Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Dee, I'm so glad you posted this article!!! I've decided that Capsaicin is the GREATEST STUFF EVER for vestibular vulvar pain!!! Believe me, I'm a 14 year long sufferer, nothing helped before this, and Dr. Kellogg started me on it less than a year ago. Yeah it burns at first.....whatever.....my vulva hurt anyway! It's a small price to pay for daily relief with no side effects, pills, etc. It has reduced my pain on contact, and spontaneous pain by over 50% and allowed me to have sex for this first times in my life pain free (or very minimal pain). It is safe to use forever,, or you can cut down usage once you feel better (usually takes a few months to start healing those nerves). It reduced irritation on my vulva - it is no longer inflamed, red, etc. I look normal, and it has really helped my quality of life. Plus it's a natural ingredient - can't get much better than that. please e-mail me if you want more info!! , Every time you write about the wonderful results you've had with capsaicin, i get more and more excited. My appointment with Kellogg is on July 26 and i am bound and determined that i leave there with an Rx in hand. (I don't think i have any dermatological condition that would perclude its use. I'd better not!) Thinking about getting that healing burn going helps me deal with my concerns about getting through the exam and the very likely painful aftermath. It's been quite a while since my vagina's been in the vicinity of a speculum and i'm not looking forward to it. Eye on the prize, eye on the prize. . . . A question: at this point, after months of use, do you have much of a burn sensation when you apply the ointment? Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Dee, I'm so glad you posted this article!!! I've decided that Capsaicin is the GREATEST STUFF EVER for vestibular vulvar pain!!! Believe me, I'm a 14 year long sufferer, nothing helped before this, and Dr. Kellogg started me on it less than a year ago. Yeah it burns at first.....whatever.....my vulva hurt anyway! It's a small price to pay for daily relief with no side effects, pills, etc. It has reduced my pain on contact, and spontaneous pain by over 50% and allowed me to have sex for this first times in my life pain free (or very minimal pain). It is safe to use forever,, or you can cut down usage once you feel better (usually takes a few months to start healing those nerves). It reduced irritation on my vulva - it is no longer inflamed, red, etc. I look normal, and it has really helped my quality of life. Plus it's a natural ingredient - can't get much better than that. please e-mail me if you want more info!! > >Reply-To: VulvarDisorders >To: " VULVAR DISORDERS LIST " <VulvarDisorders > >CC: " LichenSclerosis " <LichenSclerosis > >Subject: RECTAL ROCKET & CAPSAICEN THOUGHTS. >Date: Sat, 30 Jun 2007 03:10:36 -0400 > >HI all.. > >Yoy!! I just don't know how to condense, so fair warning this is long. >LOL > >I'm going to first add a clip from a newsletter called ''The Compounder " >that I've been receiving for a long time by a compounding pharmacist by the >name of Larry Frieders. Not that I've used him (Petes still my fav) but >some of his newsletters are very interesting, others have points I totally >disagree with. *smile* But he definitely seems like a guy that truly wants >to help in whatever way he can. > >Anyway this was the latest one and two items (one, the Rectal Rocket and >the other 'Sinusbuster',) were mentioned (items they compound themselves >and sell) that really perked my ears up as a possibility for some of us. >*smile* I'll let you read it then I'll continue below with some thoughts >and why I wrote to Larry. > > > HEMORRHOIDS - A REAL PAIN IN THE BEHIND > > > Larry Frieders, R.Ph. > > > > > > The Rectal Rocket Heals Hemorrhoids in 3 Days or Less > > Our Rectal Rocket is a special suppository designed to >heal hemorrhoids in 3 days or less. It is more comfortable to use and more >effective than a traditional suppository because of its unique design. > > a.. It does not get lost in the rectum but stays comfortably >in place for many hours to soothe and heal inflamed tissue. > > b.. It treats both internal and external hemorrhoids >simultaneously, so messy creams are not required. > > c.. The Rectal Rocket remains in place because a special >groove permits the passage of gas. > > d.. Overnight use is convenient and doesn't interrupt daily >activities. > > e.. Available in immediate-release and sustained-release >formulations. > > > How Does the Rectal Rocket Work? > > It's the design. The Rectal Rocket has a contoured front end >and a flared bottom, so it treats both internal and external hemorrhoids >simultaneously. It treats internal hemorrhoids by remaining at the point of >insertion; it does not lapse into the rectum. The flared bottom remains in >continuous contact with the outer surface of the anus to treat external >hemorrhoids. The Rectal Rocket always remains in place because a special >groove permits the passage of gas. > > Why Use the Rectal Rocket? > > a.. Comfort, Effectiveness, and