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I dont know what afo is but i had the same thing. I still do and i

havnt a clue whats good for that. my ot had limited success. Perhaps

shoe supports?

Chantelle

In CHARGE , " ania_swanson " wrote:

>

> hi everyone.

> My son is 2. he isn't walking yet, but mastered the comando

> crawl. his feet started to be, what i call, " charge " feet. they

turn

> heel inwards and it even seem to me that his legs are somewhat

twisted.

> we have afo's but i'm curious whether anybody else did some other

thing

> that proved to be helpfull.

> if you can please write to ania_swanson@...

> because i dont' have internet at home, so i can't check all the

> messeges posted.

> sorry for typos.

> thanks a lot

> ania

>

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Hello Ania,

I work at the Perkins School for the Blind in Massachusetts. Our PT's are VERY

interested in what they also call " CHARGE feet " . I have forwarded your message

to them--I think they will be interested and in touch!!

in the meantime, hello, welcome and good luck!!

pam

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Hi Ania-

My son Nate- now almost 12- has " charge feet " . We did afo and PT -but I think

general growth helped the most. Because of balance issues he walks with a very

wide gait,one foot sticks way out and some of his toes curl so that the nail is

on the side of the toe.

He is able to be totally mobile on his own.

Good luck.

Barbara-mom,(CHARGE)11,Rosie16

-------------- Original message ----------------------

> hi everyone.

> My son is 2. he isn't walking yet, but mastered the comando

> crawl. his feet started to be, what i call, " charge " feet. they turn

> heel inwards and it even seem to me that his legs are somewhat twisted.

> we have afo's but i'm curious whether anybody else did some other thing

> that proved to be helpfull.

> if you can please write to ania_swanson@...

> because i dont' have internet at home, so i can't check all the

> messeges posted.

> sorry for typos.

> thanks a lot

> ania

>

>

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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I have never heard of CHARGE feet, but my son was born without a tibia

and a big toe. He has had two surguries on his leg to strighten it

out. His fibula is oversized, which is lucky. He is three and is

starting to walk on his own.

AFO stands for ankle and foot only.

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AFO stands for Ankle-Foot Orthosis. It is a custom molded piece of

plastic (although occasionally, they are still metal, but not with

this population)that encases the foot and ankle, and up to the

calf. There are many purposes for which they are used. They

include to prevent and correct foot deformities, provide stability,

and compensate for weakness. I think in CHARGE (not including bone

abnormalities, which are very varied, it appears), AFOs would be

used to provide support due to low muscle tone and ligament laxity.

By providing a stable base, the AFOs might make ambulation a little

bit easier. However, they have some drawbacks too, so are not for

everyone.

I would like to know more about the CHARGE feet too. Does anyone

have a description?

Kate (PT to a CHARGEr)

> >

> > I have never heard of CHARGE feet, but my son was born without a

tibia

> > and a big toe. He has had two surguries on his leg to strighten

it

> > out. His fibula is oversized, which is lucky. He is three and is

> > starting to walk on his own.

> > AFO stands for ankle and foot only.

> >

> >

> >

> >

> >

> > Membership of this email support groups does not constitute

membership in

> > the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter),

> > please contact marion@... or visit

> > the web site at http://www.chargesyndrome.org - for CHARGE

Syndrome Canada

> > information and membership, please visit

http://www.chargesyndrome.ca or

> > email info@... .

> > 8th International

> > CHARGE Syndrome Conference, July, 2007. Information will be

available at

> > www.chargesyndrome.org or by calling 1-.

> >

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Thanks, Kate for the AFO explanation.

Actually my kid sister ws born with one of her feet curled up and she

used an AFO for a while. It worked perfectly. It's just that I didn't

know the name in english..

Pat :)

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