Re: Re: Diamox

[Guest guest]

Well btn Macie, and Jess.....can't help but think there is a

connection somewhere, I just have trouble holding my head together long

enough to quite figure it out. we intially went over a year and a half

seizure free on the diet, tried to treat kidney stone issues and messed

up the acidity. Then through a comedy of errors we kept messing up

acidity again and again. Finally her body would no longer hold the

acidity, it had found some way to fight it. Then two years seizure free

with the diet and diamox and BAMM - all he** breaks loose. At that

point it was five yeras on the diet. Perhaps her body has just had

enough.....the ketosis, the lack of growth

I know of others who had great control on the diet for quite a while and

then just lost it, some for no apparent reason, one where the guidance

counsellor at school gave the kid a regular coke and then even with

fasting ,there was no getting him back into ketosis again. Perhaps our

kids' bodies are smater than we are.......?

jgmsteele@... wrote:

> Hi ,

> Just wanted you to know I'm keeping Jess in my thoughts and

> prayers, too. I know she has a dedicated momma willing to go to the

> ends of the earth for her. I know the drugs must feel like a big

> disappointment, after Jess did so well for so long. I have similar

> feelings about Macie and her backslide...I don't want to do the

> drugs again unless absolutely necessary, but I don't want to be

> stubborn about it either if it will help her. That's the trouble,

> we don't know the answer until we try (i.e. experiment). I just

> wish I could go back in time and figure out why things worked so

> well for so long and figure out how to get that back, and I just

> wish I could find some doctor who would be as interested in her and

> as interested in the diet as I am....wouldn't we all love that.

> Maybe in our spare time we should all go to medical school.

>

> Take care,

>

> Glenna