Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 Hi to all Hope you are all well and happy! My sort story: Years ago, when the problems started, and after I was misdiagnosed (rheumatoid arthritis)and treated with lots of meds, only one, out of the 6 best Doctors who exam me, knew and diagnosed this syndrome, I was his first case, but then he became very old. After I became a member of the UK's EDS support group they told me that one of the Best doctors in our field was Greek and that he could do a correct diagnose of the syndrome and so did he, bad the problem is that he only saw me ones and he lives very far away (USA). So here I was totally alone and with no Doctor...and then...my brother searched in the net (who is a computer maniac), and he finally presents to me " the groups in the net " ! I saw this list and joined it, " 425 people, ouaouuuuuuuuuu " I said, and realized that I might felt as I was the only one here in my country but I am definitely not alone in this beautiful world. So what's left for me now? A DOCTOR, if not here, at least somewhere nearer than USA! Who would know everything about EDS, become my doctor and finally answer me some questions, and lastly help me start a pregnancy. By the way, has anyone else; had a fall in his/her white blood cells? Mine, after I started the meds (11 years ago) fell from normal value to 2500(min)-3300(maximum). Now they are 2800. Nobody knows here, some docs say that this might be due to the meds I once took, some others simply don't know! Hugs to all, Tia Quote Link to comment Share on other sites More sharing options...
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