Guest guest Posted September 9, 2004 Report Share Posted September 9, 2004 Amy and , I have had RSD for over 5yrs and do believe that Fibro is closely related in some ways. My immune system is not what it used to be and I get sick easier and had the flu so bad for two yrs in a row that I thought I would die from it. This seems like a very rational explanation of what could be going on with Fibro and RSD. I live close to ville, IN and will see what I can do to find out more. I suggest everyone who has one or both of these conditions to take this info to their doctor and see what happens. If the doctor doesnt believe in it, try to find one who will look at it even if it is your primary doctor. We need to find a cure or something that could help us all live better lives. Thanks for the info and God Bless you all. Sincerely, Rhonda > dear paul, > > thank you so much for the fibro info! i'm printing it up now, the > list of viruses, and will present it to my doctor today when i see > him. like i said to debdog, it's great that the medical community > has not given up on us yet! i pray for pain-free lives for all of > us! thanks for sharing some hope! > love, > amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2004 Report Share Posted September 11, 2004 , I have chronic Sinusitis, and have ear infections all the time every winter......and believe me, the RSD and Fibro Pain does Not go down any when I have either kind of Infection. Nor does the pain go away during a Urinary Tract Infection, Kidney Infection, Infection in a cut/sore that I've had on my leg that has RSD..... So, again, I think you are finding something that is only going to work for a few people, but not for everyone. I can honestly say that when I get an infection, my pain gets worse .... both the RSD AND the Fibro Tonia -------Original Message------- Web site http://www.14wfie.com/ then click on the Button in about the middle of the page LOCAL DOCTOR GIVES HOPE TO FIBROMYALGIA SUFFERS and it will play the newscast about what he seems to have found out about pain and this might help us rsd people too. Here is a direct link to the written report with the video also if the video did not work on the first link. http://www.14wfie.com/Global/story.asp?S=2271049 & nav=3w6oQgOa I have noticed that when I have had the flu or bad sinus my pain seemed less. I think he may be on to something I got to call my DR. and see if I can get the blood test done for infections. This is near to where I live and if He is correct and some of us have these infections we may be looking at a life with less pain or no pain at all. This is the first positive sign of a treatment that may really help some because it is treating the problem and not the symptoms only. This is very early in this I know but after 9 years of searching and keeping my eyes open to something that might work its just 40 miles from me. Even if it does not work for me I will be happy for those that it will help. The Lord Be With You The Lord Bless You Papier de Chez Mamie Coucou____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
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