Diagnosing PSC, cyst, NIH conference file

[Guest guest]

Dear All,

I haven't been diagnosed for sure with PSC. The reasons why my

hepatologist leans towards PSC are:

- blood work pointed in that direction

- URSO brought the bloodwork (nearly) back in the normal ranges

- on a first MRCP there seemd to be a couple of strictures (not in

the main duct)

- he does not know what else it could be

The factors that are less clear for the PSC diagnosis:

- I am (still) blessed to be without an IBD (at least that is what

came out of a colonoscopy)

- A liver biopt a couple of years ago did show only minor a-specific

artifacts.

On a last ultrasound that was done, I saw on the report that the

evaluating doctor was not sure if the area where they saw something

before was a duct dilatation or a cyst. Does anyone know if the

formation of cysts might be associated with PSC?

This momday I am having my second MRCP. I am thinking of bringing a

copy of the NIH conference video file on a DVD, so in case the

radiologist is interested she could watch maybe Ann Fulcher's

presentation about diagnosing of PSC with MRCP. However, I do not

seem to be able to download the movie file to my computer. Does

anyone have some tips on how to do this (when I right click and 'save

target as', it only saves a couple of bytes)? The link is:

http://videocast.nih.gov/ram/niddk091905.ram

Gerard