Guest guest Posted August 22, 2003 Report Share Posted August 22, 2003 Hi , You may want to look in the files section (the box on the left) under Andy Index to find out more specifics about chelating and the supplements. It's got some great information. If I remember correctly, it seems to mention that you should be on the supplements for at least a couple of weeks before starting chelation. You also want to start the supplements one at a time so that you know what your child is reacting to, meaning if you introduced a new supplement three days ago and your child's behavior is really off, then you can suspect the supplement and take it away to see if the off behavior goes away. If I remember correctly, Vitamin C, Vitamin E, magnesium and zinc are very important to take before chelating. That's about all I can remember right now, but the files will tell you so much more. Happy reading and take care, Becky in Chesapeake, VA P.S. I like your answer to another member in another group you happen to be in, but you may want to know that that particular member is on the autism spectrum, so going back and forth in replies would not help much. > I got my shipment from Kirkman's of ALA (and other supplements). I > was planning to start chelating my son today. I really want to get a > couple rounds in before school starts. Earlier today my son got sick > (vomiting). I think it is a 24 hour flu since my other son had it > yesterday but fine today. How long should I wait before I start > chelation? Could I start next week? > Maybe it is better this way so I can start him on supplements first > then chelating a week later. That way if there is any reaction I can > pinpoint it better. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2003 Report Share Posted August 25, 2003 Thank you for your suggestions. My son has already been on zinc, magnesium, calcium, Vitamin C and TMG for over a year. I recently got Milk Thistle since I have read it is helpful to protect the liver but have not yet tried it. I also just got the EFA powder from Kirkman's which I have yet to try. I have tried flax seed oil before and could not get him to take it. I have never tried cod liver oil since he is allergic to fish. I will probably try the EFA first then the milk thistle before starting chelation. > > I got my shipment from Kirkman's of ALA (and other supplements). > I > > was planning to start chelating my son today. I really want to > get a > > couple rounds in before school starts. Earlier today my son got > sick > > (vomiting). I think it is a 24 hour flu since my other son had it > > yesterday but fine today. How long should I wait before I start > > chelation? Could I start next week? > > Maybe it is better this way so I can start him on supplements > first > > then chelating a week later. That way if there is any reaction I > can > > pinpoint it better. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 oops my bad, I just reread your post and you said your scarring was at 2. Is that 2 cirrhosis or 2 fibrosis? Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Hi and welcome to the group! My advice? Do NOT do hep treatment while on chemo. In fact, you may not be able to do hep treatment at all. A lot depends on what kind of cancer and treatment you had. I say this because ribavirin is a carcinogen (cancer causing agent). I have heard some doctors say they will not treat with riba too soon to a patient having undergone certain cancer treatment or having cancer. Chemo doesn't make you feel good. Hep treatment won't make you feel good either. No reason to make you feel worse. Also, if you insist on doing hep treatment, I'd wait at least a year after the chemo to do the hep treatment so that the chemo has a chance to flush out of your system. I just talked to one lady who did her chemo several years ago and was put in the hospital the other day because her body had just accumulated so much chemo and it wore down her immune system so much, that she just collapsed. Hep C is usually a slow moving disease. What determines whether you need treatment, for the most part, is your liver biopsy. <<I have a feeling that the viral load will be exponentially worse in two months and hence harder to clear. >> Viral loads fluctuate. And the viral load really is no indicator of your illness. Flushing the chemo out of your body will go a long long way in allowing your body to return to normal, and will probably (I say probably because I'm no doctor) return your liver enzymes to a reasonable level. (Liver enzymes also fluctuate, often due to the medications we take like chemo, or even aspirin.) I finished high dose interferon treatment (the standard treatment) for malignant melanoma in Dec 2002. I most likely will NEVER do ribavirin again, EVER. Melanoma is just too risky. That's why I say a lot depends on your cancer and your meds. While I was on the high dose interferon, my liver enzymes rose. They returned to normal when I finished. I'm still flushing the crap from my body and trying to get my energy back. I did a year of standard hep c treatment before I did the high dose interferon, neither of which eliminated the virus (I'm genotype 1b). Fortunately, my liver biopsy is good, mild inflamation, so I'll probably never have to worry about a liver transplant in this lifetime. I still have to take care of myself, get biopsys, labs etc. So my advice would be a big not only NO but HELL NO. Chemo and the hep treatment are serious drugs and they can seriously mess you up. Flush the chemo from your system some before remedicating it again. Get a liver biopsy and see if you even need treatment. Nice to meet you! Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Hi and welcome to the group! My advice? Do NOT do hep treatment while on chemo. In fact, you may not be able to do hep treatment at all. A lot depends on what kind of cancer and treatment you had. I say this because ribavirin is a carcinogen (cancer causing agent). I have heard some doctors say they will not treat with riba too soon to a patient having undergone certain cancer treatment or having cancer. Chemo doesn't make you feel good. Hep treatment won't make you feel good either. No reason to make you feel worse. Also, if you insist on doing hep treatment, I'd wait at least a year after the chemo to do the hep treatment so that the chemo has a chance to flush out of your system. I just talked to one lady who did her chemo several years ago and was put in the hospital the other day because her body had just accumulated so much chemo and it wore down her immune system so much, that she just collapsed. Hep C is usually a slow moving disease. What determines whether you need treatment, for the most part, is your liver biopsy. <<I have a feeling that the viral load will be exponentially worse in two months and hence harder to clear. >> Viral loads fluctuate. And the viral load really is no indicator of your illness. Flushing the chemo out of your body will go a long long way in allowing your body to return to normal, and will probably (I say probably because I'm no doctor) return your liver enzymes to a reasonable level. (Liver enzymes also fluctuate, often due to the medications we take like chemo, or even aspirin.) I finished high dose interferon treatment (the standard treatment) for malignant melanoma in Dec 2002. I most likely will NEVER do ribavirin again, EVER. Melanoma is just too risky. That's why I say a lot depends on your cancer and your meds. While I was on the high dose interferon, my liver enzymes rose. They returned to normal when I finished. I'm still flushing the crap from my body and trying to get my energy back. I did a year of standard hep c treatment before I did the high dose interferon, neither of which eliminated the virus (I'm genotype 1b). Fortunately, my liver biopsy is good, mild inflamation, so I'll probably never have to worry about a liver transplant in this lifetime. I still have to take care of myself, get biopsys, labs etc. So my advice would be a big not only NO but HELL NO. Chemo and the hep treatment are serious drugs and they can seriously mess you up. Flush the chemo from your system some before remedicating it again. Get a liver biopsy and see if you even need treatment. Nice to meet you! Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 IH.Welcome to the group.This is a question for the Doc.,we have a Doc. on the group.If I were you (my personal opinion!!)I would wait untill the chemo is finished,three months more would.nt make much differents.. You should ask for a biopsy,ALT and AST levels are no indication of the state of your liver.If you mean by standard treatment interferon and ribavarine,not the pegylated interferon,pegasys,I would not do treatment.Only do treatment with the new Pegylated interferon from Roche .1b.s are difficult to treat with the old standard treatment.Goodluck and you need it!.Willem. When to start Hi I am new to this group. I was wondering whether I should start the standard treatment for hep C now or wait until I finish chemotherapy for another cancer. My viral load was 14,000 when they caught it, two months later it was 44,000 and four months later it was 200,000. That last test was done three months ago. I finish chemo in March. I am a genotype 1b. The level of scarring is anywhere between a 1 - 3, with two of my doctors agreeing to accept it at 2. My ALT and AST levels have ranged from 2 to 10 times normal since April while on the chemo, more so on the lower end of the scale. I have been told that I should wait until after the chemo to begin treatment. One of the doctors told me that I had acute and should start treatment now. The other doctors agreed that I should wait to treat one terminal illness at a time. My question is: I am nearing the end of the chemotherapy -- come mid march I will be finished. I have a feeling that the viral load will be exponentially worse in two months and hence harder to clear. I have to get rid of this in order to be more agressive with my cancer, which, has not grown back, but it will--it is just a matter of time. What opinions are there for treating now vs in three months? