Where should I go for a new doc for Noah?

[Guest guest]

No go on the high-dose

Urso for Noah. 21 mg/kg is the best we could get out of her. She is

firm.

So, now here is our

situation…Noah is on Gateway which is PA Medicaid…so we need to be

seen in PA on that. Does anyone have experience getting the go ahead from

a Medicaid provider to go outside the state? I think I prefer the s

Hopkins route. Philly is quite a trip for a doctor’s appointment

and I am betting that Pittsburgh

would be the same. Any ideas here? Insight? We are looking

into PA Virtual Charter School for Noah next year, so that will make things

much more flexible for appointments, so maybe it does not matter.

What do you do if your

doctor is 2-3 hrs. away and you have a UC flare? Are pediatricians good

about taking care of things locally or over the phone being able to talk

through it?

I am a mess with this

decision.

Thanks in advance,