Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 A few thoughts... One question, why did you give her carbs for the PET? Do you mean the glucose tracer or something else? Jake has had two PETS on the diet, but never carbs or after effects. Re: Keppra, we just started it a few months ago. Both our neuros warned about starting on too high a dosage. Jake is 7 and 47lbs. We started on 62.5 mg twice a day, so 1/2 tablet TOTAL per day. We've gradually worked up to 250 mg per day, or one whole tablet. He takes 1/2 am and 1/2 pm. We've considered pushing it up, and my neuro says his max is 500 per day - that's what the neuro feels comfortable with. We've actually seen an increase in seizures over the past few months, drops and grand mals. I'm suspicious of the Keppra. Last I was in they advised me to push it up by 1/2 tablet every two weeks and see what happens. The four outcomes they predicted were: 1. Worse seizures (more and longer) 2. Worse behavior 3. Worse seizures and behavior 4. Fewer seizures They said that if we saw anything 1-3, they would discontinue Keppra immediately. So...that's where we are. I actually have not raised it yet for a number of reasons. We've been travelling, and that's always a bad time to rock the boat. I've also started cranial osteopathic work on Jake and it seems to be helping, so I've held on the Keppra and am trying this first. If she hasn't had a drop in 5 years, and she's having drops, I would strongly suspect the Keppra. maybe back off on the dose a bit and see what happens? Barb Swoyer, Jake's mom, Boston Keppra question > We started Hannah on 500mg Keppra 4 or 5 nights ago. She had been > having about 1 seizure per night since her PET Scan (Had to give her > carbs then and haven't regained control yet). > > On the third and fourth day, she had a seizure while awake (drop > type). This is the first time in 5 years that we have seen an awake > seizure. > > Does anyone have experience with Keppra causing seizures? Any > thoughts, theories, etc? > > By the way, it certainly seemed to help at night. She didn't have > any for the three nights we gave it to her. > > Thanks for any replies. > > > > > " The Ketogenic Diet....a realistic treatment option, NOT just a last resort! " > > List is for parent to parent support only. > It is important to get medical advice from a professional keto team! > Subscribe: ketogenic-subscribe > Unsubscribe: ketogenic-unsubscribe > > > > Quote Link to comment Share on other sites More sharing options...
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