Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 sarah did everyone in your family have nf2 ?? -jessica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Dear , I don't find that an odd question. Everyone here seems to have Nf2 "differently". So it effects us differently. So our limitations and abilities would be differently. My mom worked until she went completely deaf. My sister, , is deaf in one ear and works as a registered nurse. My sister, Carolyn, works as a cosmotologist. She works part time. She tires easily. I don't know how much of that is from NF2 or chasing 3 kids. I used to do book keeping but it seems like between operations and the medicine I take I could NOT work and care for my kids and maintain my home. I tire SO easily. Plus, working numbers in my head don't seem to flow as easy. I now do my checkbook on my computer. If all goes well maybe I will enter the work force again in a couple of years when both of my girls will be in school full time. Blessings, First Basic Question Hello, all. I've been lurking since being diagnosedwith NF2 last month and I have to say, a lot of theinfo on the group is very helpful. It's all stillpretty overwhelming and I'm sure I'll have somespecific medical questions soon.However, what I want to know right now is whateveryone does for work. I'm getting overly concernedwith medical details in my own early research. I wantto know what you all do in your ordinary lives to gainsome perspective on what life might be like from hereon out.Hope this doesn't sound too weird but, like I say,what I need right now is some perspective. If youdon't want to post to the group, feel free to mail medirectly (thomaspratt01@...)Thanks, Pratt===== Pratt thomaspratt01@... There comes a time when every man feels the urge to spit on his hands, hoist the black flag, and start slitting throats. --H.L.Mencken__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 I am a records clerk for the State of Ohio. Jeffro! First Basic Question However, what I want to know right now is whateveryone does for work. I'm getting overly concernedwith medical details in my own early research. I wantto know what you all do in your ordinary lives to gainsome perspective on what life might be like from hereon out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hello ....I worked out of the home up until 2 years ago. I now am at home full time. I do E-bay, cane chairs, and do one-of-a-kind fashion makeovers on dolls. I tire easily and have chronic pain so could not continue having a shop in the antique business because of the lifting and long hours. But I like what I do at home. Carol losthorizon1@... First Basic Question > > However, what I want to know right now is what> everyone does for work. I'm getting overly concerned> with medical details in my own early research. I want> to know what you all do in your ordinary lives to gain> some perspective on what life might be like from here> on out.> Thanks,> Pratt> > =====__________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2002 Report Share Posted June 4, 2002 Hi , I'm a seismic analyst. I spend my week locating earthquakes that occur all around the world. So far NF2 has not affected my career, since the only problem I have is hearing loss. Gillian First Basic Question > Hello, all. I've been lurking since being diagnosed > with NF2 last month and I have to say, a lot of the > info on the group is very helpful. It's all still > pretty overwhelming and I'm sure I'll have some > specific medical questions soon. > > However, what I want to know right now is what > everyone does for work. I'm getting overly concerned > with medical details in my own early research. I want > to know what you all do in your ordinary lives to gain > some perspective on what life might be like from here > on out. > > Hope this doesn't sound too weird but, like I say, > what I need right now is some perspective. If you > don't want to post to the group, feel free to mail me > directly (thomaspratt01@...) > > Thanks, > Pratt > > ===== > Pratt thomaspratt01@... > > There comes a time when every man feels the > urge to spit on his hands, hoist the black flag, > and start slitting throats. > --H.L.Mencken > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Hi You dont need a medical Q to post here:) Being one of the lucky few is enough:) Feel free to pop off about anything you want because most things do affect NF2ers. Sometimes the stress of it seems so very hard to take. BUT, we are all good listeners here, and we know what your going thru. As for my work, Im a housewife and Mother. Keeps me hopping to the extreme:) The employment options for crewbies run the gauntlet tho, each person being affected to a different degree. Some are Drs even:) So as long as you can keep it up doing what your doing, do it:) Dont be shy about posting either, ~~Lowi First Basic Question > Hello, all. I've been lurking since being diagnosed > with NF2 last month and I have to say, a lot of the > info on the group is very helpful. It's all still > pretty overwhelming and I'm sure I'll have some > specific medical questions soon. > > However, what I want to know right now is what > everyone does for work. I'm getting overly concerned > with medical details in my own early research. I want > to know what you all do in your ordinary lives