hand flapping

[Guest guest]

Hello all,

For a short while now (2 weeks? maybe more? we've been away), our

son's habit of flapping his right hand has re-emerged. He will flap

with any excuse. And it is to the point of really standing out.

I've even noted some finger gazing, which we haven't seen in a l-o-o-

o-n-n-g-g time. Finger play was one of his mainstays for many

years. It disappeared about a year ago, so I am particularly

disheartened to see it re-emerge. Also, loads of self-chat.

I increased his Vit. A this week, in hopes of decreasing some of the

weird eye movements of late (yes, it helped in this regard, also in

mood(?!) which was very surprising but nice). Also, note that finger

gazing is distinct from weird eye movements.

He is on the recommended doses of A, B-complex, C, E, Omega3-6,

CoQ10. Plus CitraminII, and Houston Enzymes. He has done well on

all for a long time. The only recent changes have been: Omegas, from

NOW 3-6-9 blend to ProOmega 3-6; and completed 4th round of ALA about

3 weeks ago. Both changes occurred at the same time.

Any ideas?

Many thanks,

[Guest guest]

Hi ,

I think I know what Dana would say...it sounds like a yeast

issue. I didn't see that you were using an antifungal or

probiotics. Maybe you need to use the two?? Just a thought and

hope others pitch in with their thoughts also. Take care and hope

this helps a bit, Becky in Chesapeake, VA

--- In , " momknewbest " <rmryan@s...>

wrote:

> Hello all,

> For a short while now (2 weeks? maybe more? we've been away), our

> son's habit of flapping his right hand has re-emerged. He will

flap

> with any excuse. And it is to the point of really standing out.

> I've even noted some finger gazing, which we haven't seen in a l-o-

o-

> o-n-n-g-g time. Finger play was one of his mainstays for many

> years. It disappeared about a year ago, so I am particularly

> disheartened to see it re-emerge. Also, loads of self-chat.

> Any ideas?

> Many thanks,

[Guest guest]

,

I had a question for you about the finger gazing and maybe the flapping,

but it was precipitated today because I had a visual aura-styled migraine

which I might have brought upon myself by taking too mach pantothenic acid

for my own good!

This dropout of vision began this morning while I was reading, and at

first, it was a bit subtle, but some letters just lost their impact, but

they were still there, but just harder to read, so I think the areas

affected were quite smaller than the size of a letter. Gradually, I had

much bigger pieces of my vision drop out, more like the size of a pencil,

with some movement. I've heard some people describe flashing lights, but

mine rarely have such glitz.

I suppose it was from discussions of biotin that I was thinking about how

some people with autism get migraines and my aura headaches create a lot of

visual disturbance, but hardly any pain worth noticing. (On the other hand,

my non-aura headaches which I do get regularly are so painful, that

head-banging might seem to a child like a reasonable way to lessen the

pain....)

Anway, , I was wondering if there was any chance the finger play or

hand stimming might be a way to look at the migraine aura in a special

way. For instance, if you moved your hand across the area where some

vision had dropped out it might be interesting to see your finger disappear

and then reappear. These episodes for me last fifteen or twenty minutes at

most, and then may not come back for a long, long time (years, sometimes).

Another thing that made me think of this was that I know a lady with

schizophrenia who says the medication her doctors put her on make " spots "

in her field of vision. I have never quite understood her explanation of

what that really looks like to her. It is so annoying to her that she

usually does not stay on her medication once she is out of the

hospital. She has described the same phenomenon with ten years at least

intervening, so I think it really must be a real change, and the same

change. By the way, the medication she was put on recently (valproic acid)

really does depress biotin!

Anyway, think about this while you watch your son and see if he might be

fascinated with the interplay of something like a visual aura (which he

cannot control) mixed with the movement which he can control....

And parents, among yourselves, why don't you compare any medications your

children are on with whether or not they begin to have these strange

behaviors. I would include ALA in that list, as it is known to depress

biotin just like some antipsychotics. Also, apparently certain fatty acids

can have effects on the biotin chemistry...MCT's particularly.

(thinking of these sorts of things since long ago when I heard Dr.

Wakefield say that the kids who were cleaned out at the Royal Free often

stopped toe-walking...so that maybe the toe walking was a posture that kept

the pain down, and it was deemed a " behavior " ...)

At 01:44 AM 9/8/2003 +0000, you wrote:

>Hello all,

>For a short while now (2 weeks? maybe more? we've been away), our

>son's habit of flapping his right hand has re-emerged. He will flap

>with any excuse. And it is to the point of really standing out.

>I've even noted some finger gazing, which we haven't seen in a l-o-o-

>o-n-n-g-g time. Finger play was one of his mainstays for many

>years. It disappeared about a year ago, so I am particularly

>disheartened to see it re-emerge. Also, loads of self-chat.

>I increased his Vit. A this week, in hopes of decreasing some of the

>weird eye movements of late (yes, it helped in this regard, also in

>mood(?!) which was very surprising but nice). Also, note that finger

>gazing is distinct from weird eye movements.

>He is on the recommended doses of A, B-complex, C, E, Omega3-6,

>CoQ10. Plus CitraminII, and Houston Enzymes. He has done well on

>all for a long time. The only recent changes have been: Omegas, from

>NOW 3-6-9 blend to ProOmega 3-6; and completed 4th round of ALA about

>3 weeks ago. Both changes occurred at the same time.

