RE: Why am I so sad/ Now Tyler for Bonnie, energy drinks and mood swings for all

[Guest guest]

Bonnie,

I have finally had time to come back to the posts from Wed. and Thurs. I

can't remember what I wrote even.

But basically we now think Tyler has had Childhood onset Bipolar all these

years and he was in the midst of a cycle during that time frome. It came to

a head Wed. night. Biggest problem right now is because of my work I am

aware of the symptoms and my husband is not. I have numerous people who

work in this area, who I have shared my concerns with -people who deal with

really bad stuff and they are all very concerned and do not think I am

" imagining it from reading too much psychology stuff " . My bosses words (a

behavioral and developmental psychologist) were that his hair would stand on

end if he heard Tyler say the things I was hearing him say last week and

that I should be concerned.

Roy agrees that personality wise Tyler is going to have some pain as he

learns how to be an adult, but for me it is bigger than that. Picture just

sending Patty out into the world, because that was " just her makeup " and

expecting her to just learn from the pain and improve with no understanding

of what was going on inside of her that leads to obsessions or whatever and

no tools on how to manage it for herself. That is Roy's philosophy. For

me, if Tyler does have bipolar, he may not be ready to acknowledge it or

take meds for it, but I have to at least start the process now. He is 18

years old in 2 months, and then mom is not the one filling in the gaps in

the doctor's office. He plans on moving out at 18 and he is NOT READY!

Kim

For any of you who have mood cycles - do not let them drink energy drinks!

Monster, Red Bull and the like.

I was observing that when Tyler started the energy drinks he started going

into his " mania " stuff. We found a case study that actually documents a

young man with bipolar who had been stable on lithium for 5 years, who drank

3 energy drinks one night, 3 more a few nights later, and had full blown

hospitalization required mania for 7 days. Tyler has been stable on his

omega 3 fatty acids for 2 1/2 years. I have no doubt that the energy drinks

is what caused him to have this latest cycle.

> Kim,

>

> " Letting out the pain,

> makes way for more good to come in. " Oh how I love that one. Nice job but I

> was expecting nothing less from you.

>

> I missed something here. What is new with Tyler?

>

>

> Bonnie, mom to a 23, Patty CHARGE 21, and wife to

>

>

>

[Guest guest]

Kim,

So sorry to hear this. I work with a lot of people who have bipolar, some

of who have full insight, some of who do not. Those with insight have much

better luck of course in controlling the illness, recognising early onset,

seeking out the various treatments and assistance, taking preventative steps

etc. All I can wish for you under these circumstances is that Tyler does

get to a point of recognising and taking control sooner rather than later.

Bipolar is a very painful illness to live with, both for the sufferer and

family so lots of luck and I hope the steps you take to start dealing with

it are productive.

Flo

[Guest guest]

I find it very scary. Am thankful after the come down that he decided he

did not want to do the energy drinks. I guess for now that is pretty good

insight. Kim

> Kim,

> So sorry to hear this. I work with a lot of people who have bipolar, some

> of who have full insight, some of who do not. Those with insight have much

> better luck of course in controlling the illness, recognising early onset,

> seeking out the various treatments and assistance, taking preventative steps

> etc. All I can wish for you under these circumstances is that Tyler does

> get to a point of recognising and taking control sooner rather than later.

> Bipolar is a very painful illness to live with, both for the sufferer and

> family so lots of luck and I hope the steps you take to start dealing with

> it are productive.

>

> Flo

>

>

>

[Guest guest]

Kim or Flo

What is bipolar?? is it in charge or seperate??

Lesley x

>

> Kim,

> So sorry to hear this. I work with a lot of people who have

bipolar, some

> of who have full insight, some of who do not. Those with insight

have much

> better luck of course in controlling the illness, recognising

early onset,

> seeking out the various treatments and assistance, taking

preventative steps

> etc. All I can wish for you under these circumstances is that

Tyler does

> get to a point of recognising and taking control sooner rather

than later.

> Bipolar is a very painful illness to live with, both for the

sufferer and

> family so lots of luck and I hope the steps you take to start

dealing with

> it are productive.

>

> Flo

>

>

>

[Guest guest]

Lesley,

Bipolar is commonly known as " manic depression " and is a form of mental

illness/disorder. As far as I am aware, it does not appear to feature in

CHARGE but of course anyone can be susceptible to any form of mental

illness. Of course our kids have the problems of emotional regulation but

this is definitely not the same. Kim's son Tyler she is referring to in the

post does not have CHARGE. It is her other son Dylan who has CHARGE.