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 IH.Welcome to the group.This is a question for the Doc.,we have a Doc. on the group.If I were you (my personal opinion!!)I would wait untill the chemo is finished,three months more would.nt make much differents.. You should ask for a biopsy,ALT and AST levels are no indication of the state of your liver.If you mean by standard treatment interferon and ribavarine,not the pegylated interferon,pegasys,I would not do treatment.Only do treatment with the new Pegylated interferon from Roche .1b.s are difficult to treat with the old standard treatment.Goodluck and you need it!.Willem. When to start Hi I am new to this group. I was wondering whether I should start the standard treatment for hep C now or wait until I finish chemotherapy for another cancer. My viral load was 14,000 when they caught it, two months later it was 44,000 and four months later it was 200,000. That last test was done three months ago. I finish chemo in March. I am a genotype 1b. The level of scarring is anywhere between a 1 - 3, with two of my doctors agreeing to accept it at 2. My ALT and AST levels have ranged from 2 to 10 times normal since April while on the chemo, more so on the lower end of the scale. I have been told that I should wait until after the chemo to begin treatment. One of the doctors told me that I had acute and should start treatment now. The other doctors agreed that I should wait to treat one terminal illness at a time. My question is: I am nearing the end of the chemotherapy -- come mid march I will be finished. I have a feeling that the viral load will be exponentially worse in two months and hence harder to clear. I have to get rid of this in order to be more agressive with my cancer, which, has not grown back, but it will--it is just a matter of time. What opinions are there for treating now vs in three months? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Hi.Misred the mail,you did have a biopsy.Willem. When to start Hi I am new to this group. I was wondering whether I should start the standard treatment for hep C now or wait until I finish chemotherapy for another cancer. My viral load was 14,000 when they caught it, two months later it was 44,000 and four months later it was 200,000. That last test was done three months ago. I finish chemo in March. I am a genotype 1b. The level of scarring is anywhere between a 1 - 3, with two of my doctors agreeing to accept it at 2. My ALT and AST levels have ranged from 2 to 10 times normal since April while on the chemo, more so on the lower end of the scale. I have been told that I should wait until after the chemo to begin treatment. One of the doctors told me that I had acute and should start treatment now. The other doctors agreed that I should wait to treat one terminal illness at a time. My question is: I am nearing the end of the chemotherapy -- come mid march I will be finished. I have a feeling that the viral load will be exponentially worse in two months and hence harder to clear. I have to get rid of this in order to be more agressive with my cancer, which, has not grown back, but it will--it is just a matter of time. What opinions are there for treating now vs in three months? Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 In a message dated 1/22/2004 2:21:44 PM Eastern Standard Time, brdietrich@... writes: > Hi I am new to this group. I was wondering whether I should start > the standard treatment for hep C now or wait until I finish > chemotherapy for another cancer. My viral load was 14,000 when they > caught it, two months later it was 44,000 and four months later it > was 200,000. That last test was done three months ago. I finish > chemo in March. I am a genotype 1b. The level of scarring is > anywhere between a 1 - 3, with two of my doctors agreeing to accept > it at 2. My ALT and AST levels have ranged from 2 to 10 times > normal since April while on the chemo, more so on the lower end of > the scale. I have been told that I should wait until after the > chemo to begin treatment. One of the doctors told me that I had > acute and should start treatment now. The other doctors agreed that > I should wait to treat one terminal illness at a time. My question > is: I am nearing the end of the chemotherapy -- come mid march I > will be finished. I have a feeling that the viral load will be > exponentially worse in two months and hence harder to clear. I have > to get rid of this in order to be more agressive with my cancer, > which, has not grown back, but it will--it is just a matter of > time. What opinions are there for treating now vs in three months? > > Thank you > Given what you're going through, I wouldn't double up on treatment. Also, the current cancer treatment is probably effecting your liver enzymes. It may be that some of that will get better, after the current treatment is finished. We'll be praying for you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 I have a lady friend who just finished breast cancer treatment. She knew she had cirrhosis before the cancer. She was not allowed to do the hep c treatment and was given the option to do Tamafloxin for the breast cancer because it's so liver damaging. She chose not to do it. What cancer did you have, may I ask? Alley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Thanks for the responses. I have a primary brain tumor. They rarely ever spread outside of the nervous system. The