Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 Laurie, I am so sorry that you are having such a hard time. We went through a similar situation when getting down to 1 pill of depakote and ended up going back up (we were scared at the time). I have found that the diet and depakote can be really hard to get the right combiniation. Is he really ketotic?? Is his face red and he has a sweet smell? My first thought is that he is ketotic. Maybe fighting off a virus as well. I would check his ketones in the morning and afternoon and evening for a couple of days. If they are high in the am then give him some OJ ( 1 tsp) and try to come down on the ratio. The hard thing about depakote is that it seems to make kids more ketotic for some reason so maybe you will need less ratio without it since you are coming off. Good luck! I know its hard to wean. I also agree with the post about splitting the dose to am/pm 1/2 pill. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 Laurie --- It took us a long time wean the Depakote. We went really slowly and the last 125 was the worst. We, and other people, did find that we needed to lower the ratio to 2.9, then 2.7. That could be the problem. How much was your last drop? Its hard to imagine that dropping from your last dosage to 125 (unless it was a huge drop) could have caused this, as 125 is a really minimal dose. Probably not even a therapuetic level. Its hard to say, not knowing the particulars of your case, but you could try dropping the ratio to 3.2, then 3.0 and see if he improves. I'd try that before increasing the Depakote again. Why don't you send us the particulars of your wean? How much you dropped in how much time? Jane -----Original Message----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2004 Report Share Posted May 19, 2004 Laurie, <<He has a strange smell but I wouldn't call it sweet - it's more like a vomit smell >> Is this a smell that is on his breath? Or otherwise? If it's on the breath, the smell from ketosis is a sort of acetone smell...... a little like fingernail polish remover. That is " normal " for keto kids, although Katera only had it when she was really overly ketotic. If it's more of a " vomit " smell on his breath, I would highly suspect acid reflux. This is very common on the diet with the kids that are on higher ratios. Some of his difficulty swallowing could be from that. If this is the case, I'd say you need a ratio drop for sure..... and if that doesn't seem to take care of it, have him evaluated for reflux and possibly add a med. I'm not too much in favor of the reflux meds myself (would rather add digestive enzymes) but it might give immediate relief..... and it's something you could just use for a while. Patti Quote Link to comment Share on other sites More sharing options...
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