lori

[Guest guest]

hello. well let me see. i have rsd n left foot. because of o being

able to wear shoe it has dropped severely. it aalso is turning inward

like a " C " . they say this is common due to deteration of the muscles.

my ortho said that i could wear a brace, but it would il me. with pain.

so there is nothig he can do for me. when the foot is turning more it

urts like hell. i feel like the one is breaking. i have had rsd for 11

years. hope this explains this. will it ever get better. nope. i

wish it would but it is getting worse than better. glad to see you back.

cathy

[Guest guest]

Lori - Thanks for your thoughtful words. I can't even begin to describe what all of this feels like to me right now. If I think beyond the moment, I get terrified and so very sad. I just have to trust that things will work out. I'm still fighting and trying to view this leave of absence from work as a temporary measure that, while emotionally awful, is the most reasonable move for me right now. God, I hate this. I just hate it. I couldn't even tell the kids or families....The director will need to do that for me since I know that I would just get too upset and I can't have the kids see me like that. I'm terribly concerned that they will take my absence as just a nother person who has et them down and abandoned them and those little heroes deserve so much more than that. As awful as all of this is for just me, I think the hardest thing for me to cope with is when my fragility ends up effecting others. I too am

obnoxiously independent. God, I just hate this. BarbaraAlwayzLoRi@... wrote:

Barbara,

I pray that you get some answers soon with your vision problems. I know how you feel about not working anymore, I'm struggling with that issue myself. My sister wants me to stop work now and just use my time to try and get better. But I've been working and independent so long it will be an extremely difficult thing for me to do. My specialist asked me if I was still working and I when I told him yes he says - I'm so proud of you. You are still fighting and work is such a big part of our lives...and it's so true. But I know my time is coming close...i'm just trying to stick it out until my lease is up and my car is almost paid off, for I don't want to stick my sister with all of those payments. So I understand what you are going through and really hope and pray that someone is able to help you. Hang in there and I'll talk to you soon.

<hugs> Lori

[Guest guest]

Oh I agree 100%, if could not drive at least in this town, would be so frustrated!!! Town is small but has 2 nice women's clothing shops, and of course Wal Mart and town 15 miles north has 1 good antique shop I like. Also can, but barely can, drive to West Memphis to dentist which have to go soon and when there go to couple places. Pay price but at least get there.. I am so sorry and Barbara and Lori, as wish could help you each so much, just I don't know how to help you, and it frustrates me so much. I really really want to find way to make things better. Please know I am at least here to talk with and will phone anytime.... S. you up to phone call, Barbara you up for one today also.....will call this afternoon as long to talk to both of you....hugs and love

JoAnn

s Momma

Re: Lori

I too am obnoxiously independent. God, I just hate this. BarbaraBarbara,

I don't think being independent can be obnoxious, anyway when the reporter was there she asked what was the hardest thing I had to give up and at first I said my job and my friends there but then I got to thinking and I said the hardest thing was my independence. I can't go shopping, I can't drive myself down to Salem, heck right now I can't even drive to St. Helens and that is only 2 miles away!

So I can feel for you and Lori it is a hard thing to give up.

Lin