Can you make Pittsburgh ? We hope so!

[Guest guest]

Dear All,

The conference is getting close and we hope that as many people as

possible will take advantage of being there to hear all these experts

on PSC in one place.

We really do have the leading experts attending and they will be

ready to answer your questions! This really is something that can

help you to manage your disease in the future. Come with your

questions ready not only for the medical experts but also for your

fellow members who have gained experience throughout the years. For

those of you in the Pittsburgh area, this is your time to save on

travel and hotel. The registration cost will cover your meals and

snacks.

The breakout sessions are going to be great and will help all of us

dealing with some of the difficult issues.

Personally, I'm interested in hearing:

Dr. Lindor and the latest from Mayo

Dr. Bergasa and the different treatments for itching

Dr. Chopra and the medical management of PSC

Dr. Baidoo and IBD in PSC

Dr. Matarase and Nutrition for PSC and IBD

Our own and his update on PSC research !!

All of these panels will have a Q & A session. There are more talks for

those with transplant concerns and also a talk on endoscopy.

I'm also really interested in Saturday afternoon's and Sunday's

breakout sessions. With a young son, I'm particularly interested in

the talk on disability/social security and insurance issues.

I want to hear Ivor's update on the latest from Dr. Chapman and the

research in the UK

Check out the other sessions, there is so much more.

Of course it can't be all business and no play, so I am really

looking forward to Saturday's dinner and hearing Klug speak! He

is such an inspiration.

Please don't miss this opportunity. There is so much more. Just go to

our website :

www.pscpartners.org and click on 2006 Conference.

We are all working hard to make this the best of weekends. We will

all benefit from meeting with the experts and each other.

Hope to see you there!

Lee

[Guest guest]

Whether you can attend or not, we all owe really big thanks to Joanne

for being our host in Pittsburgh and doing such an incredible job of

putting this all together.

Thanks Joanne,

Lee

> Dear All,

> The conference is getting close and we hope that as many people as

> possible will take advantage of being there to hear all these experts

> on PSC in one place.

> We really do have the leading experts attending and they will be

> ready to answer your questions! This really is something that can

> help you to manage your disease in the future. Come with your

> questions ready not only for the medical experts but also for your

> fellow members who have gained experience throughout the years. For

> those of you in the Pittsburgh area, this is your time to save on

> travel and hotel. The registration cost will cover your meals and

> snacks.

> The breakout sessions are going to be great and will help all of us

> dealing with some of the difficult issues.

>

> Personally, I'm interested in hearing:

> Dr. Lindor and the latest from Mayo

> Dr. Bergasa and the different treatments for itching

> Dr. Chopra and the medical management of PSC

> Dr. Baidoo and IBD in PSC

> Dr. Matarase and Nutrition for PSC and IBD

> Our own and his update on PSC research !!

>

> All of these panels will have a Q & A session. There are more talks for

> those with transplant concerns and also a talk on endoscopy.

>

> I'm also really interested in Saturday afternoon's and Sunday's

> breakout sessions. With a young son, I'm particularly interested in

> the talk on disability/social security and insurance issues.

> I want to hear Ivor's update on the latest from Dr. Chapman and the

> research in the UK

> Check out the other sessions, there is so much more.

>

> Of course it can't be all business and no play, so I am really

> looking forward to Saturday's dinner and hearing Klug speak! He

> is such an inspiration.

>

> Please don't miss this opportunity. There is so much more. Just go to

> our website :

> www.pscpartners.org and click on 2006 Conference.

>

> We are all working hard to make this the best of weekends. We will

> all benefit from meeting with the experts and each other.

> Hope to see you there!

> Lee

[Guest guest]

Lee Bria wrote:

> Dear All,

> The conference is getting close and we hope that as many people as

> possible will take advantage of being there to hear all these experts

> on PSC in one place.

I've been trying for the last several weeks to work things out so I can

make it to the conference, and it looks like I'll be able to. The only

problem is that I notice all fees are supposed to be in by the 28th. I

can put a check in the mail tomorrow, but I'm not sure if I can trust

the postal service to get it there in time. Is this OK, or is there a

quicker way to get it there (besides fedexing it overnight!)?

I'm looking forward to it!

athan

[Guest guest]

Dear athan,

That's TERRIFIC that you were able to work things out so that you can join

us all at the conference. Just put your check in the mail tomorrow, and

I'll make sure that Joanne will know to add you to the list and look out for

your check and registration form. I'm looking forward to meeting you!

