EDS ... Re: Hearing Problems ... acoustic neuroma ...

[Guest guest]

In a message dated 8/7/2003 2:30:25 PM Eastern Daylight Time,

socaligal@... writes:

> often watch peoples lips when they talk and even turn my head so my good

> right ear is closer to them.

Hi all,

Well, my right ear was perforated years ago and I also had to turn my head to

hear better. If you spoke to me from my right side I could not hear the

person. After treatment I got better. Nowadays I think I have a permanent

" stretchy " ear perforation because when I blow my nose, air goes through my

right

ear... Woe is little ole EDSer me :->.

Back then, I could not hear well with the ear, but if I angled it just right

I could hear ... weird. They also said I had acoustic neuroma ... maybe.

Here is that EDS article again as it relates to hearing. I might have already

posted it. Caro

+++

Ehlers-Danlos Syndrome

Ehlers-Danlos Syndrome is a rare syndrome that, among other things, can cause

a defect in the sound conducting mechanism of the middle ear, and which may

result in hearing loss. Normally when sound waves enter the ear they are

conducted from the middle ear to the inner ear by three tiny bone joints called

the

hammer, the anvil and the stirrup. But due to the syndrome the joints may

become hypermobile. This may cause the sound not to be conducted effectively

from

the middle to the inner ear.

Patients suffering from hearing loss caused by Ehlers-Danlos Syndrome may

find that hearing aids are the most effective remedy.

In addition, Ehlers-Danlos Syndrome may cause other symptoms such as skin or

heart problems. Basically, the syndrome is a defect in the connection tissue

in the body. The defect is caused by a mutation in the genes which control the

formation of albumen (protein) from which the connective tissue is built. The

syndrome is hereditary.

Search for Otitis Media, Pendred Syndrome or Ménière´s in our <A

HREF= " http://www.youth.hear-it.org/page.dsp?area=534 " >web-lex</A>

Diseases:

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=864 " >Diseases of a

delicate instrument</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1855 " >Otosclerosis</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1856 " >Glue ear</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1857 " >Loudness

discomfort</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1858 " >Hyperacusis</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1859 " >Usher´s

Syndrome</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1860 " >Acoustic

Trauma</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1861 " >Patulous

Eustachian tube</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1862 " >Acoustic

Tumours</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1863 " >Ehlers-Danlos

Syndrome</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=1864 " >Pendred

Syndrome</A>

<A HREF= " http://www.youth.hear-it.org/page.dsp?page=2057 " >Autoimmune Inner

Ear Disease</A>