Re: Ketokid Veteran has Szs again

[Guest guest]

Sorry Anne, no ideas, except to maybe try upping the ratio a little if

they stick around

Other than that, I can only share the frustration of having the diet

working, being on it for a long time, and then not having it work

Crownovers wrote:

> Okay, after almost 8 years on the diet, my son Ben (10, athetoid cp,

> etc.) has started having szs again. He seems to be having them about

> every two months, although I know that doesn't sound like much to some

> of you. The diet has been a Godsend. Ben's seizures were status that

> lasted 45 minutes plus many times. Now his szs last anywhere from 5

> to 15 minutes, many times we have to intervene with Diastat.

>

> Ben is presently on a ratio of 2.2:1 with calories at about 1800. He

> has finally gained a little weight with his weight staying at about 56

> pounds for two years and he is now at almost 60 pounds, with an

> increase in calories about two months ago.

>

> I am a little baffled although part of this could be early puberty, or

> maybe the results of a post-cold virus, or just plain fatigue from the

> holidays. What are any of your thoughts on this. I sure would

> appreciate it. My neuro said that after all these years, it may be

> time to add a med to mix (probably Keppra since it is more

> keto-friendly). She is a full supporter of the diet (studied with Dr.

> Freeman).

>

> Anne

>

>

[Guest guest]

Anne, I agree with , I'd look at raising the ratio. And

although you know this........ I'd look at anything new -- new brand of

bacon, new mayo, new mealplan, new dog in the house, anything that could

be different. I'm a true believer that the key to seizure control is to

figure out what lowers the seizure threshold in our kids. Sounds simple,

but it's the DEVIL to figure out. Hope things settle down soon. And

DON'T feel defeated if you try the AEDs -- there are a lot of new ones

out since you were there (same with us), so you might find some relief in

them.

Kathy - 's Mom

On Thu, 01 Jan 2004 12:34:04 -0400 mmc@... writes:

> Sorry Anne, no ideas, except to maybe try upping the ratio a little

> if

> they stick around

> Other than that, I can only share the frustration of having the

> diet

> working, being on it for a long time, and then not having it work

>

>

> Crownovers wrote:

>

> > Okay, after almost 8 years on the diet, my son Ben (10, athetoid

> cp,

> > etc.) has started having szs again. He seems to be having them

> about

> > every two months, although I know that doesn't sound like much to

> some

> > of you. The diet has been a Godsend. Ben's seizures were status

> that

> > lasted 45 minutes plus many times. Now his szs last anywhere from

> 5

> > to 15 minutes, many times we have to intervene with Diastat.

> >

> > Ben is presently on a ratio of 2.2:1 with calories at about 1800.

> He

> > has finally gained a little weight with his weight staying at

> about 56

> > pounds for two years and he is now at almost 60 pounds, with an

> > increase in calories about two months ago.

> >

> > I am a little baffled although part of this could be early

> puberty, or

> > maybe the results of a post-cold virus, or just plain fatigue from

> the

> > holidays. What are any of your thoughts on this. I sure would

> > appreciate it. My neuro said that after all these years, it may

> be

> > time to add a med to mix (probably Keppra since it is more

> > keto-friendly). She is a full supporter of the diet (studied with

> Dr.

> > Freeman).

> >

> > Anne

> >

> >