Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Hi Lesley, Good to see you found us! Wecome!! You will love it here. We are a little crazy but that makes it all the more fun. Enjoy. Zanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 Welcome Lesley My name is Melita and I was dx with PM only recently. Just jump right in whenever you feel the need. This group is GREAT!!! Remember >>>>There is never a dumb question and you can never write to much. We are here to help each other. Melita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi Lesley! I have DM, too. How are you doing? Are you on prednisone? Annette help - I'm new! Hi Zanna and all of your friends on this board. I'm Lesley, aged 47 and was diagnosed with dm two years ago. I am married to and have three gorgeous daughters. I've already looked at some of the photos here and think it is wonderful to be able to put a face to a name. Hope to hear from someone soon, with love Lesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi Lesley! I'm Lynn, dx'd with DM. What kind of meds do you take? From your e-mail address, I guess you are Australian and not exactly an Arnold Schwarztenegger!! How old are your daughters? Looking forward to getting to know you! Lynn help - I'm new! Hi Zanna and all of your friends on this board. I'm Lesley, aged 47 and was diagnosed with dm two years ago. I am married to and have three gorgeous daughters. I've already looked at some of the photos here and think it is wonderful to be able to put a face to a name. Hope to hear from someone soon,with loveLesley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2002 Report Share Posted April 21, 2002 Hi Lynn, It's great to " meet " you! Yes, I have the dreaded DM, diagnosed two years ago although I've had symptoms for about 15years on and off. I am presently taking 10mg of pred per day, 10mg of methotrexate per week and ivig every 3 months. I also take efexor 75mg for depression although don't think I was ever really depressed, just anxious about not being diagnosed. I am blessed with a wonderful husband, and my daughters are 23, 21 and 20. Their names are , Tori and and they are all very different but good friends. is the only one still living at home and is in her second year of photography. How about you? I'd love to hear your story, and everyone else's of course! Yes, I am an Aussie from Melbourne and have never met another myositis person. With love to all, Lesley > >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: help - I'm new! >Date: Sun, 21 Apr 2002 10:36:41 -0400 > >Hi Lesley! > >I'm Lynn, dx'd with DM. What kind of meds do you take? From your e-mail >address, I guess you are Australian and not exactly an Arnold >Schwarztenegger!! > >How old are your daughters? > >Looking forward to getting to know you! > >Lynn > > help - I'm new! > > > Hi Zanna and all of your friends on this board. I'm Lesley, aged 47 > and was diagnosed with dm two years ago. I am married to and > have three gorgeous daughters. I've already looked at some of the > photos here and think it is wonderful to be able to put a face to a > name. Hope to hear from someone soon, > with love > Lesley > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Hi Annette, Oh yeah! I'm on prednisone or prednisolone as it is called here. I have tapered down to 10mg from 50mg but still feel that my face is too fat. My neuro doesn't want to take it down any more as my rash keeps flaring. I'm also taking methotrexate and ivig. How long have you had dm for? Hope you are feeling good, With love from Lesley > >Reply-To: OurMyositis >To: <OurMyositis > >Subject: RE: help - I'm new! >Date: Sun, 21 Apr 2002 05:47:26 -0400 > >Hi Lesley! I have DM, too. How are you doing? Are you on prednisone? >Annette > > help - I'm new! > > >Hi Zanna and all of your friends on this board. I'm Lesley, aged 47 >and was diagnosed with dm two years ago. I am married to and >have three gorgeous daughters. I've already looked at some of the >photos here and think it is wonderful to be able to put a face to a >name. Hope to hear from someone soon, >with love >Lesley > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Hi Zanna, Yes, I've arrived! AND I've never had so much mail in my life! I see I now have a whole new cyber family. I have taken a look at the photos on this board and have now seen what you all look like. What a lovely family you have and isn't Kylie just beautiful! And Brodie too of course! You and your husband look so young and happy, drat this wretched disease. I'll speak to you soon, With love from Lesley >From: wischic68@... >Reply-To: OurMyositis >To: OurMyositis >Subject: Re: help - I'm new! >Date: Sun, 21 Apr 2002 01:15:37 EDT > >Hi Lesley, >Good to see you found us! Wecome!! You will love it here. We are a little >crazy but that makes it all the more fun. Enjoy. >Zanna _________________________________________________________________ MSN Photos is the easiest way to share and print your photos: http://photos.msn.com/support/worldwide.aspx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Hi Lesley... I've had DM for ten years (or more...I remember noticing some changes a few years before the " big flare " ). I do very well (in my own opinion, that is). :-) I don't have much endurance, so I manage to do as much as I can early in the day and then crash in my recliner from 3 or 4 p.m. on. Works for me so far. I use a cane to help keep my balance...no one knows why, but my left side is 50% weaker than the right side, so I have a pronounced limp. Stay in touch, Annette help - I'm new! > > >Hi Zanna and all of your friends on this board. I'm Lesley, aged 47 >and was diagnosed with dm two years ago. I am married to and >have three gorgeous daughters. I've already looked at some of the >photos here and think it is wonderful to be able to put a face to a >name. Hope to hear from someone soon, >with love >Lesley > > > > > > Quote Link to comment Share on other sites More sharing options...
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