problem is, this is considered a terminal cancer. I have what is called an anaplastic astrocytoma grade III. If I follow the statistics, I may have three to five years. My goal is to get into a clinical trial but cannot because they found the hep C. So I am trying to get rid of the hep c as soon as I finish the chemo on the brain. I think I really need some good medical advice/recommendations--I followed Dr. Herrera from the hepatitis neighborhood web site to this forum. Can you help me to get in touch with any doctors on this list? Maybe even Dr. Herrera? I am not a simple case--obviously. But I do have an abudance of faith and strength (for right now) and a willingness to try new things. I started the chemo for the BT in 5/02 and will finsish this March. I think we need a definitive answer on whether the hepc interfeuron + rib would actually hasten the return of my tumor--which is stable so far--praise God. As far as scarring scales and the like. Here is what my biopsy says: FINAL DIAGNOSIS " CHRONIC HEPATITIS C WITH MILD ACTIVITY (GRADE 2) AND PERIPORTAL FIBROSIS (STAGE 2) " MICROSCOPIC DESCRIPTION LIVER (NEEDLE BIOPSY) The sections show small pieces of benign liver tissue. Portal triads are expanded by a chronic inflammatory cell infiltrate that focally extends beyond the limiting plate. No significant acute inflammation is present. No granulomata are present. No bile stasis is seen. Within the lobules, a mild steatosis is noted. Mild lobular chronic inflamation is also present. A few individually necrotic hapatocytes are identified. No significatn cholestasis is seen. Special stains for fibrous tissue (reticulin and trichrome) show fibrous portal expansion and periportal fibrosis. A few foci are also suspicious for bridging fibrosis, but the small size of the tissue fragments precluds good assessment. Stainable iron is somewhat increased, and appears localized within Kupfer cells and hepatocytes. All control stains are appropriate. > I have a lady friend who just finished breast cancer treatment. She knew she had cirrhosis before the cancer. She was not allowed to do the hep c treatment and was given the option to do Tamafloxin for the breast cancer because it's so liver damaging. She chose not to do it. > > What cancer did you have, may I ask? > > Alley > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Thanks for the reply. Yes, could I get a doctor's opinion on this? I would really appreciate it. Here is a reply I sent to another group member for easy reference: Thanks for the responses. I have a primary brain tumor. They rarely ever spread outside of the nervous system. The problem is, this is considered a terminal cancer. I have what is called an anaplastic astrocytoma grade III. If I follow the statistics, I may have three to five years. My goal is to get into a clinical trial but cannot because they found the hep C. So I am trying to get rid of the hep c as soon as I finish the chemo on the brain. I think I really need some good medical advice/recommendations--I followed Dr. Herrera from the hepatitis neighborhood web site to this forum. Can you help me to get in touch with any doctors on this list? Maybe even Dr. Herrera? I am not a simple case--obviously. But I do have an abudance of faith and strength (for right now) and a willingness to try new things. I started the chemo for the BT in 5/02 and will finsish this March. I think we need a definitive answer on whether the hepc interfeuron + rib would actually hasten the return of my tumor--which is stable so far--praise God. As far as scarring scales and the like. Here is what my biopsy says: FINAL DIAGNOSIS " CHRONIC HEPATITIS C WITH MILD ACTIVITY (GRADE 2) AND PERIPORTAL FIBROSIS (STAGE 2) " MICROSCOPIC DESCRIPTION LIVER (NEEDLE BIOPSY) The sections show small pieces of benign liver tissue. Portal triads are expanded by a chronic inflammatory cell infiltrate that focally extends beyond the limiting plate. No significant acute inflammation is present. No granulomata are present. No bile stasis is seen. Within the lobules, a mild steatosis is noted. Mild lobular chronic inflamation is also present. A few individually necrotic hapatocytes are identified. No significatn cholestasis is seen. Special stains for fibrous tissue (reticulin and trichrome) show fibrous portal expansion and periportal fibrosis. A few foci are also suspicious for bridging fibrosis, but the small size of the tissue fragments precluds good assessment. Stainable iron is somewhat increased, and appears localized within Kupfer cells and hepatocytes. All control stains are appropriate. > IH.Welcome to the group.This is a question for the Doc.,we have a Doc. on the group.If I were you (my personal opinion!!)I would wait untill the chemo is finished,three months more would.nt make much differents.. You should ask for a biopsy,ALT and AST levels are no indication of the state of your liver.If you mean by standard treatment interferon and ribavarine,not the pegylated interferon,pegasys,I would not do treatment.Only do treatment with the new Pegylated interferon from Roche .1b.s are difficult to treat with the old standard treatment.Goodluck and you need it!.Willem. > When to start > > > Hi