Convenience! Suppositories >are not the most pleasant form of medication, but if you're dealing with >hemorrhoids, you don't have many options. When compared with traditional >suppositories, Rectal Rockets offer excellent absorption and superior >comfort, and they usually heal both internal and external hemorrhoids with >as few as 3 applications. They are used at bedtime, and they provide >immediate relief from pain and itching. > > b.. Better Drug Absorption. The Rectal Rocket’s design >allows it to remain in continuous contact with internal and external >inflamed areas throughout absorption. > Immediate or Extended Release. Formulations that allow the >drug to be absorbed immediately or over several hours can be made. > > c.. Hemorrhoids Heal with Fewer Doses. Traditional >suppositories can lapse into the rectum, and when they lose direct contact >with inflamed tissue, both types of hemorrhoids remain untreated. The >extended-release Rectal Rocket can dramatically bring about healing in as >few as 3 doses. > > d.. Better Comfort = Better Compliance. No need to use a >traditional suppository plus a cream! The Rectal Rocket offers prolonged >relief in 1 dosage form for both types of hemorrhoids. > > e.. The basic formulation provides lidocaine (an anesthetic) >and hydrocortisone (an anti-inflammatory) in a special suppository blend. > > Find Out More. . . > Your doctor can prescribe a customized Rectal Rocket >formulation for you. We also have formulas for treating systemic pain and >anal fissures. Doctors who want specifics about these preparations or more >information about the many possible Rectal Rocket formulations may contact >the pharmacists at The Compounder or >Info@.... > > > The Compounder also Recommends: > > SINUSBUSTERS > > So many of us are plagued by sinus problems - >headaches, dripping, sneezing, allergies, colds, and so on. Over the years >I've tried all sorts of remedies and I never found anything that worked as >well as these various sprays. > > They each contain capsaicin - the stuff that makes >peppers HOT. It is in a very weak solution, but it still burns when you >first use it. This exhilarating bite is not a burn -- the formulas are >non-caustic and non-addictive. When you introduce the capsicum to the blood >vessels in your nose, the feeling is quite powerful. In fact, it’s quite >similar to the sensation felt when you catch a little whiff of black pepper >up your nose while cooking or seasoning your food -- only a bit stronger. >But, WOW, does it ever work. I use these formulas myself and I don't >hesitate to recommend them. - > > Larry > > ============================================== > > Dee here again. > > So.... I read that and I thought first about women >who have vaginal LP (lichen Planus) and since they often have to use anal >suppository steroids but in the vagina for the pain and to prevent >adhesions, I thought this 'might' be a perfect product for them. > > Then I thought about others with hemmorhoids or >anal fissures so that was a natural 'fit', (no pun intended, LOL).... >Plus those with LS, since it can go around the rectum as well as the vulva >that perhaps that might work for them too, since both LSers and LPers use >a strong steroid like Clobetasol. His suppository would be quite mild by >comparison but would bring pain relief I'm thinking. (with hydrocortisone >and lidocaine) > > And secondly the other item I was thinking about >was those who've used or might try the Capsaicen cream/ointment on the >vulva (That is sometimes suggested by K. Spadt and others) and the >science behind it with it blocking substance P makes good sense to me as I >understand it, but usually it can be extremely irritating that many don't >stay with it very long... so again I thought gosh this product doesn't >sound nearly as potent plus being a spray it might work even better than >what is typically used on the vulva. > > Anyway I wrote Larry and explained our groups and >various conditions in some detail as to the pain suffered etc.etc.,and >about how both items just 'may' be something we could possibly use and >wondered what he thought about it using it as I described the situation. > > This was his reply: > > > > Hello Dee; > > Thanks for writing. > > Regarding the Rectal Rockets for vaginal use... >On first thought, I'd think the anatomical differences would reduce the >usefulness in the vagina. However, it may be worth a try for a couple of >reasons. > > The base I use melts and can flow around the >vaginal cavity - both inside and out. " Regular " suppositories usually >release their medication directly. The melting feature of our base might >allow the medication to be more evenly distributed. The flared end may keep >the Rectal Rocket in contact with the outer part of the vagina more >effectively than a " standard " suppository. The groove would not offer any >advantage for this use - but it will be there nonetheless because it's part >of the mold. > > I can incorporate practically any medications >into the Rectal Rocket. > (I loved that idea, Dee) > Of course, using the Rectal Rocket in the anal >area could be VERY helpful for those women where the condition affects that >area. > > Again, the melting aspect can deliver medication >over a larger area and the shape can help apply the medicine to both the >internal and external space. > > When the condition ONLY affects the exterior >anal ring I can make the Rectal Rocket in two stages - the inner part being >mostly inert and the outer part containing most of the medication. > > (Comment by Dee...I really liked this idea and > would be perfect for those with anal 'LS' since it doesn't go inside the >rectum...