to gain > some perspective on what life might be like from here > on out. > > Hope this doesn't sound too weird but, like I say, > what I need right now is some perspective. If you > don't want to post to the group, feel free to mail me > directly (thomaspratt01@...) > > Thanks, > Pratt > > ===== > Pratt thomaspratt01@... > > There comes a time when every man feels the > urge to spit on his hands, hoist the black flag, > and start slitting throats. > --H.L.Mencken > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Hi , I stopped work just one year ago. I was a transcription typist for Hennepin County Children and Family Services in Minneapolis, Minnesota. I really enjoyed my job, but I was just getting too tired. My energy level sure is not what it used to be! I still go to the health club every single morning though. Swimming used to be my favorite exercise, but due to some seizure problems, the doctors say no more swimming. So now I jog on the treadmill, use the eliptical trainer, and ride the exercise bike. I love all that exercise and hope to continue doing it for as long as I can! Good luck with everything! Keep a positive attitude! It sure has helped me a lot! Diane -- Original Message ----- To: <nf2_crew > Sent: Tuesday, June 04, 2002 3:06 PM Subject: First Basic Question Hello, all. I've been lurking since being diagnosed with NF2 last month and I have to say, a lot of the info on the group is very helpful. It's all still pretty overwhelming and I'm sure I'll have some specific medical questions soon. However, what I want to know right now is what everyone does for work. I'm getting overly concerned with medical details in my own early research. I want to know what you all do in your ordinary lives to gain some perspective on what life might be like from here on out. Hope this doesn't sound too weird but, like I say, what I need right now is some perspective. If you don't want to post to the group, feel free to mail me directly (thomaspratt01@...) Thanks, Pratt ===== Pratt thomaspratt01@... There comes a time when every man feels the urge to spit on his hands, hoist the black flag, and start slitting throats. --H.L.Mencken __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 Hi Up until December I worked as a webmaster for a couple of dot-coms. They blew up and I was laid off (non NF2 related), I still do some freelance work but am currently seeking another position Pete First Basic Question Hello, all. I've been lurking since being diagnosed with NF2 last month and I have to say, a lot of the info on the group is very helpful. It's all still pretty overwhelming and I'm sure I'll have some specific medical questions soon. However, what I want to know right now is what everyone does for work. I'm getting overly concerned with medical details in my own early research. I want to know what you all do in your ordinary lives to gain some perspective on what life might be like from here on out. Hope this doesn't sound too weird but, like I say, what I need right now is some perspective. If you don't want to post to the group, feel free to mail me directly (thomaspratt01@...) Thanks, Pratt ===== Pratt thomaspratt01@... There comes a time when every man feels the urge to spit on his hands, hoist the black flag, and start slitting throats. --H.L.Mencken __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 No, not everyone. My mom has it. She had 5 daughters. 3 of us have it. My sister Becky has two kids and both of them have it. My sister Carolyn has three kids and one has thus far. The other two are too young to tell without genetic testing. I have two children. My oldest one had an MRI last year and it was clear. We keep praying it stays that way. My youngest one has yet to be tested. Blessings, Re: First Basic Question sarah did everyone in your family have nf2 ?? -jessica Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2002 Report Share Posted June 5, 2002 I own an air conditioning company and am active in the day to day of the business. I was just diagnosed in Oct 2001. I am working now to get the company so it doesn't take as much of my attention. All the time doing things in preparation of selling out when the situition dictates. Regards > >Reply-To: NF2_Crew >To: nf2_crew >Subject: First Basic Question >Date: Tue, 4 Jun 2002 13:06:32 -0700 (PDT) > >Hello, all. I've been lurking since being diagnosed >with NF2 last month and I have to say, a lot of the >info on the group is very helpful. It's all still >pretty overwhelming and I'm sure I'll have some >specific medical questions soon. > >However, what I want to know right now is what >everyone does for work. I'm getting overly concerned >with medical details in my own early research. I want >to know what you all do in your ordinary lives to gain >some perspective on what life might be like from here >on out. > >Hope this doesn't sound too weird but, like I say, >what I need right now is some perspective. If you >don't want to post to the group, feel free to mail me >directly (thomaspratt01@...) > >Thanks, > Pratt > >===== > Pratt thomaspratt01@... > > There comes a time when every man feels the > urge to spit on his hands, hoist the black flag, > and start slitting throats. > --H.L.Mencken > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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