Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Sue, Yes, has autism. I guess that as she's gotten older, I've learned to pick and choose my battles with her and by the same token, she's learned when to dig her heels in and when to give in. I'll never give up on her, as I would never give up on any child. I've just learned to grow up a little bit myself. At 5 I wanted her to be " cured. " At 8, I just wanted her to learn how to read and write. At 10, I blamed the teachers that she couldn't add and subtract. When turned 12, it was a really rough week for me. I still can't understand why, but I became very quiet (highly unusual for an Irish girl from Brooklyn, NY). I came out of it with a new way of looking at life with . Will she be " cured " ? No probably not. Will she be reading best sellers? No but she'll be able to read and write a simple grocery list, and she can sight read the menu at Mcs. Will she be able to look at a clock and tell time? Again, probably not so this Christmas I finally broke down and bought her a digital watch which is her favorite gift this year, as she is now telling us the time " CONSTANTLY " and is quite proud of her accomplishment. The one thing that will have is a happy life, filled with family that adores her and works with her so that she may reach her full potential. Instead of kicking myself for the things that aren't the way I had hoped for them to be, I'm beginning to enjoy the things that we can do. It took a long, long time to get myself to this point, and it's only because I met another Mom with a twenty-eight year old son with autism that I was willing to look at the " whole picture " rather than the horrible portrait that I had painted for myself all those years. We ran away this summer to rural upstate NY, bought a 4 bedroom home with a couple of acres of land and finally, finally, we are happy. I don't spend every weekend with my family asking what the future holds anymore, as we're too far away to visit all the time and long distance isn't cheap. We still have our bad days (sometimes even weeks) but we survive intact because we now know after 12 years that most of these things pass in good time. Her latest stint is hair pulling, so far, she's pulled out 30% of her hair. She looks horrible, I even have hair in my Christmas tree, but hey, this too shall pass. At some point, I'm sure I'll stumble across something that will get her off this latest jaunt. Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Hi Maureen! I'm glad to read this. My 9 year old still doesn't wake up at night to use the bathroom, and until now, I hadn't heard of any others. My son's were 7 and 8 before they were dry daytime, and we're still in Goodnites for the younger one (he's the one who's 9) at night. Is your daughter also autistic? If so, it's nice to have someone else with a middle schooler here. There aren't too many of us. By the way, my dad calls his 'Bumpkin'! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 > I'm glad to read this. My 9 year old still doesn't wake up at > night to use > the bathroom, and until now, I hadn't heard of any others. My Sue, My husband and his brother were both in their teens (16 & 14, I think) before they stopped wetting the bed. Neither of them are disabled. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 > that it was just fine with me if she wore a pull-up for the next > 16 years, > the pressure was off. Did I want her in a pull-up? Absolutely not, but, > like autism, I was willing to accept what she could and couldn't > do and work > with that. That is SUCH a great attitude. Thank you for sharing! -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 >>>>>>>>>> I think that the biggest problem for me was the fact that everyone tried to make me feel " guilty " for not having her toilet trained. The school even went so far as to send home weekly reminders that she was the only student with a toilet trainer in her class. Once I stood my ground and told everyone that it was just fine with me if she wore a pull-up for the next 16 years, the pressure was off. Did I want her in a pull-up? Absolutely not, but, like autism, I was willing to accept what she could and couldn't do and work with that. Maureen <<<<<<<<<<< Kudos to YOU Maureen!!! Penny :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 I can't even get Liesel to wear pants, let alone sit her on the potty she is 4.7 years now. Oh the screams and the tantrums are awful *total meltdown* Of course I would love her to use it like younger sister Freyja, but I have no hang ups, she will do it in her own time, I couldn't force it anyway! (we live in hope) Louisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Sara, I know my brothers son had night time problems, turned out he too is aspergers! I'm not overly concerned about this with , just tired of the expense. He is rarely dry overnight and we just had to go up a size in Goodnites because he was soaking through very often. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 My oldest who has no disabilitites or anything else didn't stop wetting the bed until he was 10. In a message dated 12/30/2002 11:54:55 AM Eastern Standard Time, thebyks@... writes: > My 9 year old still doesn't wake up at > > night to use > > the bathroom, and until now, I hadn't heard of any others Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 WTG , that is one big step. It took until 3 or 4 months ago to get trained. is 10. Lori -- Potty Training My daughter (now age 12) was not fully daytime trained until she was almost 8. Looking back, I can see that most of the fault can be laid directly at my feet. Instead of following my heart, I listened to everyone else, such as my husband, in-laws, my parents, friends and the so called " professionals " that told me that it would be oh so much better if she were toilet trained. I tried everything humanly possible, even meds to get her trained. Finally, I blew up at everyone and told them all to mind their own business and promised them all that she would be out of pull-ups before her 21st birthday. Then, I just crossed my fingers. After almost a year of doing nothing whatsoever, and as happy as a lark, I grabbed her favorite toy and threw it into the bathroom, telling her that it could only be played with if she were sitting on the toilet. I still kept her in pull-ups, never saying a word when they were completely soaked. After about a week, she trained herself to use the toilet during the day. Sometime a few months later, Elmo came out of the bathroom and after a good washing, went back into her toy box. I left her alone with the nighttime wetting as well, putting on the pull-up right before bed, and limiting the water after 7PM. She did not begin getting up at night to use the toilet until this summer, when she turned 12. And, regardless of what time during the night she gets up, she takes off the pull-up while she's using the bathroom and throws it in the trash, and still wakes up dry 99% of the time. She will not go to bed without the pull-up, and for now, that's fine with me. I might be wasting $13 every two weeks on pull-ups that are thrown out in fine condition, but $13 is a small price to pay for my sanity. I think that the biggest problem for me was the fact that everyone tried to make me feel " guilty " for not having her toilet trained. The school even went so far as to send home weekly reminders that she was the only student with a toilet trainer in her class. Once I stood my ground and told everyone that it was just fine with me if she wore a pull-up for the next 16 years, the pressure was off. Did I want her in a pull-up? Absolutely not, but, like autism, I was willing to accept what she could and couldn't do and work with that. Maureen Quote Link to comment Share on other sites More sharing options...
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