Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 In a message dated 12/16/2003 6:56:49 AM Pacific Standard Time, monica-jb@... writes: the school nurse is on my side. Great! Just be calm and you will do fine. Take so time for yourself today OK? A warm bath when you are thu. Take care, Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 In a message dated 12/16/2003 9:56:31 AM Pacific Standard Time, monica-jb@... writes: Life isn't suppose to be like this. I have these 3 beautiful kids, a wonderful husband, don't have to work, no money problems, and things are terrible. ~~ We love you and I for one am praying all will settle down. Take a deep breath and try to take some time for your self. It is NOT a bad thing and you really need to do this so that you can help your family cope. Blessings, Debbi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 Good luck to you both! That's a tough thing to go through! Love Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 , Here in Michigan, the Dr writes a script for the 504 and for the reacurring illness (absences) The 504 plan is done at the school. What is needed like no books to carry, early and late disimcle from each class, doing every other problem to limit work, what ever you all decide will help her. You will have a meeting with people at school to decide what will be written on that 504. It can be changed at any time to help her as she gets better or worse. Any questions, just call me. And with the anxiety..... that sweet child, my gosh she is having a hard time of it. I haven't dealt with that, but I hope someone here can help you. You might want to let the Dr that handles that part, what is going on. The Dr might want to adjust those meds a bit to help her though this. You know you can call any time. C school stuff ok, I'm seeing 's dr today to get him to write something to get a 504, and home help for . All your advise should help me today, and the school nurse is on my side. Hopefully,I won't forget anything. Ijust got her progress reports yesterday, and she has F's in ALL her classes, mostly due to absences and missed work. She has never been a great student, so it doesn't take much for her grades to go way down. I had a long talk with her last night, and found out that her anxiety is making everything worse. She's afraid she's got some life threatning diseas, and is gonna die. She's convinced her hair is falling out. Had to explain many times that it'sthe treatment for cancer that causes hair to fall out, not the cancer itself. And, that she's had many blood tests, and if it was something real sinister, they would already know (not that EDS isn't sinister, but you know what I mean). has obsessive compulsive disorder, and generalized anxiety disorder. She see's a psychiatrist once a month for it, and is on 60 mg of celexa every day. She has rituals, and obsessive thoughts of something very bad happening to her or the family, which are worse if she can't do the rituals. She has it pretty well under control with the medication, but it still lingers, and the anxiety is still there somewhat. It gets worse with stress. I know anxiey makes things worse. It took a lot of convincingg that she's not gonna die, or loose her leg. I still don't think she's completely convinced. The poor little thing. It really bothered her when the pain dr said " So, what's a 15 year old girl doing in my office? " And the tech at the vascular surgeon's office, who said he has never seen anyone so young before there. That doesn't help much. I think I'll also ask the dr who we can see at Children's. So, wish me luck, that the dr will get his head out, and help us here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 Hi, I just picked up the paperwork for the home/hospital tutor. And, now I am SO MAD they didn't suggest this for . I didn't know anyting about it then. How dare they just let her spiral down like they did! I'm gonna ask the dr today to do this for too. She is home again today. I think she's getting depressed. All these health issues. She isn't feeling well, can't sleep right, so tired. is seeing her psychiatris next week. We will definetly see what he can do. even said last night she's worried she's getting depressed, and she knows that depressed people sometime want to die. It's heartbreaking. She's so scared. Predictably, my pain is horrible this morning. I was ok - not too bad yesterday. Maybe I didn't sleep well. I almost thnk I tense up my muscles sometimes when I sleep. Life isn't suppose to be like this. I have these 3 beautiful kids, a wonderful husband, don't have to work, no money problems, and things are terrible. Hugs, Mon school stuff ok, I'm seeing 's dr today to get him to write something to get a 504, and home help for . All your advise should help me today, and the school nurse is on my side. Hopefully,I won't forget anything. Ijust got her progress reports yesterday, and she has F's in ALL her classes, mostly due to absences and missed work. She has never been a great student, so it doesn't take much for her grades to go way down. I had a long talk with her last night, and found out that her anxiety is making everything worse. She's afraid she's got some life threatning diseas, and is gonna die. She's convinced her hair is falling out. Had to explain many times that it'sthe treatment for cancer that causes hair to fall out, not the cancer itself. And, that she's had many blood tests, and if it was something real sinister, they would already know (not that EDS isn't sinister, but you know what I mean). has obsessive compulsive disorder, and generalized anxiety disorder. She see's a psychiatrist once a month for it, and is on 