Ricky

----- Original Message -----

>

> I've been trying for the last several weeks to work things out so I can

> make it to the conference, and it looks like I'll be able to. >

> athan

>

>

>

>

>

>

[Guest guest]

Dear athan,It would be so great to meet you at the conference! You contribute so much to this group ! I know you would have good questions for the experts.I'm sure there will be no problem getting you registered. I am cc'ing this to Joanne so that she can contact you to help you with this.I'll see you in Pittsburgh!Lee Lee Bria wrote: > Dear All, > The conference is getting close and we hope that as many people as > possible will take advantage of being there to hear all these experts > on PSC in one place. I've been trying for the last several weeks to work things out so I can make it to the conference, and it looks like I'll be able to.  The only problem is that I notice all fees are supposed to be in by the 28th.  I can put a check in the mail tomorrow, but I'm not sure if I can trust the postal service to get it there in time.  Is this OK, or is there a quicker way to get it there (besides fedexing it overnight!)? I'm looking forward to it! athan

[Guest guest]

,

That is great news that you are coming to the conference. We have the

March 28th deadline to help us with the planning and getting numbers

to the hotel. I will be adding a few extra slots...for those that

decide they can come afterall. I wouldnt want anyone to miss this

conference if they had the chance to attend. I look forward to

meeting you.

Joanne (mom of Todd, 20 psc 01, crohns 02, tx twice 03, recurrent psc

05 and living life to the fullest in 06)

[Guest guest]

As the conference gets closer I get more bummed that I can't afford to make it this year. You guys have been such a support to us this year and the conference sounds amazing. MartiLee Bria wrote: Whether you can attend or not, we all owe really big thanks to Joanne for being our host in Pittsburgh and doing such an incredible job of putting this all together.Thanks Joanne,Lee> Dear All,> The conference is getting close and we hope that as many people as> possible will take advantage of being there to hear all these experts> on PSC in one place.> We really do have the leading experts attending and they will be> ready to answer your questions! This really is something that can> help

you to manage your disease in the future. Come with your> questions ready not only for the medical experts but also for your> fellow members who have gained experience throughout the years. For> those of you in the Pittsburgh area, this is your time to save on> travel and hotel. The registration cost will cover your meals and> snacks.> The breakout sessions are going to be great and will help all of us> dealing with some of the difficult issues.>> Personally, I'm interested in hearing:> Dr. Lindor and the latest from Mayo> Dr. Bergasa and the different treatments for itching> Dr. Chopra and the medical management of PSC> Dr. Baidoo and IBD in PSC> Dr. Matarase and Nutrition for PSC and IBD> Our own and his update on PSC research !!>> All of these panels will have a Q & A session. There are more talks for> those with transplant concerns and also a talk

on endoscopy.>> I'm also really interested in Saturday afternoon's and Sunday's> breakout sessions. With a young son, I'm particularly interested in> the talk on disability/social security and insurance issues.> I want to hear Ivor's update on the latest from Dr. Chapman and the> research in the UK> Check out the other sessions, there is so much more.>> Of course it can't be all business and no play, so I am really> looking forward to Saturday's dinner and hearing Klug speak! He> is such an inspiration.>> Please don't miss this opportunity. There is so much more. Just go to> our website :> www.pscpartners.org and click on 2006 Conference.>> We are all working hard to make this the best of weekends. We will> all benefit from meeting with the experts and each other.> Hope to see you there!> Lee

[Guest guest]

>>>As the conference gets

closer I get more bummed that I can't afford to make it this year. You guys

have been such a support to us this year and the conference sounds amazing.

Marti<<<

Me too, Marti! Me too. (

Beth Hunt

Mom to : seven years old PSC (8/04) UC

(2/06)

" But without faith it is impossible to please him: for he

that cometh to God must believe that he is, and that he is a rewarder of them

that diligently seek him. " Hebrews 11:6

[Guest guest]

To all of the folks out there who cannot make the conference this time in Pittsburgh-

Maybe those of us that are there, if one of us has a laptop, can keep you up to date while at the conference. Just a thought. I would be willing to write up some of the sessions if some other folks can help out. Not a real detailed report but at least a short info blurb. Maybe if you have questions you can write back and we might be able to ask someone the question. What do you all think?

Ali

[Guest guest]

Ali,

I am not able to attend and would love to know what is going on. I think you have a great idea.

(MT) Re: Can you make Pittsburgh ? We hope so!To all of the folks out there who cannot make the conference this time in Pittsburgh- Maybe those of us that are there, if one of us has a laptop, can keep you up to date while at the conference. Just a thought. I would be willing to write up some of the sessions if some other folks can help out. Not a real detailed report but at least a short info blurb. Maybe if you have questions you can write back and we might be able to ask someone the question. What do you all think?Ali