>Any ideas?

>Many thanks,

>

>

>

>=======================================================

>

[Guest guest]

Becky,

You know what occurs to me is that if biotin deficiency symptoms happen at

the same time as candida (because that was the weakness that allowed yeast

to grow), then it might be awfully difficult to distinguish symptoms of the

two conditons. In other words, SOME of the symptoms we call " yeast

symptoms " may have nothing to do with the contribution of the yeast

organism, per se, but may be the signs of a chemistry trying to make do

without an adequate amount of biotin. More and more, I'm getting the feel

that trying biotin supplements to treat yeast problems sounds like it might

possbly work better with less risk than an antifungal/probiotic regime, but

we need more experience with this at high enough doses of biotin to see a

significant correction of deficiency.

At 02:54 AM 9/8/2003 +0000, you wrote:

>Hi ,

> I think I know what Dana would say...it sounds like a yeast

>issue. I didn't see that you were using an antifungal or

>probiotics. Maybe you need to use the two?? Just a thought and

>hope others pitch in with their thoughts also. Take care and hope

>this helps a bit, Becky in Chesapeake, VA

[Guest guest]

My son has no history of hand flapping, but when I tried the Klaire

Micel A, he started to do it. I went back to Twinlab allergy A and

the hand flapping was gone.

I did the mega dose too and no hand flapping with the twinlab.

Sorry, that is probably not helpful, but I am still wondering how

that form of vit A could cause that...

> My six year old son who is mildly affected starts " hooting " and

flapping

> his hands when he gets excited. What have you parents out there had

> success with in the line of supplements to stop it? We just did

mega

> doses of vitamin a (400,000 iu) 2 days in a row with little or no

> response.

>

> Sincerely,

>

>

> in Arkansas

>

>

>

[Guest guest]

> My six year old son who is mildly affected starts " hooting " and flapping

> his hands when he gets excited.

This was viral for my son.

>>We just did mega

> doses of vitamin a (400,000 iu) 2 days in a row with little or no

> response.

My son needed this protocol twice. You can read about that here, if

you want

http://www.danasview.net/vitamina.htm

This was not what eliminated the hand flapping tho. He needed

Lauricidin and olive leaf extract for that.

Dana

[Guest guest]

Is Lauricidin prescription? What doses of both?

Barb

[ ] Re: hand flapping

>

>

> > My six year old son who is mildly affected starts " hooting " and flapping

> > his hands when he gets excited.

>

>

> This was viral for my son.

>

>

> >>We just did mega

> > doses of vitamin a (400,000 iu) 2 days in a row with little or no

> > response.

>

>

> My son needed this protocol twice. You can read about that here, if

> you want

>

> http://www.danasview.net/vitamina.htm

>

> This was not what eliminated the hand flapping tho. He needed

> Lauricidin and olive leaf extract for that.

>

> Dana

>

>

>

>

>

> =======================================================

>

[Guest guest]

Barb,

It is not a RX. You can buy it online called Lauricidin or

Monolaurin. My 110 lb child has been on it for two years at 2 scoups

a day. I can still see if we miss a day. It comes in pellets and

originally I mixed them in applesauce, strained peaches, etc. Now I

just fill the scoup and give with a glass of water to wash it down.

Start slow though and build up to the two scoups a day.

> > > My six year old son who is mildly affected starts " hooting " and

flapping

> > > his hands when he gets excited.

> >

> >

> > This was viral for my son.

> >

> >

> > >>We just did mega

> > > doses of vitamin a (400,000 iu) 2 days in a row with little or

no

> > > response.

> >

> >

> > My son needed this protocol twice. You can read about that here,

if

> > you want

> >

> > http://www.danasview.net/vitamina.htm

> >

> > This was not what eliminated the hand flapping tho. He needed

> > Lauricidin and olive leaf extract for that.

> >

> > Dana

> >

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

I would like to add do not chew the pellets. Make sure they get washed down

entirely. I tried Lauricidin and one pellet kind of stuck on a tooth, and

without me knowing it I bit into it. It tasted like I was eating a bicycle tire

inner tube all day.

[ ] Re: hand flapping

Barb,

It is not a RX. You can buy it online called Lauricidin or

Monolaurin. My 110 lb child has been on it for two years at 2 scoups

a day. I can still see if we miss a day. It comes in pellets and

originally I mixed them in applesauce, strained peaches, etc. Now I

just fill the scoup and give with a glass of water to wash it down.

Start slow though and build up to the two scoups a day.

> > > My six year old son who is mildly affected starts " hooting " and

flapping

> > > his hands when he gets excited.

> >

> >

> > This was viral for my son.

> >

> >

> > >>We just did mega

> > > doses of vitamin a (400,000 iu) 2 days in a row with little or

no

> > > response.

> >

> >

> > My son needed this protocol twice. You can read about that here,

if

> > you want

> >

> > http://www.danasview.net/vitamina.htm

> >

> > This was not what eliminated the hand flapping tho. He needed

> > Lauricidin and olive leaf extract for that.

> >

> > Dana

> >

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

> Is Lauricidin prescription? What doses of both?

> Barb

Lauricidin is available here

http://www.lauricidin.com/

I started with 2 pellets Lauricidin, increased over time to 2-3 scoops

per day.

I started OLE at 250 mg, increased to 3000 mg per day for a while.

Dana