(that part would not have the medication) PLUS even for the >vagina since LS doesn't go inside there either, But LP may/does and why I >thought of it for vaginal LP.) > > The variations are extensive. Clobetasol (a >steroid) is easy to incorporate into this formulation. The most common >formula for hemorrhoids is a combination of hydrocortisone (similar to >clobetasol but not as potent, a mild steroid) and lidocaine (an >anesthetic). > > I'm a compounder so I can include almost >anything the doctor would want. > > (secondly) > > About Capsaicin, that is the active ingredient >in hot peppers. The level of " burn " is directly related to the >concentration of that chemical. A person would want to be very careful >using capsaicin around the vaginal or rectal areas. > > You have a creative mind Dee - considering a >mild 'Sinusbuster' spray for vaginal use. It seems like something worth >trying. Before fully agreeing I'd want to compare the strength in the spray >with the concentrations that doctors have recommended. > > If the Sinusbuster is still too strong I might >be able to formulate something more acceptable - maybe even incorporating a >dose (of the capsaicin) into the suppository base I use for Rectal Rockets. >This is definitely worth considering. I'd be happy to work with doctors and >patients to arrive at a solution that meets the need. > > Regards > > > Larry J Frieders, RPh, MMgt, MA > http://www.thecompounder.com/ > 340 Marshall Ave Unit 100 > > >======================================================= > > Me once again. *smile* > > Anyway I thought I'd throw it out there as it made >some sense to me and I trust the guy, though like I said I do not agree >with some few of his ideas (mainly progesterone,*grin*) but doesn't mean >he's not excellent with other things. > > Plus the fact that steroids can be wonderful for >V. skin pain relief and we really shouldn't be afraid of one (mild for most >conditions and potent for LS or LP) but if it's used judiciously for any >kind of skin conditions (once all pathogens have been ruled out) they >really can work wonders used correctly and not abused or overused. > > Plus he uses a very mild steroid AND it has the >lidocaine in it. But no doubt he could make that combo up in a cream base >as well, and the Rectal Rocket (LOL) sounds great for those who do have >hemmoroids.. > > AND about the Capsaicen? I know we haven't >discussed that in a long time on group...(by the way this is NOT for LS but >for vulvodynia or vestibulitis etc.,) and it's still a treatment that is >offered and his may be a little milder 'and a spray' as long as a doctor is >willing to talk with him to make it to the patients needs.. it'd be worth a >try I would think. > > Anyway I got the biggest chuckle out of the >'Rectal Rocket' name, LOL and thought it great that he responded so >quickly. So for what it's worth. > > Always writing others and seeking help or ideas >for us.*smile* > > hugs to all, > Dee~ > > > > > > ><< larry.jpg >> ><< newsletter20070629.jpg >> _________________________________________________________________ Like puzzles? Play free games & earn great prizes. 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Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 Hey Hollis, I totally think she'll give you the script, as she's a big advocate of this cream. You can tell her that another one of her patients raves about it (she's sees so many patients, she probably won't know who I am). Tell her you've done your research......the only reason I think she wouldn't do it is if you were afraid of the burning, or she might want you to try something first and do the Cap on the second visit. I didn't do it right away because I was scared, and she wanted to try me on other stuff first. It still burns when I first apply it, sure, but not nearly as bad as in the beginning, and I'm even on a higher strength now. I really do see it as a healing pain, it really is. Honestly, the burning is the least of my worries, I don't even think about it. It burns away my real pain, and leaves me feeling normal. You can totally get through the exam - she's very gentle and tells you exactly what she's doing step by step. She'll use a baby speculum. She knows what she's doing in terms of our pain. Do a lot of deep breathing into your stomach, it'll relax your pelvic muscles. If you do decide for the Cap, she'll probably do it in her office first to show you how to do it. Let me know if you do get it, and I'll give you some tips on how to use it best. Applying Lido for the first few weeks prior to using