Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 Hiya Luny... Checked out your website and I could have written that letter myself, you took the words right out of my mouth. On the leg pains, yes, the hot baths do help...but only for a bit, maybe 1/2 hr. I do hop in my spa2go and it helps also. But I worry about getting dizzy when I'm in it and my hubby isnt home. Lying flat feels good, but I cant go to sleep that way, I'm very large chested and it feels like it strangles me to sleep or lay that way for long. I wish you all some good rest and pain free nights and days. Hugs, K. -- K. Awww, , that's just not good, honey. I sure hope you will have a better night tonight. Do you ever try soaking in a hot bath to relieve the leg pains? I'm just asking because I don't know as I have never tried it. I hope you can grab some time to just lie flat and relax a bit because if anyone sounds like they need it, you sure do. Wishing you some good rest and no pain... Hugs, Luny :] LunytunerMichele http://twistedkneads.com http://lunytuner.wordpress.com/ K. wrote >>>But tonight has been a rough night for me, leg pains, the burning ones that feel like your legs are on fire. Toss in a little RLS with it, and that's how my legs feel. Now my head is also hurting, I was rubbing it too hard today and upset my fibro ropes back there, grrr. <<< Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2008 Report Share Posted January 3, 2008 Dear Luny, This is the third time I've tried to write to you. I keep deleting everything I've written when I try to delete the bottom part. I think I won't even try this time. I want to join in with all the others who have written you. You are truly amazing. You are an inspiration to all of us. I have been through trying times, but you have not only pulled through desperate times, you have come through them wonderfully and are an encouragement to anyone going through anything even close to what you have. You have inspired me to dig deeper and try to find the dreams that I have given up on and see if they are still there and if any of them are still workable. You are so right about hugs and a smile. They can change my day entirely. Since I don't see many people cooped up alone here I don't get that often. But when I do I love it. Human touch is really important. I'm working on getting back to my volunteering so that I can be around people again and maybe help someone along the way. I feel like a lump of clay sitting here contributing nothing to society. I will keep your words in mind when I try to venture out again. Thanks, Marti Kate Court wrote: Luny You really are amazing. I would not trade my cancer/convent experience for your tent ever. I hate camping. your kids for mine well I hope mine group up to be like yours. Bonnie Luny What a special lady you are, Luny. I can't imagine being able to care for 4 kids as a single mom and live in a tent for a year. That's amazing. You're amazing. I'm so glad you a part of our group now, because you are an inspiration. Jeanne in WI > Hey ... you don't know how good you made me feel or how much I > appreciate your wonderful comments about my letter. Sometimes we just pour > our hearts out and hope that someone, somewhere will find a little > something that helps them know that they are not alone. I'm honored that > you printed it out for future reference. Maybe we can't help cure people > or solve all their problems but we can encourage and inspire them whenever > we can. I can remember times when someone has said something really nice > to me or given me a hug and it really does brighten the day. We all need > bright spots in our day. > > I do understand the lethargic state of mind and how it can bring you down. > I think that is the worst part for me. In my mind, beneath all that fog > and lethargy, I know my dreams and ambitions still exist ... they are just > hard to get to.. The biggest challenge for us is staying positive but > sometimes our minds are so tired we have to struggle just to get through > the day and not crawl back into our little caves where we can curl up and > just let the world go by. It's very tempting to go to that comfortable > little cave ... away from responsibility, rude remarks, noisy life ... > it's so much easier to go to our cave and be left alone. Sometimes I think > we should do that because we need to recuperate but we have to force > ourselves to be a part of life too. It's really hard to do because WE know > how we feel and WE understand what we are going through so the only people > we are ever really comfortable with is ourselves. > > I know about being dirt poor. I was a single Mom of four and there were > times when I couldn't buy shoes or school supplies and there were many > times our dinner was Cool Aid and popcorn. Macaroni and cheese was like > Thanksgiving for us. Still, God was very good to us because we made it > through the hard times and I have some pretty decent kids. At one time, we > lived in a pop-up tent for about a year in a cheap campground but I just > pretended we were " camping " for fun and we made it through that too.. If if > had been just me things would have been easier but I had four babies to > worry about and I think that was probably a good thing because I had to be > responsible. Otherwise I might have just drifted along doing nothing with > my life. I think I'm lucky. Like most everyone here, I have been through a > lot and no matter how bad it would get, somehow, I survived. I'm still > here. I'm stronger. No matter how tired I am or how bad the pain or fog > gets I know I am here for a reason. I sure as heck don't know that reason > is but I'm still here. It has to mean something. > > You said .... " Today I choose to do the best I can w/what I have. " ... > there's a lot of heart in those words. There's two very important words > there too.... TODAY and CHOOSE. Remember that , , you are the captain > of your ship and you get to CHOOSE your own direction. > > Big hugs to you!! > > Hugs, Luny :] > LunytunerMichele > http://twistedkneads.com > http://lunytuner.wordpress.com/ 1. While it is wonderful to share our experiences with everyone on the list as to what treatments do and don't work for us, pls always check with your dr. Some treatments are dangerous when given along with other meds as well as to certain health conditions or just dangerous in general. 2. If you are in a difficult situation (doesn't matter what it is) pls don't be afraid to ask for help. It is the first step to trying to make that situation better. 3. To unsubscribe the e-mail is: Fibromyalgia_Support_Group-unsubscribe 4. Also, it is not uncommon for more than one member to be feeling bad at the same time when it comes to flares and b/c of that potentially take something another member says the wrong way.. And that includes the things that one member may find funny (even if it's laughing at fibro itself) even though we who deal with illness whether one such as fibro or multiple illnesses try to keep a sense of humor. 5. Pls let's be gentle with each other, and if you are having a bad day pls let us know so that we can do our best to offer our support. Have a nice day everyone. Quote Link to comment Share on other sites More sharing options...
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