Re: Question about the spreading of RSD

[Guest guest]

,

My name is Dawn and want to say welcome to the group, and I hope that you find some of the answers that you are looking for.

I believe that you can definitely get RSD from one wrist to the other and you need to speak to some of the other people in this group that it has happened to. You also need to see a pain management doctor as soon as possible, because he should be able to give you the proper diagnosis.

One other very important suggestion that I have is to get a Workers Compensation Attorney right away. Of course they are nice to you now, but that is not going to be for long. Trust me and I encourage you to ask others in the group the same thing. The best choice I personally ever made was to get an attorney. Especially if you ever need to file for Disability or need help getting treatments from your doctors. As far as Advil goes, most of us are on very strong and high dose narcotics for our pain. I can tell you that I am now on methadone which is once again being increased for the third time next week, and also receive injections (sympathetic blocks) for the pain. I take a drug called nifedipine that helps with blood pressure and RSD. I also take paxil for depression. I am on other drugs, but they are for my MS. Please feel free to ask any questions that you may have and we will all try and help you. Take Care and LOL

Always.

Dawn

jenncleveland wrote:

I joined the group a couple of months ago and have just been "lurking" since, mostly because I hurt my right hand in May at work and was diagnosed with RSD in that hand. Since I was unable to use my dominant hand for so long I somehow injured the ulner nerve in my left hand. But here is the the strange thing, and what is leading up to the question, my left hand is starting to exhibt have the same symptoms as the right, as far as the RSD goes. Now, the people from workman's comp have been really nice and have covered the damaged nerve on the left hand/arm, but they said that there is "no way" that the RSD could spread from one limb to the other (see why I don't type much?).So my question is: Can RSD spread from one limb to another? And what kind of Dr's should they be sending me to? So far all I have seen

have been orthopedists(sp?). Both of my hands swell so much I sleep in a recliner with my hands above my head. Thank God they have at least put me off work because I really can't do much, and all they want me to take is advil. I see "another" new doctor on Friday, so I was hoping you all could give me some advice. This is really beginning to wear on me. Of course, one good thing is, it has been the best diet plan I have ever been on, I have lost 55 pounds in 4 months. Any advice will be appreciated.Thanks.

[Guest guest]

Hi

Indeed RSD can spread and it can mirror as well which is what it

sounds like it is doing to you. I've found that mine has spread from

an injury affecting my wrist when I sprained it a yr ago to it

travleing the entire length of my arm to my neck and shoulder, down

my back and has chosen to work downward now to affect my fingers as

well and up the base of my skull traveling to the top of my head and

my forehead and jawline.

I've been told as well that it doesnt " mirror " and that I read too

much LOL. Dont let them tell you that

Godd luck with your dr appt Friday and hopefully you will get some

answers.

Donna

[Guest guest]

I see "another" new doctor on Friday, so I was hoping you all could give me some advice. This is really beginning to wear on me. Of course, one good thing is, it has been the best diet plan I have ever been on, I have lost 55 pounds in 4 months. Any advice will be appreciated.Thanks.

Hi ,

Welcome to the group. I myself met one of those doctors and I use the term loosely in his case tell me that he doesn't believe that it spreads. However I now have data I didn't have back then. If you come across a doctor that tells you that, you tell him that he/she to go back to school because the National Institute of Neurological Disorders and Stroke believes that it can spread to the other limb affected and in rare cases can go full body. If you go to their site they will send you out pamphlets so you can even give them a copy. I am going to a Rheumatologist some people go to Neurologists, I tried to go to one and was told by the receptionist that they don't believe in RSD and don't treat it. How long have you had RSD? I live in Oregon which I have heard from more than one source is the worst state to be in for this disease. So I have had to be my own advocate.

Anyway I will say welcome again this is a great group for advice and for support.

Lin

[Guest guest]

Hi Lin,

I live in Arkansas, another great state of health care at the bottom

of the barrel, I actually travel to Texas to get treatment for my

migraines, but since the injury to my hand is a workmans comp I am

stuck here, they have much better and more choices in Texas, and I

just happen to live in another state with lax laws.....

> I see " another " new doctor on Friday, so I

> was hoping you all could give me some advice. This is really

> beginning to wear on me. Of course, one good thing is, it has been

> the best diet plan I have ever been on, I have lost 55 pounds in 4

> months.

> Any advice will be appreciated.

> Thanks.

>

>

> Hi ,

> Welcome to the group. I myself met one of those doctors and I use

the term

> loosely in his case tell me that he doesn't believe that it

spreads. However

> I now have data I didn't have back then. If you come across a

doctor that

> tells you that, you tell him that he/she to go back to school

because the

> National Institute of Neurological Disorders and Stroke believes

that it can

> spread to the other limb affected and in rare cases can go full

body. If you

> go to their site they will send you out pamphlets so you can even

give them

> a copy. I am going to a Rheumatologist some people go to

Neurologists, I

> tried to go to one and was told by the receptionist that they don't

believe

> in RSD and don't treat it. How long have you had RSD? I live in

Oregon

> which I have heard from more than one source is the worst state to

be in for

> this disease. So I have had to be my own advocate.

> Anyway I will say welcome again this is a great group for advice

and for

> support.

> Lin