the Cap really helps. My VVS is actually pretty stable right now (over 50% better -which I consider a miracle). Sure, I'm having tons of other problems, but at least my vulva's not on fire. Oh, I also used valium suppositories lately, which really helped with the pain (if you're not opposed to valium or meds, this might really help. It doesn't give you side effects or anything, just relaxes your vagina). You can totally do the exam. Piece of cake. nicole >From: Zdamask@... >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: CAPSACIN THOUGHTS. >Date: Sat, 30 Jun 2007 10:50:20 EDT > >In a message dated 6/30/2007 9:56:31 AM Eastern Daylight Time, >caterpillar7@... writes: > > > > Dee, I'm so glad you posted this article!!! > > > > I've decided that Capsaicin is the GREATEST STUFF EVER for vestibular >vulvar > > pain!!! Believe me, I'm a 14 year long sufferer, nothing helped before > > this, and Dr. Kellogg started me on it less than a year ago. Yeah it >burns > > at first.....whatever.....my vulva hurt anyway! It's a small price to >pay > > for daily relief with no side effects, pills, etc. > > > > It has reduced my pain on contact, and spontaneous pain by over 50% and > > allowed me to have sex for this first times in my life pain free (or >very > > minimal pain). It is safe to use forever,, or you can cut down usage >once > > you feel better (usually takes a few months to start healing those >nerves). > > It reduced irritation on my vulva - it is no longer inflamed, red, etc. >I > > look normal, and it has really helped my quality of life. Plus it's a > > natural ingredient - can't get much better than that. > > > > please e-mail me if you want more info!! > > > > > > > >, > >Every time you write about the wonderful results you've had with capsaicin, >i get more and more excited. My appointment with Kellogg is on >July 26 and i am bound and determined that i leave there with an Rx in >hand. (I don't think i have any dermatological condition that would >perclude >its use. I'd better not!) Thinking about getting that healing burn going >helps >me deal with my concerns about getting through the exam and the very >likely painful aftermath. It's been quite a while since my vagina's been >in >the vicinity of a speculum and i'm not looking forward to it. Eye on the >prize, >eye on the prize. . . . > >A question: at this point, after months of use, do you have much of a >burn sensation when you apply the ointment? > >Hollis > > </HTML> _________________________________________________________________ Who's that on the Red Carpet? Play & win glamorous prizes. http://club.live.com/red_carpet_reveal.aspx?icid=REDCARPET_hotmailtextlink3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 HI . WOW hon I'm so glad you posted your experience with the Capsaicin... It really has been a long time since I've seen that subject come up and I really checked into it at the time and have all kinds of info on it and by all logical reasoning it 'should' help... but I've not seen too many that stuck with it, so that was really great to hear your story. Pain Free~ WOW. You go girlfriend, and thanks so much for sharing that. Hugs Dee~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2007 Report Share Posted June 30, 2007 HI ... You wrote: ''Oh, I also used valium suppositories lately, which really helped with the pain (if you're not opposed to valium or meds, this might really help. It doesn't give you side effects or anything, just relaxes your vagina).'' Now that's something I've not seen.... hummmmm Actual Valium for the vagina... LOL... interesting idea, makes it yawn and go to sleep. ha ha So it's not just a tablet inserted (vaginally or rectally?) but actually made up into a suppository. Neat idea and you say it really helps... good one to know. Thanks again hon Dee~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Hey Hollis, I totally think she'll give you the script, as she's a big advocate of this cream. You can tell her that another one of her patients raves about it (she's sees so many patients, she probably won't know who I am). Tell her you've done your research......the only reason I think she wouldn't do it is if you were afraid of the burning, or she might want you to try something first and do the Cap on the second visit. I didn't do it right away because I was scared, and she wanted to try me on other stuff first. Well, i'm actually not TOO afraid of the burn since i used a little capsaicin sprinkled on a plain yogurt-soaked piece of cotton ball, along with some golden seal powder, snuggled against my urethra every night many years ago when my IC pain was so bad. (This was my own invention. I had no idea that there was such a thing as a "cotton ball" technique until a few decades later.) Plus i've used it as part of an eyewash mixture (burns like crazy initial and then feels great), as an ingredient in a homemade salve, and am currently using it (decocted in vodka) on my scalp for hair growth. Oh, yeah. . . and i actually sometimes use it as an condiment. So, i'm pretty capsaicin-friendly, i'd say. Why shouldn't my crotch join in on the fun?? It