Amelie - at last I can see the light!!!!!

[Guest guest]

Dear Charge clan

I feel at peace with myself today, lots of developments, our so

called tube that needed to come from America came from Gloucester in

the UK, so I dont know what all the hype was about, they do come

from America but we must import them , no big deal, except someone

mentioned the courier service was an extra £28.00, the doctor saw my

face, and said 'oh no worries just order it' Darren jokingly said do

you want my debit card!!

Amelie was taken to radiography where under the xray and barium they

passed it from the stomach to the jejunum. She managed to struggle,

which was sad but good it means she is getting back to her little

ways, she hasnt been starved of o2 ( at least I dont think so) ,

because today she gave a little lob sided smile and chuckle,it was

just like before the old Amelie I was delighted, despite the fact

she has lost weight and does look frail.

We did get to speak to the top team Bianchis guy Mr Morabito & Mrs

Kauffman, and discussed Amelies options in depth, In view of the

respiratory arrest and two cardiac arrests we are going with the

dissociation, I know some of you will be cringing, but we dont want

the resposibility of risking a repeat nissen and another GA and it

fail, and he gave us the percentage for all nissens not just charge

nissens, and if it fails she will go down hill, rapidly, so we think

better to do the dissociation and have done with, the stomach will

not be able to regurgitate back up the oesophagus, and this will

give Amelie the chance she needs to cure the state her lungs are in.

There will not be a rush to do this they need her lungs stronger for

the GA, they are hoping the j tube will keep the weight on her and

she hopefully wont reflux during this time, so the lungs in theory

should improve, however!!! if she gets 'dumping syndrome' where I

think the food doesnt get absorbed in the ileum, then the surgery

will be sone sooner rather than later, so this next week they will

weigh and observe what she does next, and keep the vigourous physio

up, she is better in her self not as weepy, which is wonderful for

us as parents.

Whilst we are not looking forward to the risks of the surgery, we

feel its the only way forward, and to hopefully get her home, even

better it would be fantastic if the j tube worked and she needed no

surgery but I doubt this, as she had one before for 5 days and she

had chronic diarrhoea.

fingers crossed

Lesley Mum to le Olivia Fleur and AMELIE WHO WILL BE 1 A

BIRTHDAY GIRLIE ON TUESDAY 10TH JANUARY 2006- WHAT A BLOODY YEAR!!

at least shes still here!!!!!!

[Guest guest]

,

Glad that you are feeling peace today and things are looking better. Looks

like things are finally going your way, Hopefully the J-tube will work wonders

for Amelie. I know it did for . I know of another mom who's little girl

who had the dumping syndrome. She went to Cincinnati to see the feeding team who

basically cured or stopped the problem.She said it was a miracle and her little

girl is now doing good. If you want, I can contact her and she can e-mail you

privately about what they had to do. I think her daughter has a G-tube though,

and not the J-tube, but she may still be able to give you some advice on how to

manage the dumping if it ever happens again. Hopefully it was just a one time

thing. I am praying for Amelie to receive strength and good health and that it

will stay that way. I am going to think positive, positive, positive!!!!!

Praying that you will have peace and strength in all that you do. Feeling

those " good vibrations " all the way over here in America!

n-mom to 3yrs.(CHARGE) and her 3 siblings and wife to Lester.

n-mom to Zach 9, Jordan 6, 2-CHARGE,and Candace 1

---------------------------------

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

>

> ,

>

> Glad that you are feeling peace today and things are looking

better. Looks like things are finally going your way, Hopefully the

J-tube will work wonders for Amelie. I know it did for . I

know of another mom who's little girl who had the dumping syndrome.

She went to Cincinnati to see the feeding team who basically cured

or stopped the problem.She said it was a miracle and her little girl

is now doing good. If you want, I can contact her and she can e-mail

you privately about what they had to do. I think her daughter has a

G-tube though, and not the J-tube, but she may still be able to give

you some advice on how to manage the dumping if it ever happens

again. Hopefully it was just a one time thing. I am praying for

Amelie to receive strength and good health and that it will stay

that way. I am going to think positive, positive, positive!!!!!

>

> Praying that you will have peace and strength in all that you

do. Feeling those " good vibrations " all the way over here in America!

>

>

> n-mom to 3yrs.(CHARGE) and her 3 siblings and wife

to Lester.

>

>

>

> n-mom to Zach 9, Jordan 6, 2-CHARGE,and Candace 1

>

>

> ---------------------------------

> Yahoo! DSL Something to write home about. Just $16.99/mo. or less

>

>