SchaferAutismReport: Mass. General Hospital to Target Adult Autism

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Subject: Mass. General Hospital to Target Adult AutismTo: "Schafer Autism Report " Date: Monday, August 24, 2009, 5:15 PM

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TREATMENTMass. General Hospital to Target Adult AutismPUBLIC HEALTHBlood Mercury Levels Rising Among U.S. WomenParents Lie To Skirt Mandatory Vaccinations?EPA Fails To Inform Public About Weed-Killer In Drinking WaterFORENSICVaccine Injury Appeal to the Supreme CourtProtecting Pregnant Women from Mercury-Preserved Flu ShotsEDUCATIONTeacher Accused Of Abusing Special Needs StudentBoys Get Better Grades At All-Boys SchoolsPEOPLEPolice Error "Inexcusable"; Investigation ContinuesAutistic Man To Sing at Fenway ParkDid My Ex Have Asperger's?EVENTSNew Jersey's First Green Children's Health ExpoAutism Conference in NYC: October 2009

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TREATMENTMass. General Hospital to Target Adult Autism$29m gift will fund specialized program By Liz Kowalczyk for the Boston Globe Massachusetts General Hospital is creating one of the first comprehensive programs in the nation to provide specialized medical care to adults with autism, a group whose numbers are poised to surge as tens of thousands of children diagnosed with the developmental disorder grow up. The hospital plans to announce Tuesday that it will receive $29 million, the fourth- largest gift in its history, from Lurie Marks and her family foundation in Wellesley,

in part to add a major adult component to its pediatric autism program. The money will also allow the hospital to expand its services for children with autism, who now wait up to a year for an appointment, conduct extensive research, advocate for patients, and train physicians. Foundation staff and autism specialists said many physicians are hesitant or unsure how to talk to and examine adult autistic patients. Their behavior can include rocking and repeating stock phrases - or not speaking at all - and that can lead to serious gaps in care and an over-reliance on psychiatric medications. Autism “is treated as a childhood disorder but it’s lifelong," said Clarence Schutt, director of the Wellesley foundation, which is a leading funder of autism research and whose grant to Mass. General is its largest ever. Many adults with autismcontinue to see

their pediatricians well into their 40s, while others go long periods without a physical or dental exam. Still others are misdiagnosed, with doctors missing complications such as sleep apnea or gastrointestinal pain because the patient cannot communicate the problem, doctors and families said. “I am still struggling to get certain services," said Stefanie Sacks, 43, of Lynnfield. “Once you turn 22 you fall off the face of the earth. Some doctors For rest of today's SAR click here:www.sarnet.org/frm/forsar.htm

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