still burns when I first apply it, sure, but not nearly as bad as in the beginning, and I'm even on a higher strength now. I really do see it as a healing pain, it really is. Honestly, the burning is the least of my worries, I don't even think about it. It burns away my real pain, and leaves me feeling normal. That's exactly how i'm going to envision it -- as a healing "sensation." You can totally get through the exam - she's very gentle and tells you exactly what she's doing step by step. She'll use a baby speculum. She knows what she's doing in terms of our pain. Do a lot of deep breathing into your stomach, it'll relax your pelvic muscles. Thanks, . This is very reassuring to hear. I've already started doing visualizations about how well it will go. . . . If you do decide for the Cap, she'll probably do it in her office first to show you how to do it. Let me know if you do get it, and I'll give you some tips on how to use it best. Applying Lido for the first few weeks prior to using the Cap really helps. Thanks. My VVS is actually pretty stable right now (over 50% better -which I consider a miracle). Sure, I'm having tons of other problems, but at least my vulva's not on fire. It's so great to hear this. With everything else you're contending with right now -- alien growths and all -- at least one thing is doing well! Oh, I also used valium suppositories lately, which really helped with the pain (if you're not opposed to valium or meds, this might really help. It doesn't give you side effects or anything, just relaxes your vagina). Although i really do like to avoid Rx meds, especially ones like the benzos. it does sound tempting. Something to add to my What To Ask list. You can totally do the exam. Piece of cake. Thanks for the pep talk, ! Hollis nicole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Yeah, the Valium suppositories are really helpful, too. It's 10mg Valium compounded with boric acid just in case the Valium screws with your PH. It has to be done at a compound pharmacy - they're sent in what look like bullet holders - like long rows of bullet shaped suppositories, kinda funny ;-) I was worried about going on them at first because I avoid medications like Valium due to the addictive issues and side effects, but after speaking with the compound pharmacist at length, she explained that because the vaginal tissue basically absorbs the medicine so quickly, it basically eats it all up - and you don't get the systemic typical valium reaction (drowsiness, etc.). > >Reply-To: VulvarDisorders >To: <VulvarDisorders > >Subject: Re: CAPSACIN THOUGHTS. >Date: Sat, 30 Jun 2007 14:30:47 -0400 > >HI ... > >You wrote: ''Oh, I also used valium suppositories lately, which really >helped with the >pain (if you're not opposed to valium or meds, this might really help. It >doesn't give you side effects or anything, just relaxes your vagina).'' > >Now that's something I've not seen.... hummmmm Actual Valium for the >vagina... LOL... interesting idea, makes it yawn and go to sleep. ha ha >So it's not just a tablet inserted (vaginally or rectally?) but actually >made up into a suppository. Neat idea and you say it really helps... good >one to know. > >Thanks again hon > Dee~ _________________________________________________________________ Hotmail to go? Get your Hotmail, news, sports and much more! http://mobile.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 , You mentioned that you've upped your concentration of capsaicin in your cream. What percentage did have you start with, how long were you on it, and what are you using now? After reading the journal article that Dee just posted about a cap study, i was curious about this, since they postulated that perhaps the nonresponse rate would have been lower if they had used a higher concentration. Still, i thought 59% showing improvement didn't sound at all shabby. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 HI, started me on .025% compounded in acid mantle base. I was on it for maybe 3 months, and she upped it to .075%. I've been on that ever since (5 months or more). I think that they can raise the concentration higher - but I think I'm fine with this dosage. >From: Zdamask@... >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: CAPSACIN THOUGHTS. >Date: Sun, 1 Jul 2007 17:51:05 EDT > >, > >You mentioned that you've upped your concentration of capsaicin in your >cream. What percentage did have you start with, how long were >you on it, and what are you using now? After reading the journal article >that Dee just posted about a cap study, i was curious about this, since >they postulated that perhaps the nonresponse rate would have been >lower if they had used a higher concentration. Still, i thought 59% >showing >improvement didn't sound at all shabby. > >Hollis </HTML> _________________________________________________________________ Who's that on the Red Carpet? Play & win glamorous prizes. http://club.live.com/red_carpet_reveal.aspx?icid=REDCARPET_hotmailtextlink3 Quote Link to comment Share on other sites More sharing options...
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