L. - serious trouble - long

[Guest guest]

Hi, all,

I've been waiting since early morning for our " case manager " to call me

back after she got off the phone to go over with others the

latest mess with 's ISL. I'm waiting, and I'm going nuts.

Andy and I had a phone call from the owner of the agency (I guess that's

what I should call her) informing us that she had made an appointment

with a psychiatrist for next Tuesday; mind you, she made it with

someone the CHARGE Foundation folks (who've been so helpful) hadn't

recommended and who probably has no expertise, much less knowledge

of/ in CHARGE. This woman obviously wants highly medicated.

When I objected to any change in meds, I was immediately brushed off. It

would be different if we were seeing the same things at home that they're

seeing. At Perkins, it was always reassuring that generally what we

experienced at home was mirrored at P. I just know the " house " wants her

drugged into total submission --- one of the clients is on something like

10 mg Ativan daily, if my source is correct, and literally just sits and twirls

things all day.

I aim/email staff nightly (remember, they're all deaf). They've reported

that things are now " great, " etc after the drug withdrawal fiasco. Imagine

our shock this a.m. when agency owner reported that had injured

someone's disc and had (Pam and Laurie, heads up here) bitten

someone's breast (Pam, Laurie, and I have written off list about this: they

don't believe that has turned to aggression of this sort).

Andy delayed his office hours after the call from Fulton. I didn't even

wash my face until 12:30. I am so terribly thrown. We want to move

back to our house this weekend while we continue to set up a new house

for her here, train staff (two already hired), etc. That's what our local

Regional Center people are checking. There's some sort of 30 day notice

rule --- I'm sure we'll ignore it but still do not understand a lack of a phone

call from the locals.

And what if is doing these things --- out of boredom or to get

interaction, however undesirable? We saw that here years ago when

things deteriorated so with the district.

Back after a break to run to the Regional Center to sign releases and to

get a most welcome pat on the back... Apparently the 30 day notice

provision is worthless; the Fulton house won't be paid after leaves,

probably on Saturday. Andy is scared of everyone there knowing what

we're doing in case they take it out on K. and would fundamentally just like

to show up. I, along with our case manager, disagree. Case manager (a

wonder - ain't that nice for a change) wants to be the one to phone agency

owner tomorrow, but I have qualms about that and think I'll call, too. I

might be a wimp, but I darn sure won't show it. If I can handle the Federal

Court of Appeals, surely this will be easier.

Sorry, I just need to ramble.

Notes for various people: Meg, Michele, Larry if you're lurking, Beth

Jordan if you are, too: I'm sure that I'll be in contact soon. Our locals are

TOTALLY open to input. I know how to " handle " 's behavior, if it's

really reappeared, but right now I just feel like a mother who wants others

to help until I'm " up " again.

Pam and Laurie: I got back so late this afternoon that you'd left when I

tried to call at P. We definitely need to talk. I would very much like your

permission to forward your last emails to 's case manager --- you

made such a strong case about not biting breasts, etc. I think they

need your input.

Ok. I'm going to stop for now and have a cry. Doubtless, I'll return later

tonight or tomorrow. Right now, I'm somewhere in disbelief and just pain.

Love to you all for being there --- Martha

P.S., despite the current mess, I'll try to write before K. returns what we've

needed to do to begin to set up her new home here.