Anyone see Oprah? - seizures are funny???

December 16, 2003

Hi all,

I know this is not about the diet , but it does concern ALL of us. I

got a call today from a friend who was outraged at the Oprah show.

She has a son who had Infantile Spasms as an infant and is now a

teenager who still suffers from intractible seizures. She said that

the fab five (queer eye for the straight guy) were on her show trying

to help some men out with their problems. Some needed makeovers,

cooking lessons, etc... One of the wives said her man needs help

with dancing because when he dances he foams at the mouth and looks

like he's convulsing. Then she went on to say that she nicknamed

him " seizure boy. " OH MY GOD!!!!! I was in shock to hear this. If

anyone is interested in making any comments to Oprah go to her link

I myself am in shock about this. I had emailed oprah about a year ago

regarding having a show on Epilepsy to raise awareness and mentioned

my son had epilepsy surgery. My friend who gave me the news once

sent a tape of her son trying to get a show that would raise

awareness on epilepsy. Both of us tried and we heard nothing, but

apparently it's funny to joke about it. The audience all laughed

about the whole thing. I know a lot has to do with ignorance , but I

think it's really sad :-(

Sorry, but I needed to vent. I'm spreading the word hoping many will

comment on the show.

Thanks,

Emma

(mom to 6-yr-old - Infantile Spasms, surgery at 15 months -

still not seizure free- on diet 3 months)

Recommended Posts