Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 , Thank you for sharing your experience with me, though I'm sorry you are having this problem as well. It's comforting to know I'm not alone but I wish you were not suffering with this. Are you able to walk on it? That is what's freaking me out the most. The brace hurts more than the cast did, but without it I can't stand the pain and I can't put any weight on it. Then when I read the info on the Dystonia website I realized it probably won't ever get better like you said. I'm just having a really hard time accepting this...am just so scared I will never walk again. I hope you are doing well in spite of everything and I'll talk to you soon. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2004 Report Share Posted October 9, 2004 Lori - Which website about the dystonia symptoms are you referring to? Dystonia is a symptom/out-cropping of many disorders, I'd be interested in some of the stuff out there. BarbaraAlwayzLoRi@... wrote: , Thank you for sharing your experience with me, though I'm sorry you are having this problem as well. It's comforting to know I'm not alone but I wish you were not suffering with this. Are you able to walk on it? That is what's freaking me out the most. The brace hurts more than the cast did, but without it I can't stand the pain and I can't put any weight on it. Then when I read the info on the Dystonia website I realized it probably won't ever get better like you said. I'm just having a really hard time accepting this...am just so scared I will never walk again. I hope you are doing well in spite of everything and I'll talk to you soon. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 I'm just having a really hard time accepting this...am just so scared I will never walk again. I hope you are doing well in spite of everything and I'll talk to you soon. <hugs> Lori Lori, I am sorry that you are having this problem with your foot. I get scared also about not being able to walk one of these days too, with RSD in both hips, knees and feet, I have had a couple of days where walking was extremely painful that I used the wheelchair as much as I could in our house. So let's keep our thoughts and prayers towards the positive. Lin -- Re: lori , Thank you for sharing your experience with me, though I'm sorry you are having this problem as well. It's comforting to know I'm not alone but I wish you were not suffering with this. Are you able to walk on it? That is what's freaking me out the most. The brace hurts more than the cast did, but without it I can't stand the pain and I can't put any weight on it. Then when I read the info on the Dystonia website I realized it probably won't ever get better like you said. I'm just having a really hard time accepting this...am just so scared I will never walk again. I hope you are doing well in spite of everything and I'll talk to you soon. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 I too am obnoxiously independent. God, I just hate this. BarbaraBarbara, I don't think being independent can be obnoxious, anyway when the reporter was there she asked what was the hardest thing I had to give up and at first I said my job and my friends there but then I got to thinking and I said the hardest thing was my independence. I can't go shopping, I can't drive myself down to Salem, heck right now I can't even drive to St. Helens and that is only 2 miles away! So I can feel for you and Lori it is a hard thing to give up. Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2004 Report Share Posted October 11, 2004 -------Original Message------- Maybe I'm meant to go back home to help my sister with her 6 kids. Maybe instead of being a burden to her should I need to go live with her, I could be a help. <hugs> Lori ===================================================================== Lori, Taking care of kids while having RSD is a challenge....but it's not impossible. I have 3 kids that I take care of, plus I was taking care of 2 kids while being pregnant with having RSD. I'll admit, taking care of the kids wears a person out....sometimes quickly.....but, most of the time it's the easiest job to do. Especially if the older kids help with the younger kids. Plus, I bet your sister would love the help, because that would give her a break from the kids.....which believe me, every mother with young kids just begs for those small breaks where they can hide from the kids! lol Tonia ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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