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Hello,

I am new to the list. My name is debbi and I have been living with my 3-1/2 year

old grandson for 3 years. (Long complicated story). " Buster " was born with a

subdural hematoma. We spent the first year of his life trying to ensure that it

had cleared up and wasn't going to cause long-term complications, it appeared it

wasn't. I worked with him to make sure that his arms and legs wouldn't be stiff

and watched for seizures (thank goodness there were none).

By one year he appeared to be a normal, yet extraordinarily active child. He

would coo and babble, but words did not develop by the age of 2-1/2. We went to

the doctor and she thought he had autism but sent us for a round of tests to

make sure he could hear, didn't have complications from his subdural hematoma,

and wasn't just ADD.

Well, the work we had set up was interrupted by a brief interlude where Buster's

mother decided she wanted her son and just took him, mind you, without any

knowledge of any of his problems that we were working on. Nine months later,

he's back here with us, but we've lost all this time in getting him treatment.

At first, when I was told autism, I was having no part of *that* diagnosis. No,

it wasn't that, it couldn't be. But since he's been back in our house, I see the

classic autism signs. He fixates on repetitive behaviours and the other day when

I worked with him on talking he was trying so absolutely hard to do it, but with

his eyes rolled up to the sky and a determined look, he just couldn't get his

mouth around the words. Finally he began spinning.

We have an appointment with a pdoc in 2 weeks. Finally things will at least get

started.

As to the post I read about having the schools deal with special services for

these children, I was disappointed in that. I don't like the school system and

what in the world makes them qualified to deal with a medical problem? I have an

appointment with them in 4 weeks... they may not like me... so what.

I wonder about putting kids in a school situation. I don't like it at all. Does

anyone here homeschool? Does it work? Do you get any support from the state?

Thanks for listening

debbi

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