Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 For those who have had transplants, I am just curious about what anti-rejection drugs you are taking after what period of time after transplant. (20 yrs.) had her transplant almost a year ago and is still on Prograf 5 mg. two times a day and Cellcept 1000 mg. two times a day. Thanks in advance for your input. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Ruth, Eight years after receiving a transplant I take 3 mg Prograf twice a day and 1000 mg Cellcept twice a day. The 12 hour trough level of tacrolimus (Prograf) is more important than the dose. My trough level is about 4 because I take rifampin, which speeds up metabolism of Prograf. When my levels were high, in the year after tx, I took 6 mg twice a day to keep levels at 12 to 14. (Causing noticable side effects of tremor and head aches, but did keep rejection at bay). Tim R > > For those who have had transplants, I am just curious about what > anti-rejection drugs you are taking after what period of time after transplant. > (20 yrs.) had her transplant almost a year ago and is still on Prograf 5 > mg. two times a day and Cellcept 1000 mg. two times a day. Thanks in advance > for your input. Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 My son (8 yrs old) is post DOUBLE LUNG tx (2/26/06), so I'm sure his isn't the situation you're wondering about, but he's on Prograf (4mg x2), Cellcept (500mg x2), and Prednisone (6mg x2). Also Bactrim (60mg x2 MWF). His other meds include Protonix (20mg x2), Zelnorm (2mg x3), Ursodiol (500mg x1, 250mg x1), Iron (60mg x2), Levothyroxine (175mcg x1), Folic Acid (400mcg x1), DDAVP Injection (.1mcg x1, .2mcg x1), Lantus Injection (7.5units x1), Novolog (varies x4), Other Insulin (5units x1), Epogen (.25ml x1 MWF). We've also got Ativan as needed along with Zofran and Miralax. AmiGitaneB@... wrote: For those who have had transplants, I am just curious about what anti-rejection drugs you are taking after what period of time after transplant. (20 yrs.) had her transplant almost a year ago and is still on Prograf 5 mg. two times a day and Cellcept 1000 mg. two times a day. Thanks in advance for your input. Ruth Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2006 Report Share Posted April 3, 2006 Ruth: On Wed. I'll be 9 mths post transp. I am currently taking 4 mg Tacrolimus 2x daily and 75 mg Imuran 1x daily. Everybody's system holds the drugs in their system differently so you will see different levels for most of us. Debbi B. > > For those who have had transplants, I am just curious about what > anti-rejection drugs you are taking after what period of time after transplant. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Todd is 2 years post transplant is currently on 2mg Prograf twice a day. Joanne (mom of Todd) GitaneB@ wrote: For those who have had transplants, I am just curious about what anti-rejection drugs you are taking after what period of time after transplant. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 Forgot my Urso - 300 mg 3x/day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2006 Report Share Posted April 4, 2006 One comment about Prograf, if I may – although Jim’s personal set of post-tx circumstances (esp. multiple skin cancers) leaves me, his appointed medical advocate, passionately holding to the personal opinion that reduction of post-tx immunosuppression should always, always, always be at the forefront of the mind… …Prograf dosage, if I’m not mistaken, is actually set by one’s own labs, i.e., by how the transplantee metabolizes this Rx. I fight this fight with “some” of Jim’s doctors alllllllllllllllllllll the time, and they loathe it. Me? Since Jim unfortunately doesn’t see Dr, Starzl (who would adore me!), or any other specialist at the totally right-on Starzl Institute, hey, I do what I gotta do. As I said, I grapple with this topic, not with Jim’s dermatologist, nor his oncologist, mind you, but DEFINITELY the doctors up at his transplant center (USC in Los Angeles), who seem to collectively embrace a “if it ain’t broke, don’t fix it” ideology with respect to Jim’s consistently great labs, and not daring to step outside that box to tinker with his meds. With one exception: there once was a hepatologist running clinic, and it happened to be the first time we’d ever seen him. Turns out his mother had just died from melanoma. That was the EASIEST “say, doctor, could we please talk for a second about the possibility of lessening Jim’s Prograf dose?” conversation I’ve EVER initiated up there. But while every transplantee needs to be especially mindful of the sun, not every transplantee is going to jiffy-pop skin cancers like Jim. So, for the most part, comparing one transplantee’s Prograf dose to another transplantee’s dose, that’s not apples to apples, it’s a Fuji apple to a Valencia orange, and not necessarily appropriate to the bigger picture (i.e., the transplantee’s lab results, which are the 1st indication of organ rejection). Furthermore, comparing the entirety of one’s post-tx regimin to another is hard, too, in that this can be quite different from transplant center to transplant center. Anyhoo, that’s our story, and we’re sticking to it. Often times with medical matters, we’re unfortunately faced with determining the greater and lesser evil. It’s a delicate-balance thing, judging these King , sometimes-impossible medical decisions (not just “dare we lessen immunosuppression and risk organ rejection,” but… “is now the time to transplant?” & /or “should we opt for living donorship, or hang in there and await cadaveric?” The last 2 are vitally important, as it’s truly naïveté at its best to think a transplant will actually “fix” you. Consider all those transplanted for hepatitis: one report maintains the virus can actually replicate at a t-r-e-m-e-n-d-o-u-s rate post-tx, doubling every 2 days. And yet, sooooo many get txd for hepatitis, when, for so many of those recipients, their virus will return, and soon. Sooooo much of the critical cadaveric liver shortage would be eased if medical science was able to CURE hepatitis, since this takes such a big piece of the available organ pie (i.e., compared to tx reasons like PSC and PBC). For the transplantee who is able to surgically thwart the grim reaper’s first attempt, (s)he must never grow too complacently comfy, because cancer will a-l-w-a-y-s try to be the trump card (because of immunosuppression). That being said, Jim may not have been laying comatose in an ICU bed (as we were told he likely would be before an organ would ever become available to him, in his blood type group, on his then-waitlist, in our San Diego county neck of the woods), but he nevertheless was indeed essentially dying before our very eyes, before our son gave his gift on 12/7/01, and now Jim’s ALIVE and, relatively speaking, doing superbly well, knock on wood, all things considered. Jim would love to embrace comfy denial, but me? Complacent? Nahhh…. I just made sure Jim dodged yet another skin cancer bullet, just 2 weeks ago. But life remains good, with grandson number 2 expected in just 3 months’ time. Maureen (wife of Jim, blah blah, gotta dash out the door, sorry!!! What, you were expecting the super long tag line? LOL!!!) From: [mailto: ] On Behalf Of jsgrieme Sent: Tuesday, April 04, 2006 10:41 AM; To: Subject: Re: Transplant Drugs Todd is 2 years post transplant is currently on 2mg Prograf twice a day. Joanne (mom of Todd) GitaneB@ wrote: For those who have had transplants, I am just curious about what anti-rejection drugs you are taking after what period of time after transplant. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2006 Report Share Posted April 5, 2006 I'm coming up on 5 years post-tx and I'm taking 2 mg Prograf, 5 mg prednisone, and 75 mg 6-MP (Purinethol). The 6-MP is actually more to deal with Crohn's than the liver, however. Rich in KC Crohn's, cryptogenic cirrhosis, 2 liver txs 5/2001 Quote Link to comment Share on other sites More sharing options...
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