Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 .. Am I missing something? Isn't this the point of doing the diet for celiacs? > > Robbie > This diet does not cure celiac. When I first heard about SCD, I thought that, too. Then I joined a different SCD mailing list and asked about SCD and celiac. The problem is that untreated celiac patients tend to have lots of damage, therefore, they become sensative to more and more foods. Many celiacs get healthy on GF alone. Some do not because it's not unusal for undiagnosed celiacs to develope other GI diseases in addition to celiac. Some, like me, are totally healthy on GF alone for many years, then develope sensativites to other foods. I've e-mailed many adult celiacs about this. They will go on SCD, then they are able to re-introduce the foods that they had eliminated. However, none of them were able to re-introduce wheat, oats, barley and rye. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2004 Report Share Posted June 19, 2004 > . Am I missing something? Isn't this the point of doing the diet for celiacs? > > > > Robbie > > > This diet does not cure celiac. They will go on SCD, then > they are able to re-introduce the foods that they had eliminated. However, none of them > were able to re-introduce wheat, oats, barley and rye. I for one don't care about taking back foods or being cured, just controlling my celiac and being functional. Before SCD everything I ate gave me pain. After three years I have taken the very occasional piece of conventional cheesecake without consequence but it seems too sweet. I had a needed and large weight loss prior to starting SCD and I maintain a normal weight effortlessly with SCD. it rends to be self regulating. i still do have flares but they subside.To me this is like diabetes in a way. i can live with it and cope with it but could not before SCD. Carol F. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 So, it is possible that I could have had undiagnosed celiac myself before getting Crohn's at 21 years old? I have thought this before, because I had IBS too, and as soon as I went on the SCD the first time, I felt better almost immediately. Then I got off of it for a while and started feeling bad again and was diagnosed with fibromyalgia, although I have never had a Crohn's problem again. But all the colonoscopies I had they never said anything about celiac. Wouldn't they have seen that too, or not? This is what concerns me about my son, whether he has celiac or not, and also my 10 month old. I don't give him any gluten stuff, he is on SCD, but how will I know if he has a problem? Will I just have to start giving him gluten for a while and see what happens to know? So, you are saying that celiac cannot be cured, even following this diet for a year or two? But Crohn's, IBS, UC and diverticulitis can? Does Elaine agree with this? Just wondering. Tina > . Am I missing something? Isn't this the point of doing the diet for celiacs? > > > > Robbie > > > This diet does not cure celiac. When I first heard about SCD, I thought that, too. Then I > joined a different SCD mailing list and asked about SCD and celiac. The problem is that > untreated celiac patients tend to have lots of damage, therefore, they become sensative to > more and more foods. Many celiacs get healthy on GF alone. Some do not because it's > not unusal for undiagnosed celiacs to develope other GI diseases in addition to celiac. > Some, like me, are totally healthy on GF alone for many years, then develope sensativites > to other foods. I've e-mailed many adult celiacs about this. They will go on SCD, then > they are able to re-introduce the foods that they had eliminated. However, none of them > were able to re-introduce wheat, oats, barley and rye. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 Ah, ok! Thank you for the clarification. Robbie Re: Celiac Question . Am I missing something? Isn't this the point of doing the diet for celiacs? > > Robbie > This diet does not cure celiac. When I first heard about SCD, I thought that, too. Then I joined a different SCD mailing list and asked about SCD and celiac. The problem is that untreated celiac patients tend to have lots of damage, therefore, they become sensative to more and more foods. Many celiacs get healthy on GF alone. Some do not because it's not unusal for undiagnosed celiacs to develope other GI diseases in addition to celiac. Some, like me, are totally healthy on GF alone for many years, then develope sensativites to other foods. I've e-mailed many adult celiacs about this. They will go on SCD, then they are able to re-introduce the foods that they had eliminated. However, none of them were able to re-introduce wheat, oats, barley and rye. For information on the Specific Carbohydrate Diet, please read the book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the following websites: http://www.breakingtheviciouscycle.info and http://www.pecanbread.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 " all the colonoscopies I had they never said anything about celiac. Wouldn't they have seen that too, or not " A biopsy is rather different from a scope. The biopsy will be looked at under a microscope. Marjan Netherlands Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 " I wanted to communiate the SCD diet to her, but I definitely don't want to give her erronious info. " Lend her your copy of Breaking The Vicious Cycle or give her a copy on the baby's birthday... Marjan Netherlands Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2004 Report Share Posted June 20, 2004 .. But > all the colonoscopies I had they never said anything about celiac. > Wouldn't they have seen that too, or not? > Celiac causes damage in a very specific location. If the doc isn't looking for it, he would miss it. I was originally diagnosed with colitis about 4 years before even hearing about celiac. I had GI problems since I was a pre-teen and wasn't diagnosed with celiac until i was 27. > on SCD, but how will I know if he has a problem? Will I just have to > start giving him gluten for a while and see what happens to know? You could try that. My son got gluten from about 10months old to 14 months, when he was tested. On the other hand, my older son had gluten from 6 months old and was tested at 2yrs old, but was negative. > So, you are saying that celiac cannot be cured, even following this > diet for a year or two? But Crohn's, IBS, UC and diverticulitis > can? Does Elaine agree with this? Just wondering. I don't remember exactly, as I've lent my copy of BTVC to a family member, but I don't think she agrees with me. However, this info comes from celiacs from a different mailing list who have been on the diet for many years and have tried to re-introduce gluten. Considering that gluten is a protien, not a starch, it makes sense that you could heal the ability to digest the starch in wheat, but it doesn't do anything about the immune reaction to the protien. Celiac is a genetic disorder that can not be cured. Quote Link to comment Share on other sites More sharing options...
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