh the gains. There are undesireable side effects and intolerable side effects. The ones that usually come with mb12 only last for several weeks as the child gets used to the increase in vitamin

b, which is an energy vitamin so it may lead to things such as increased hyperactivity or perhaps aggression (since the indiviudal is likely just at a heightened sense of awareness). the mb12 can be administered at night and reduce the amount of times you administer. Start slow, like once a week, then go to twice per week, then eventually try every other day. We tried daily with Austin (his b was very low) but he got way hyper and he was too old to be that hyper again (could deal with it fine when he was 3 but not at 5). Other odd things were that my son seemed to feel his limbs and tongue for awhile. Like they had been numb prior to starting this. This is a common experience. You can also read up on using this form of vitamin b in those who have nerve degeneration. Same premise. Very cool. My son mouthed his arms and hands and played a lot with his tongue like it was a new toy. Was very strange but sooooo worth it. No longer does that I should say!

> > Check out Dr. Neubrander's website as it has all the information you could want. You can also go to Stan Kurtz website. > > Take data. The Neubrander site has a data/parent questionnaire.. Read it before you start and score. Then, I believe it's 5 weeks, rescore/reassess it. Dr. Zeno may have it in her office. She is great. So is Luciana!> > Many of our kids have problems with methylation, transsulfuration and sulfuration. MB12 helps clear the pathways for the body to do what it is supposed to do. > > > From: Lena S > Sent: Sunday, August 02, 2009 11:16 AM> To: sList@ yahoogroups. com > Subject: Biomedical treatment> > > Just wanted to know if anyone has ever been to Dr Zeno on Davie. I have started with her

on July 8th with my 2 year old son Noah who was dx with ASD in May and he doenst speak at all. We have started some supplements and an antifungal due to yeast in stool and in less then a month my son has 3 words he now says. I am in awe at the progress he has made and looking forward to start b-12 shots. Has anyone seen a difference with the b-12.> > Thanks for any info you can provide.> > Lena>