Flo

>

> Kim or Flo

>

> What is bipolar?? is it in charge or seperate??

>

> Lesley x

>

>

>

[Guest guest]

Kim, Kim, Kim...

Oi-vay. What do you do when the other parent doesn't get it and you're

talking about something so critical?? I have no clue. But I hope you

figure it out and come to some kind of " meeting of the minds " so that Tyler

gets the support he needs to manage as an adult. Especially considering

he'll be an adult so soon! Eegads! How did that happen?

Kim - I can only imagine the knots in your stomach and the stress you are

feeling right now. If anyone can figure it out, you can. My thoughts are

with you.

Michele W

Aubrie's mom

[Guest guest]

Kim-

Would videotaping Tyler or having him journal help him see how he changes

abruptly? Just a random thought...

Michele W

[Guest guest]

OMG DEAR KIM __BIPOLAR

Flo just explained this I thought it was Tyler = charge, but of

course its Dylan and charge, this is awful for you all. as if you

dont have enough to contend with now this.

Dont know what to say, no advice out of my league, but I know from

the postings if any mum on here could cope with this extra SH** then

you can, you're such a strong and clever women.

Either way I will be thinking of you all, and hope if there is help

for this Tyler gets it soon and by the best doctors.

Love Lesley

thanks FLO!!

> >

> > Kim or Flo

> >

> > What is bipolar?? is it in charge or seperate??

> >

> > Lesley x

> >

> >

> >

>

>

>

[Guest guest]

Hi Lesley,

My son Tyler is my oldest, who does not have CHARGE. (Believe it or not he

has taken far more mommy energy than Dylan and is responsible for the

majority of my gray hairs.) Bipolar is commonly known as manic depression.

It just looks different in kids, so is often confused with ADD until they

get older. Regardless, you all can still relate to my heart ache at one

more thing for him to have to deal with.

Kim

> Kim or Flo

>

> What is bipolar?? is it in charge or seperate??

>

> Lesley x

>

>

>

>

>>

>> Kim,

>> So sorry to hear this. I work with a lot of people who have

> bipolar, some

>> of who have full insight, some of who do not. Those with insight

> have much

>> better luck of course in controlling the illness, recognising

> early onset,

>> seeking out the various treatments and assistance, taking

> preventative steps

>> etc. All I can wish for you under these circumstances is that

> Tyler does

>> get to a point of recognising and taking control sooner rather

> than later.

>> Bipolar is a very painful illness to live with, both for the

> sufferer and

>> family so lots of luck and I hope the steps you take to start

> dealing with

>> it are productive.

>>

>> Flo

>>

>>

>>

[Guest guest]

He is back to his usual happy go lucky self, so I will try not to get sucked

back into thinking " Oh this is nothing " and let my last window before he is

18 disappear. Kim

> OMG DEAR KIM __BIPOLAR

>

> Flo just explained this I thought it was Tyler = charge, but of

> course its Dylan and charge, this is awful for you all. as if you

> dont have enough to contend with now this.

>

> Dont know what to say, no advice out of my league, but I know from

> the postings if any mum on here could cope with this extra SH** then

> you can, you're such a strong and clever women.

>

> Either way I will be thinking of you all, and hope if there is help

> for this Tyler gets it soon and by the best doctors.

>

> Love Lesley

>

>

> thanks FLO!!

>

>

>

>

>

>>>

>>> Kim or Flo

>>>

>>> What is bipolar?? is it in charge or seperate??

>>>

>>> Lesley x

>>>

>>>

>>>

>>

>>

>>

[Guest guest]

Videotaping so the doc could see the change in his eyes, the change in his

body - I sure wish I had recorded the stuff coming out of his mouth Wed.

night. Journaling for Tyler, now that would be a miracle! Kim

> Kim-

> Would videotaping Tyler or having him journal help him see how he changes

> abruptly? Just a random thought...

>

> Michele W

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or email

> info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

[Guest guest]

kim, I hope you find the answer for all of you that works. wow your life

just keeps getting more complicated. hugs from the hallorans----- Original

Message -----

To: <CHARGE >

Sent: Sunday, January 15, 2006 1:49 PM

Subject: RE: Why am I so sad/ Now Tyler for Bonnie, energy drinks

and mood swings for all

> Kim-

> Would videotaping Tyler or having him journal help him see how he changes

> abruptly? Just a random thought...

>

> Michele W

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>