Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 > I think Gabe just had another seizure. He does not have a fever. > Sara: I am sorry about this. Hope he doesn't have m/any more as I know it must be frightening for you. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 Please let us know what the ped. says... we'll be praying for you both Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 aww , I'm sorry. Sounds like a siezure to me too. Scarry. As for getting up at 3:30am? We could have chatted,lol. I just woke up to find n had gotten out of bed and was playing with the tv at 3 am. Thank God that's all he did with the way he climbs. He didn't go back to bed until after 6am and I had to get up. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Sorry to hear this Sara. 's seizures started when he was only hours old. The sleeping after is something that happens with them. If it has to be seizures, I'm glad they're at least the tiny ones. Wishing you the best. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Sara, I should've kept reading posts before I sent the first response. This is really a bad night - do keep us posted what the ped says. Are the kids in the same room - if not, put a small fan in one or both rooms - the noise blocker helps keep my guys from waking each other up (especially when sick - humidifers work well too, but need to be cleaned often). Good luck (and hope you get a nap today) - , Sam and Max's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 > If it has to be seizures, I'm glad they're at least the tiny ones. Amen to that. Thanks, everybody. We just got back from the ped. She will call to schedule an EEG. She checked his reflexes & did a physical exam; he looks fine. She said it is *possible* this is a behavioral thing, although the falling asleep afterwards really does point to seizure. She said the EEG often comes back normal if they don't have a seizure during it, but that at least gives you a baseline and can be useful later. If he does not have a seizure during it and it is still abnormal she said there is a greater chance he will continue to have them, need medication for them, and possibly develop larger ones. But mostly we will just have to watch him and see. If they don't affect him adversely she sees no reason to medicate him and at this point I agree very much with that. But I will be doing my own reading and coming to my own decision. We were in with her for 45 minutes, and not once did she look at her watch. And I know she had other patients waiting. She told me I was very calm and had done a great job, and a lot of mothers would have been hysterical at the idea of seizures. She said, " Can't we have one child without any major problems? Gabe, you looked so promising! " and it made me laugh a lot. I do love her. I should write her a note or send her flowers or something... -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 I had epilepsy from birth to 4 years of age, when I just grew out of it. I remember my mom telling me it was a " sure sign " I had a seizure b/c I " d fall asleep RIGHT afterwards for about 10 minutes, wake up and not even know I had one.. (of cours I have no memory of any of this). They said I also screamed a lot of times RIGHT before I'd go into one..hmm... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Thanks . Yeah, they're both in the room with us. The last few nights has been walking and talking in his sleep, and that's what wakes Gabe up. He can be really loud. I am hoping it's just the stress of the holidays and he will settle back down soon... I should be able to rest today...Matt is home and we had already decided we would take turns sleeping all day today. -Sara. > Are the kids in the same room - if not, put a small fan in one or > both rooms - the noise blocker helps keep my guys from waking each > other up (especially when sick - humidifers work well too, but need > to be cleaned often). > > Good luck (and hope you get a nap today) > > - , Sam and Max's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 > She said the EEG often comes back normal if they don't have a seizure during it, but that at least gives you a baseline and can be useful later. If he does not have a seizure during it and it is still abnormal she said there is a greater chance he will continue to have them, need medication for them, and possibly develop larger ones. But mostly we will just have to watch him and see. > If there is any particular events, triggers that seem to have occured before the ones you've seen, you might want to try to recreate that before the EEG. Lack of sleep, not eating, anger, etc. If the EEG comes back normal but you continue to see questionable events like this, I would ask her about a 24 hour EEG. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 > > If the EEG comes back normal but you continue to see questionable > events like this, I would ask her about a 24 hour EEG. > > Tina Yes, I agree totally with Tina good luck with it. Hang in there... Louisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 > I don't need this. No, really. I don't. No, you don't. Sissi Quote Link to comment Share on other sites More sharing options...
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