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Re: SCdiet/we switched!

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,

I'm so glad things are settling down for . Is there a ny info on the

net that can be used till we get a book?

Good luck with the VNS.

Saro.....Rohan's mum

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  • 11 months later...
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,

Good to hear is doing better...... may it continue. I think your idea of

being pre-emptive, or pro-active, is a good one. I'm going to be meeting with

our neuro soon and discussing our options, too. It's good to know you can do

something that may be there to back you up in the future. I also know that " too

soon to tell " feeling...... hanging in there myself right now. The SCDiet is

quite a nice change, isn't it..... in terms of not weighing, and the snack

options? I'm enjoying it...... although after being strictly Keto for 2 years

and 3 months, I'm still nervous about stepping outside the box.

Patti

SCdiet/we switched!

Well, we switched over to the specific carbohydrate diet. I know I said we

were going to try to wean the keto diet first, but we ran into some

complications. With the increase in Felbatol, is not eating much. We

experienced this when we started Felbatol and it went away, so I'm not

worried. The problem was, it was very hard to gradually lower the ratio with

not eating. We were seeing higher ketones instead of lower ones because

of the lack of food. So a couple of days ago, we just switched straight over

to the SC diet. So far so good. is doing much better. Honestly, I think

that the increase in Felbatol is starting to work rather than any dietary

intervention. Still, the SC diet hasn't made things worse. still has

small ketones in the morning and moderate-ish ones in the afternoon. I still

try to add a little fat here and there, but it's nice not to have to weigh

anything or worry about whether was drinking all his cream (a constant

worry). I do have the book and the recipes are pretty good. And it's great

to see LOTS of healthy food on a plate. actually ate a 1/2 banana with

peanut butter and a cup or orange juice for a snack!

Anyway, I think we're going to use the SC diet as a sort of " transition "

diet. Do the SC diet strictly for 3-6 months and then add a few grains back

in slowly.

Hopefully is on an upward trend (too soon to tell). We're still

probably going to do the VNS even if does much better. We're thinking

instead of our usual plan (waiting until there's a crisis and then panicking

over what to do), we might be pre-emptive this time and look for improvement

before there's a problem. We'll see.

ashley

alex's mom

" The Ketogenic Diet....a realistic treatment option, NOT just a last

resort! "

List is for parent to parent support only.

It is important to get medical advice from a professional

keto team!

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