Re: Celiac? HELP PLEASE!!

[Guest guest]

" a couple of celiacs today posted that this gluten intolerance won't

ever go away. The book seems to contradict this. "

From what I know, celiac disease is staying when you've got it. SCD

will help tremendously in battling the horrible symptoms. Being

compliant to SCD will give celiacs a symptom free life in most

cases. That is different than a cure.

The nice thing about SCD is also that you will really think about

food. I doubt very much that anyone that has been doing SCD for a

substantial amount of time will ever get back to the standard

American diet.

Marjan

Netherlands

[Guest guest]

, I've mentioned that my 15 month old son has been on the diet as well because

since an

intestinal flu his stools have not been consistently solid. They have been very

off - and

this diet makes them normal.

By giving him the pasta, you have already preformed the gluten challenge. Many

docs

consider this a valid diagnostic tool. He as GF for a while, then you gave him

gluten and

symptoms returned. If you tell your doc that you did a gluten challenge, that

may be

enough for him. However, you could ask for blood tests. Some docs say that

they aren't

accurate in small children, however, the blood tests have been used in Europe

for alot

longer than in the US. When I was diagnosed, in the mid 90's it wasn't even

availible here,

but had been used in Europe for 10 years. My younger son was diagnosed by blood

test

alone at 14 months.

but I imagine that unless this kid is practically on his death bed, they will

tell me it's all

normal kid stuff since he's thriving, and has good weight gain and growth.

Same with my son. our ped insisted that he didn't " look " celiac. I insisted

that he have the

test. If you mention that you did a gluten challenge and he improved ALOT and

ask for

the test, he might do it. Remember, you are a customer of his services. If you

want the

test, you should keep shopping until you get it. Any doctor can prescribe the

blood test, it

doesn't have to be a GI. The one who did it for my son was an allergist.

Can early intervention with celiac bring about a cure?

There is no cure for celiac. If the celiac continues to eat gluten, even

without symptoms,

he increases dramaticly his risk of dying for colo-rectal and stomach cancer.

Untreated

celiac also damages the teeth and bones by malabsorbtion of calcium, damages the

thyroid, causes excema and psoriaisis.

I don't want this kid to grow up having to worry about every little piece of

food he eats

like has had to.

It's no big deal. I've been GF for nealry 10 years. After the first year, it

just becomes like

second nature.

> " The SCD has been shown to completely cure most cases of celiac disease if

followed for

at least a year. " What exactly does this mean? Staying on the diet cures them

of all

symptoms but they have to stay on the diet to remain symptom free or it actually

'cures'

them to the point of being able to go on a normal diet?

Celiacs can never return to a normal diet. SCD cures the damage of untreated

celiac.

Then the celiac can go back to a normal GF diet. A normal GF diet is not that

hard. You

can get lots of prepackaged version of " normal " foods, like mac and cheese or

pizza. But

many celiacs have so much damage that they can't tolerate lactose, because it is

digested

by the same area in the intestines, soy, corn, ect. SCD can cure those

sensativities.

[Guest guest]

I know how you feel completely. I am in a similar boat, though I

don't even know if my son has celiac, but I have a deep feeling that

he does. Now he has been on the diet for almost 3 months now, and I

don't know if the docs could even tell anymore. We have an appt.

with a ped. gastro set up for July 30th, another month out. I really

want to know for sure, but then again, I am torn about what to do.

Seeing if he has it would involve giving him something with gluten,

and I don't think I can bring myself to do that, as hard as we have

worked and as far as we have come. But for his sake down the road,

we need to know this information. For myself, I think I must have

had it undiagnosed for many many years.

Part of me wants to justify the diet to others, such as my parents!,

who don't believe me at all and who think I am completely insane

(mainly my father). I want to say, " See I told you! " but that's

just silly and immature. I wouldn't really do that...I don't think:)

Tina

> If anyone has been following my posts about my son age 4, UC one

year, and new to diet, I've mentioned that my 15 month old son has

been on the diet as well because since an intestinal flu his stools

have not been consistently solid. They have been very off - and this

diet makes them normal.

>

> I just received my copy of BTVC yesterday and read it up until the

gourmet section. I just found the last chapter about Celiac and read

it. Good grief - the description of the pasty, large, chunky, grey

stools describes exactly what I have been seeing in . He had

pasta on Sunday and had horrible gas along with this type of stool

the next day, though this wasn't the first time I've seen it. But

this is when I decided to put him on the diet with .

>

> I absolutely refuse to have him put through the invasive biopsies

and such. We are seeing a GI specialist for already, and I

imagine I could see if he'd be willing to do a blood test on

, but I imagine that unless this kid is practically on his

death bed, they will tell me it's all normal kid stuff since he's

thriving, and has good weight gain and growth. Can early

intervention with celiac bring about a cure? I don't want this kid

to grow up having to worry about every little piece of food he eats

like has had to. I certainly don't mind keeping him on as

strict a diet as I have to in these early years, but a couple of

celiacs today posted that this gluten intolerance won't ever go

away. The book seems to contradict this.

>

> " The SCD has been shown to completely cure most cases of celiac

disease if followed for at least a year. " What exactly does this

mean? Staying on the diet cures them of all symptoms but they have to

stay on the diet to remain symptom free or it actually 'cures' them

to the point of being able to go on a normal diet? Oh, this is

freaking me out that my little baby might have celiac. I forgot

to tell the church worker tonight to not give my baby any treats - so

he ended up having animal crackers and a few goldfish. sigh. I

guess we'll see tomorrow what happens.

>

> Robbie

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