Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 After complaining for years that I was always tired: my reg doc sent me to psychologist who sent me to a so-called menopause specialist who sent me to a rheumy to rule out Chronic Fatigue Syndrome. I KNEW it was a waste of time and money but was so desperate that I reluctantly gave in. I practically BEGGED the menopause specialist to test for SOMETHING. My TSH was fine: 3.74. And since my sister was taking Synthroid and it did not give her any energy...I figured it was perimenopause. OOPS: my lab indicating high calcium level was not reported to me. The doc left a message on my answering machine saying I slipped thru the cracks. I had called HER after 3 weeks of not being told what my lab results were. I wouldn't have seen the rheumy if I had had the results of the high calcium. The PET scan revealed 2 adenomas. I had done enough research to know that surgery was the only option. So, I scheduled an appt with the surgeon before I even got the results of the PET scan. I thought I found the answer to my fatigue. Then a friend I used to teach with told me she had the same surgery. She is a dear friend; but moves slower than any human being that I know. She also has had a couple of nervous breakdowns in the past; a total hysterectomy when she was in her early 30s. Anyhow, I feared the worse: the parathyroid surgery may not help my fatigue. And it did NOT.....My hopes were smashed again. I had an excellent surgeon. But somehow no one mentioned that they often remove part of your thymus gland.....I could not understand why I had pain between my chest; about 6 inches down from my incision. In hindsight, I am sure that I was hypo then (4 yrs ago) and just last month my antiodies were finally tested and I was diagnosed with Hashimoto's. Can you believe it: I did not even have to ask this Endo to test my free levels or antiodies! Seven drs and two endos later. Wish I could write them all a nasty letter: it is bad enough to feel rotten, lose precious time---but wasting my hard-working husband's money makes me even sicker than I am. I hope others will relate their parathyroid experiences: There must be SOMEONE who improved after the surgery! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 I know absolutely nothing about the parthyroid glands except that you can get very sick with them. My daughter in laws mom had a problem with hers and she honestly could do nothing! It was quite scary for all of us. Your TSH of 3.something being normal is a little strange though. To me, that is enuff to warrant feeling really crappy. But a FreeT3 and FreeT4 will tell that story. Are you hypo? SandyE~Houston My parathyroid surgery After complaining for years that I was always tired: my reg doc sent me to psychologist who sent me to a so-called menopause specialist who sent me to a rheumy to rule out Chronic Fatigue Syndrome. I KNEW it was a waste of time and money but was so desperate that I reluctantly gave in. I practically BEGGED the menopause specialist to test for SOMETHING. My TSH was fine: 3.74. And since my sister was taking Synthroid and it did not give her any energy...I figured it was perimenopause. OOPS: my lab indicating high calcium level was not reported to me. The doc left a message on my answering machine saying I slipped thru the cracks. I had called HER after 3 weeks of not being told what my lab results were. I wouldn't have seen the rheumy if I had had the results of the high calcium. The PET scan revealed 2 adenomas. I had done enough research to know that surgery was the only option. So, I scheduled an appt with the surgeon before I even got the results of the PET scan. I thought I found the answer to my fatigue. Then a friend I used to teach with told me she had the same surgery. She is a dear friend; but moves slower than any human being that I know. She also has had a couple of nervous breakdowns in the past; a total hysterectomy when she was in her early 30s. Anyhow, I feared the worse: the parathyroid surgery may not help my fatigue. And it did NOT.....My hopes were smashed again. I had an excellent surgeon. But somehow no one mentioned that they often remove part of your thymus gland.....I could not understand why I had pain between my chest; about 6 inches down from my incision. In hindsight, I am sure that I was hypo then (4 yrs ago) and just last month my antiodies were finally tested and I was diagnosed with Hashimoto's. Can you believe it: I did not even have to ask this Endo to test my free levels or antiodies! Seven drs and two endos later. Wish I could write them all a nasty letter: it is bad enough to feel rotten, lose precious time---but wasting my hard-working husband's money makes me even sicker than I am. I hope others will relate their parathyroid experiences: There must be SOMEONE who improved after the surgery! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 In a message dated 10/16/2004 9:27:11 PM Eastern Standard Time, thelma-lou@... writes: > My TSH was fine: 3.74. only this wasn't fine...it was hypo... cindi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2004 Report Share Posted October 17, 2004 Hi , A TSH of 3.74 was not fine. Even though it was within the lab's range that was an old range. Have you gotten a complete thyroid test since than? ie Free T3 and Free T4 and antibodies? The reason why your sister didn't have any enegry was because she was on the wrong medicine for her and didn't do anything about it. The goal of thyroid medicine is to make you feel 100% better. If you don't feel 100% better you are the wrong medicine. Louise > My TSH was fine: 3.74. And since my sister was taking Synthroid and > it did not give her any energy...I figured it was perimenopause. Quote Link to comment Share on other sites More sharing options...
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