I am new to this group. I was wondering whether I should start > the standard treatment for hep C now or wait until I finish > chemotherapy for another cancer. My viral load was 14,000 when they > caught it, two months later it was 44,000 and four months later it > was 200,000. That last test was done three months ago. I finish > chemo in March. I am a genotype 1b. The level of scarring is > anywhere between a 1 - 3, with two of my doctors agreeing to accept > it at 2. My ALT and AST levels have ranged from 2 to 10 times > normal since April while on the chemo, more so on the lower end of > the scale. I have been told that I should wait until after the > chemo to begin treatment. One of the doctors told me that I had > acute and should start treatment now. The other doctors agreed that > I should wait to treat one terminal illness at a time. My question > is: I am nearing the end of the chemotherapy -- come mid march I > will be finished. I have a feeling that the viral load will be > exponentially worse in two months and hence harder to clear. I have > to get rid of this in order to be more agressive with my cancer, > which, has not grown back, but it will--it is just a matter of > time. What opinions are there for treating now vs in three months? > > Thank you > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 << I have what is called an anaplastic astrocytoma grade III. If I follow the statistics, I may have three to five years. My goal is to get into a clinical trial but cannot because they found the hep C. So I am trying to get rid of the hep c >> I don't qualify for trials either. I don't think you'll qualify for the cancer trials even if you do get rid of the hep, cuz of the hep treatment. You need to double check on that. I don't qualify for cancer trials because of the hep and because of the treatment, I don't qualify for the hep c trials because of the cancer etc. Catch 22. << What kind of cancers does it promote by the way? >> I don't know any more than what the given literature says. You might want to delve further into that. There hasn't been much time honored study on riba and cancer unfortunately. It hasn't been used long enough on hep c people to accumulate data. It may be that it triggers cancer (we all have cancer cells in our body, they just aren't " on " ) or it may be a coincidence or both. If you gotta get rid of the hep to do more trials, just know that genotype 1's have a 50% (or less depends on who you listen to) chance of getting rid of it with peg/riba. With a terminal cancer, I don't think I'd worry about the riba. You've got some tuff choices out there. Good luck. Let us know what you decide. Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 I know one thing. You probably do not have what your claiming you have. If you did, you would probably be a little more positive and qualify your remarks with facts. Your comment " I don't think you'll qualify for the cancer trials even if you do get rid of the hep...catch 22 " sounds like an attempt to discourage. If you are for real, then I feel sorry for you--you have given up. If you are not for real, then you have no business telling me or anyone else in this forum what you THINK is possible and what is not. I would guess you are probably with an insurance company or someone who has a strong interest in seeing people like me give up and die. > << I have what is called an anaplastic > astrocytoma grade III. If I follow the statistics, I may have three > to five years. My goal is to get into a clinical trial but cannot > because they found the hep C. So I am trying to get rid of the hep c >> > > I don't qualify for trials either. I don't think you'll qualify for the cancer trials even if you do get rid of the hep, cuz of the hep treatment. You need to double check on that. > > I don't qualify for cancer trials because of the hep and because of the treatment, I don't qualify for the hep c trials because of the cancer etc. Catch 22. > > << What kind of cancers does it promote by the way? >> > > I don't know any more than what the given literature says. You might want to delve further into that. There hasn't been much time honored study on riba and cancer unfortunately. It hasn't been used long enough on hep c people to accumulate data. It may be that it triggers cancer (we all have cancer cells in our body, they just aren't " on " ) or it may be a coincidence or both. > > If you gotta get rid of the hep to do more trials, just know that genotype 1's have a 50% (or less depends on who you listen to) chance of getting rid of it with peg/riba. With a terminal cancer, I don't think I'd worry about the riba. > > You've got some tuff choices out there. Good luck. Let us know what you decide. > > Alley > Grand Prairie, Tx > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Denial mixed with hope mixed with a strong personality covered with my attempts at faith makes for some interesting emotions. We are all human. Sorry for any offense caused. I am just trying to find a home. Not a good start. I'll try to accept the realities of what I have. It's not easy when your as young as I am. I just have to back off and trust in God--it is out of my