Re: A Service Guide for Invisible/Hidden Disabilities

[Guest guest]

I would LOVE to have a copy of the information, and thank you so much for

offering it and making it happen!

Sincerely,

Lana Christensen

[Guest guest]

Well, Hi there Daddio, (). We have talked a few times before. I haven't

seen you here before. I did request the guide from you many months ago, I would

very much like a copy. So if you don't have me on your list, please add me.

Hope your shoulder is healing well. .

" A Service Guide for Invisible/Hidden Disabilities "

Hello everyone;

I wanted to take a moment of your valued time to inform each of you

that I and other concerned members in Philadelphia, PA. and

surrounding areas of the country have put together the above listed

service guide and I am in the process of making it available to all

who wish to receive a soft copy of the guide.

The Guide is and contains information on EDS, related and aslo non

related medical conditions that we are affected with,specifically the

booklet contains information on EDS,The EDS Revised nosology 1997,

EDS & The ER, a host of web links (approx: 284) to products,

services, agencies to assist us during this journey called life with

a syndrome/disability. A good portion of the links are U.S. based and

I do have some links to the U.K. and other countries.

In the event that anyone wishes to obtain a copy of the guide please

feel free to contact me via email and I will foward you a copy in the

adobe format,the reason that I had it done in the adobe format is

that due to the cost factor and the limited resources that I have on

hand it is making it impossible for me to to further copies at this

time.

The guide is 38 pages one being printed on both sides of the paper,

in the event that you wish to print the soft copy be perpared to use

approxmatly 59 sheets of paper. I am in the process of going back to

school In Feb 04 and will have the entire guide and all the

information on a web site in the near future.

In closing, I look forward to hearing from all interested parties

and all that I ask is that once you forward me an email request that

you have something within the subject line that referrs to the

service guide.

All my best to each of you and take one second at a time.

Sincerely & Resspectfully;

Mr. L. Heim, Jr., President

Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities

Daddio5600@...

[Guest guest]

Hiya,

I would like a copy of the sent. monica-jb@....

Thanks so much!

" A Service Guide for Invisible/Hidden Disabilities "

Hello everyone;

I wanted to take a moment of your valued time to inform each of you

that I and other concerned members in Philadelphia, PA. and

surrounding areas of the country have put together the above listed

service guide and I am in the process of making it available to all

who wish to receive a soft copy of the guide.

The Guide is and contains information on EDS, related and aslo non

related medical conditions that we are affected with,specifically the

booklet contains information on EDS,The EDS Revised nosology 1997,

EDS & The ER, a host of web links (approx: 284) to products,

services, agencies to assist us during this journey called life with

a syndrome/disability. A good portion of the links are U.S. based and

I do have some links to the U.K. and other countries.

In the event that anyone wishes to obtain a copy of the guide please

feel free to contact me via email and I will foward you a copy in the

adobe format,the reason that I had it done in the adobe format is

that due to the cost factor and the limited resources that I have on

hand it is making it impossible for me to to further copies at this

time.

The guide is 38 pages one being printed on both sides of the paper,

in the event that you wish to print the soft copy be perpared to use

approxmatly 59 sheets of paper. I am in the process of going back to

school In Feb 04 and will have the entire guide and all the

information on a web site in the near future.

In closing, I look forward to hearing from all interested parties

and all that I ask is that once you forward me an email request that

you have something within the subject line that referrs to the

service guide.

All my best to each of you and take one second at a time.

Sincerely & Resspectfully;

Mr. L. Heim, Jr., President

Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities

Daddio5600@...

[Guest guest]

Hey guys....Mr. Heim is asking you to contact him directly. Lana, ,

, I have forwarded your emails to him already.

Bonnie

" A Service Guide for Invisible/Hidden Disabilities "

In closing, I look forward to hearing from all interested parties

and all that I ask is that once you forward me an email request that

you have something within the subject line that referrs to the

service guide.

All my best to each of you and take one second at a time.

Sincerely & Resspectfully;

Mr. L. Heim, Jr., President

Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities

Daddio5600@...

[Guest guest]

Yes, I figured that out once I replied, so I contacted him right after I replied

to the CEDA email. So he's heard from me several time! LOL! Thanks for

thinking of me, Bonnie!

Love Lana

[Guest guest]

I would like this too please/

Debbi Brown

[Guest guest]

In a message dated 12/10/2003 5:35:17 PM Pacific Standard Time,

kdavis@... writes:

You can download a PDF copy online at http://www.edstoday.org/SvcGuice.pdf

-Barb

OH.. OK!

[Guest guest]

Hello --

Yes, I would love to have a copy. Thank you.

Patti (pmelcher@...)

" A Service Guide for Invisible/Hidden Disabilities "

Hello everyone;

I wanted to take a moment of your valued time to inform each of you

that I and other concerned members in Philadelphia, PA. and

surrounding areas of the country have put together the above listed

service guide and I am in the process of making it available to all

who wish to receive a soft copy of the guide.

The Guide is and contains information on EDS, related and aslo non

related medical conditions that we are affected with,specifically the

booklet contains information on EDS,The EDS Revised nosology 1997,

EDS & The ER, a host of web links (approx: 284) to products,

services, agencies to assist us during this journey called life with

a syndrome/disability. A good portion of the links are U.S. based and

I do have some links to the U.K. and other countries.

In the event that anyone wishes to obtain a copy of the guide please

feel free to contact me via email and I will foward you a copy in the

adobe format,the reason that I had it done in the adobe format is

that due to the cost factor and the limited resources that I have on

hand it is making it impossible for me to to further copies at this

time.

The guide is 38 pages one being printed on both sides of the paper,

in the event that you wish to print the soft copy be perpared to use

approxmatly 59 sheets of paper. I am in the process of going back to

school In Feb 04 and will have the entire guide and all the

information on a web site in the near future.

In closing, I look forward to hearing from all interested parties

and all that I ask is that once you forward me an email request that

you have something within the subject line that referrs to the

service guide.

All my best to each of you and take one second at a time.

Sincerely & Resspectfully;

Mr. L. Heim, Jr., President

Philadelphia, PA., Internet Support For Invisible/Hidden Disabilities

Daddio5600@...

[Guest guest]

Hi Patti and others,

You can download a PDF copy online at http://www.edstoday.org/SvcGuice.pdf

-Barb