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PSC and hearing loss

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I lost all the hearing in my left ear over night a two years ago. When

I got up I lost my balance then I could hear this un-godly hiss in my

ear and ringing (sounded like the bell on a cats collar). An hour later

I could not hear the telephone dial tone. It was the most horrifying

experience. I could not sleep. Truly devastating. With the help of a

high dose of Prednisone and Acylovir I was able to regain some of my

hearing, but I still have the tinnitus, and I still lose my balance at

times. I had an MRI done to look for an acoustic neuroma, but

everything was clear..most likely it was related to my PSC and Crohns.

Eventually a person does adjust to the hearing loss...avoid high

decibel noise if possible.

Andi, PSC, Crohns 2001/2002

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