hands. > > << I have what is called an anaplastic > > astrocytoma grade III. If I follow the statistics, I may have > three > > to five years. My goal is to get into a clinical trial but cannot > > because they found the hep C. So I am trying to get rid of the > hep c >> > > > > I don't qualify for trials either. I don't think you'll qualify > for the cancer trials even if you do get rid of the hep, cuz of the > hep treatment. You need to double check on that. > > > > I don't qualify for cancer trials because of the hep and because > of the treatment, I don't qualify for the hep c trials because of > the cancer etc. Catch 22. > > > > << What kind of cancers does it promote by the way? >> > > > > I don't know any more than what the given literature says. You > might want to delve further into that. There hasn't been much time > honored study on riba and cancer unfortunately. It hasn't been used > long enough on hep c people to accumulate data. It may be that it > triggers cancer (we all have cancer cells in our body, they just > aren't " on " ) or it may be a coincidence or both. > > > > If you gotta get rid of the hep to do more trials, just know that > genotype 1's have a 50% (or less depends on who you listen to) > chance of getting rid of it with peg/riba. With a terminal cancer, > I don't think I'd worry about the riba. > > > > You've got some tuff choices out there. Good luck. Let us know > what you decide. > > > > Alley > > Grand Prairie, Tx > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 In a message dated 1/24/2004 1:31:17 PM Eastern Standard Time, brdietrich@... writes: > I consider myself a Christian and saved. My faith > waivers, but in the end it is all one really has. > Whenever my faith waivers, I read Job. God Bless Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 In a message dated 1/23/2004 9:50:59 PM Eastern Standard Time, brdietrich@... writes: > Denial mixed with hope mixed with a strong personality covered with > my attempts at faith makes for some interesting emotions. We are > all human. Sorry for any offense caused. I am just trying to find > a home. Not a good start. I'll try to accept the realities of what > I have. It's not easy when your as young as I am. I just have to > back off and trust in God--it is out of my hands. > We understand. We all have bad days. Take that trust you have in God and hold on to it firmly. I aquired this disease in 1987 and I'm still here. It's frustrating...mainly because you have to learn to slow down before you " qualify " age-wise. Not to mention the fact that you consisitently feel like you've beaten with a 2 X 4.That tends to make us all a bit " touchy " at times...one of the truly nastier side effects of HCV is that it tends to exaccerbate both existing and hereditary problems. So we're all fighting at least two and sometimes multiple problems. Frequently, the treatment or relief from one medical condition makes the other one worse, or lethal. Hence the Catch 22. I'm having a debate with myself, even as I write, as to whether or not I want to try another treatment. ALT's and AFT's are high, but in the normal range, consistently, for the first time in a couple of years. Viral load is 537. I'm having a liver biopsy next week. That will be the decision making time. Anyway, we'll all have a better day tomorrow. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2004 Report Share Posted January 25, 2004 Alley, what a rough time you are having with your body. I am so sorry to hear, you have been such an inspiration to the group. hope that everything works out for you Suzy From: " Alley " <alleypat@...> Reply-Hepatitis C <Hepatitis C > Subject: Re: Re: When to start Date: Fri, 23 Jan 2004 15:44:11 -0600 << I have what is called an anaplastic astrocytoma grade III. If I follow the statistics, I may have three to five years. My goal is to get into a clinical trial but cannot because they found the hep C. So I am trying to get rid of the hep c >> I don't qualify for trials either. I don't think you'll qualify for the cancer trials even if you do get rid of the hep, cuz of the hep treatment. You need to double check on that. I don't qualify for cancer trials because of the hep and because of the treatment, I don't qualify for the hep c trials because of the cancer etc. Catch 22. << What kind of cancers does it promote by the way? >> I don't know any more than what the given literature says. You might want to delve further into that. There hasn't been much time honored study on riba and cancer unfortunately. It hasn't been used long enough on hep c people to accumulate data. It may be that it triggers cancer (we all have cancer cells in our body, they just aren't " on " ) or it may be a coincidence or both. If you gotta get rid of the hep to do more trials, just know that genotype 1's have a 50% (or less depends on who you listen to) chance of getting rid of it with peg/riba. With a terminal cancer, I don't think I'd worry about the riba. You've got some tuff choices out there. Good luck. Let us know what you decide. Alley Grand Prairie, Tx Quote Link to comment Share on other sites More sharing options...
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