Re: [Kim's response to RAD

[Guest guest]

Dear Kim, 1st post I've read from U. very concise. I think I will forgo the

reading.

Thanks for saving me that time. Eventually, I hope to get up to speed

with the

group-to learn about everyone, and about conversations u all have already

had.

In the meantime, pls bear with me. Thanks, ('s mom)

[Guest guest]

,

I am sure you have just given us all a good laugh (but I thank you), Kim

concise, ha!

We are all thinking and questioning and sharing opinions, so ask and

theorize away.

As introduction my little boy is Dylan. He is 9yo and has very severe

sensory losses, but was mild on the medical issues. He had fairly typical,

although delayed development his first four years, then he regressed in some

ways and a hit a very long plateau in others. He was VERY autistic-like at

that time, although still a joy to be with. He just did not have the

concept of other, which makes social or language skills near impossible. He

always had very dramatic changes in state, sometimes " on " and doing great,

other times so still and " off " , and at other times I can only describe that

he was " frantic " . None of the theories I heard fit with what I observed in

him. I began to be afraid that all the potential I had seen in him was to

be lost to the autistic-like stuff and a simple overwhelm of his nervous

system.

As Michele mentioned we have had great results with cranial sacral therapy.

The last conversation was not too long ago (it explains some of what you

said about the cerebrospinal fluid moving with the breathing). Anyways an

overview is at first it made his hair grow back, after losing it along the

suture lines for a year and a half, and the doctors saying he had some other

syndrome; it controlled his migraines, it helped us regulate his varying

states, it has kept his spine straight, and we have even had abdominal

obstructions untwisted manually and a major impaction cleaned out without

invasive methods. Dylan goes every month, and has since he was 3 1/2, and

yes it is expensive and how I wish insurance would pay.

When Dylan started escalating in his nervous system irregularities, the

cranial sacral was great to bring him up or down, but it did not help him

regulate it on his own. We then went to HANDLE which I think I talked about

with you last week on the list. For us, it was the perfect one-two punch

for handling his needs. HANDLE helped us learn to help him regulate his

state and the cranial sacral helped with the changes in structure (which we

believe impacts function).

Anyways, he is back to the boy he was before we " lost " him. He is engaged

with people and the world. He gets that language means something and is

able to visually attend to sign and to faces. He still has CHARGE, has no

hearing, and some usable vision in the left eye (complicated by visual

processing problems as well), and has his quirks, but he is able to function

outside of himself.

For the time being, what we do is enough. I know his body and his behavior

will tell us when we need to do anything different.

Glad to have you on the list.

Kim L

> Dear Kim, 1st post I've read from U. very concise. I think I will forgo the

> reading.

> Thanks for saving me that time. Eventually, I hope to get up to speed

> with the

> group-to learn about everyone, and about conversations u all have already

> had.

> In the meantime, pls bear with me. Thanks, ('s mom)

>

>

>