60 mg of celexa every day. She has rituals, and obsessive thoughts of something very bad happening to her or the family, which are worse if she can't do the rituals. She has it pretty well under control with the medication, but it still lingers, and the anxiety is still there somewhat. It gets worse with stress. I know anxiey makes things worse. It took a lot of convincingg that she's not gonna die, or loose her leg. I still don't think she's completely convinced. The poor little thing. It really bothered her when the pain dr said " So, what's a 15 year old girl doing in my office? " And the tech at the vascular surgeon's office, who said he has never seen anyone so young before there. That doesn't help much. I think I'll also ask the dr who we can see at Children's. So, wish me luck, that the dr will get his head out, and help us here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 > has obsessive compulsive disorder, and generalized anxiety disorder. > As info, there are a series of acupressure points specifically for anxiety attacks. And there must be something to them because they are starting to be used by first responders (Police/Fire/EMT's) in crisis intervention situations. I can show both you and how to do them. Most of them she could do on herself since they are on the front of the body. Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2003 Report Share Posted December 16, 2003 , You may also want to talk to her psycologist/psychiatrist (not sure of the difference)about the possibility of seeing him/her more often during this process of getting her help so that she can et help and get all of these feelings OUT. I have a fear of cancer myself, while it is NOT major it is there (I lost my Mother to cancer last year, her brother to cancer when I was a teen, and numerous other distant family members to cancers). Have you thought of sitting down together and researching EDS on the internet, this may help her come to teerms with the signs, symptoms etc of EDS (You need a full list of symptoms if you can find one) so that when or if she gets a new symptom she can check her list first to see if it is likely EDS related (you may want to ask all here what THERE personal list of symptoms are as we seem to know more about EDS than the researchers and doctors). I was just thinking that maybe this would help quell her fears that any new symptoms and existing symptoms are something more sinister than her EDS (Like you said Not that EDS isn't sinister but it isn't terminal etc in most forms)you may want to leave a lot of the severe vascular symptoms OFF the list. Hope this helps Sharon > Hi, > I just picked up the paperwork for the home/hospital tutor. And, now I am SO MAD they didn't suggest this for . I didn't know anyting about it then. How dare they just let her spiral down like they did! > I'm gonna ask the dr today to do this for too. She is home again today. I think she's getting depressed. All these health issues. She isn't feeling well, can't sleep right, so tired. > > is seeing her psychiatris next week. We will definetly see what he can do. even said last night she's worried she's getting depressed, and she knows that depressed people sometime want to die. It's heartbreaking. She's so scared. > > Predictably, my pain is horrible this morning. I was ok - not too bad yesterday. Maybe I didn't sleep well. I almost thnk I tense up my muscles sometimes when I sleep. > > Life isn't suppose to be like this. I have these 3 beautiful kids, a wonderful husband, don't have to work, no money problems, and things are terrible. > Hugs, > Mon > school stuff > > > ok, I'm seeing 's dr today to get him to write something to > get a 504, and home help for . > All your advise should help me today, and the school nurse is on my > side. > Hopefully,I won't forget anything. Ijust got her progress reports > yesterday, and she has F's in ALL her classes, mostly due to > absences and missed work. She has never been a great student, so it > doesn't take much for her grades to go way down. > > I had a long talk with her last night, and found out that her > anxiety is making everything worse. She's afraid she's got some > life threatning diseas, and is gonna die. She's convinced her hair > is falling out. Had to explain many times that it'sthe treatment > for cancer that causes hair to fall out, not the cancer itself. > And, that she's had many blood tests, and if it was something real > sinister, they would already know (not that EDS isn't sinister, but > you know what I mean). > has obsessive compulsive disorder, and generalized anxiety > disorder. She see's a psychiatrist once a month for it, and is on > 60 mg of celexa every day. She has rituals, and obsessive thoughts > of something very bad happening to her or the family, which are > worse if she can't do the rituals. She has it pretty well under > control with the medication, but it still lingers, and the anxiety > is still there somewhat. It gets worse with stress. > > I know anxiey makes things worse. It took a lot of convincingg that > she's not gonna die, or loose her leg. I still don't think she's > completely convinced. > > The poor little thing. It really bothered her when the pain dr > said " So, what's a 15 year old girl doing in my office? " And the > tech at the vascular surgeon's office, who said he has never seen > anyone so young before there. That doesn't help much. > > I think I'll also ask the dr who we can see at Children's. > > So, wish me luck, that the dr will get his head out, and help us > here! > > > > > Quote Link to comment Share on other sites More sharing options...
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