Re: How rosacea occurs- Part II

[Guest guest]

Wow sorry you got such negative feedback. I have always been an easy flusher

or blusher but nothing like the rosacea flushing I got in early 97. I think

mine was brought out by using alpha hydroxy acids with a mixture of stress

due to a move cross country. I seem to have it under control 90% of the time

due to the zinco, oil and hemp soap I use. Hope this helps. Noreen

[Guest guest]

Sorry you received the negative feedback, too. I don't think the rudeness

is at all called for, ever in a support group. I believe my rosacea can be

attributed nearly 100% to heredity. My Irish/German descent, with very fair

skin that blushes easily, fair hair and eyes. My skin has always been

ultra-sensitive and I believe I exacerbated my tendency toward rosacea by

using tanning beds during high school. I think this weakened my blood

vessels as I would always come out of my tanning appointments with a brown

body, but a very red face. I stopped tanning when I was about 19 years old,

continued to have great skin until I turned 23. It was all downhill from

there.

I am a very " well " person. I don't have any stomach problems, or anything

more than the usual cold. I've had strep throat twice in my life, once when

I was about 10 years old and once this spring. I took the 10-day course of

antibiotics and was good as new. I think that maybe some of us just have

damaged and/or sensitive blood vessels, especially in the face.

It's great that the Photoderm may be the key for some of us who are

red-faced. I know if I could just rid myself of that symptom, I'd be

thrilled. When I have a bad flushing incident, I know I will be blessed

with a case of the pustules on my cheeks, jawline and/or bridge of the nose.

I had a hair appointment yesterday and the chemicals used to highlight my

hair caused my cheeks to flush right away. Now I have about 10 bumps

scattered across my face and it's like I can feel heat radiating off of my

cheeks. If Photoderm eliminates the flushing, I really don't think I'd

break out anymore either.

How rosacea occurs- Part II

> When I posted my message on how I believed I contracted rosacea, I

> hoped to generate ideas how rosacea occurs. I hoped other people on

> this support group would list how they believed they contracted

> rosacea. I would hope that we could put out some ideas so a physician

> who might read our thoughts and might be able to find a cure for

> rosacea or at least more preventative action.

>

> Instead I received personel e-mails telling how stupid my beliefs

> were and/or explanations of disbelief that my ideas could have any

> merit.

>

> As I said before, I did not have rosacea before the first quarter of

> 1999. I had two bouts of Strep throat and a severe case of the flu.

> I am not saying that I believe Strep throat causes rosacea, but the

> weakening of my immune system could. For all I know, the mixture of

> antibiotics that I took those first 3 months could have caused the

> rosacea. I DONT KNOW. I wanted to start some type of brainstorming.

>

> I will give this board one more chance. But if I continue to receive

> the same response I have received in the last week. I want off.

>

>

>

>

> --------------------------------------------------------

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>

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>

>

[Guest guest]

Dear mkfisher2,

You are NOT stupid! Even Dr. Nase said that there are a variety of reasons

to explain why people wind up having cea. In my case, sun damage and

heredity are to blame. If you read through the posts, you will see that

members of our group give different explanations on " when IT started " . One

gal was fine until after a facial peel. Another used an alpha hydroxy

product and ....whammo! Others' cea was set off by starting a certain

medication. If you said your cea started after a couple bouts of strep

throat and the flu, I BELIEVE YOU!!!

A case in point: I also have psoriasis. The onset of psoriasis often

follows a strep infection, especially a type called " guttate psoriasis "

(little raindrop spots all over your body). In fact, one treatment for this

after the initial presentation of the disease is to be given sulpha drugs to

stimulate your immune system to regulate itself.

Folks, the jury is still out on exactly what causes cea. The medical

field to date has not been able to come up with any one answer, just

possible theories. We do, however, have a number of treatments to deal with

the disease (PhotoDerm being the most exciting at this point in time). I

believe as time goes on, we will get closer and closer to finding out what

causes cea. Look at cancer, if you don't believe me. Years ago it was

a death sentence. Today most kids with childhood leukemia survive to become

adults. Recently, scientists have discovered a substance that prevents

cancerous tumors from generating their own blood vessels that they use to

nourish themselves. No ability to generate their own blood vessels? The

cancer starves and dies. This new science may also have promise for those

of us with cea. Why do we grow " extra " blood vessels? How do we

inhibit that growth? Questions, questions...

I know this is a long post, but I wanted to hammer some sense into those

negative lunkheads out there.

Good luck!

Janie K.

How rosacea occurs- Part II

> When I posted my message on how I believed I contracted rosacea, I

> hoped to generate ideas how rosacea occurs. I hoped other people on

> this support group would list how they believed they contracted

> rosacea. I would hope that we could put out some ideas so a physician

> who might read our thoughts and might be able to find a cure for

> rosacea or at least more preventative action.

>

> Instead I received personel e-mails telling how stupid my beliefs

> were and/or explanations of disbelief that my ideas could have any

> merit.

>

> As I said before, I did not have rosacea before the first quarter of

> 1999. I had two bouts of Strep throat and a severe case of the flu.

> I am not saying that I believe Strep throat causes rosacea, but the

> weakening of my immune system could. For all I know, the mixture of

> antibiotics that I took those first 3 months could have caused the

> rosacea. I DONT KNOW. I wanted to start some type of brainstorming.

>

> I will give this board one more chance. But if I continue to receive

> the same response I have received in the last week. I want off.

>

>

>

>

> --------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole

group. see http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

>

[Guest guest]

Wow--I sure am sorry you got such negative feedback! There sure is no

reason or excuse for that - this is a support group! And I sure don't think

your ideas are stupid! The medical profession does not know the cause of

rosacea and we are here trying to find some enlightenment--so how could

anyone discount a cause when medicine doesn't even know?

Speaking from personal experience and seeing what others have posted, I

think it is a combination of genetics and I think a weakened immune system

is as good an explanation as any to act as a trigger. Stress played a big

role in making my own 10 year rosacea disease much worse! I think stress

does that to many illnesses. Also, many of us have had, or currently have,

an autoimmune disease.

I like the explanation of my psychiatrist. He said anytime you have

stress/illness in your life, your body will do one of two things. Some

people's immune system becomes weakened and others have highly reactive

immune systems (where your body will start reacting to innocent/innocuous

things as the enemy). I would think a strep infection could certainly be a

trigger for an illness that we are genetically predisposed to.

Anyone that would privately post an insult is a COWARD and shouldn't be in a

support group! I'm sure the vast majority of people on this website are

decent human beings.

All best,

Patty

[Guest guest]

I'm sorry that you got those bad e-mails on this subject too!

Personally, I am very glad that you brought that subject up because

I've had quite a few bouts with step throat throughtout my life and

of course took the antibiotics because I didn't want it to progress

to scarlet fever and heart damage. Who knows, helping to stave off

heart damage on one hand with the antibiotics and then on the other

hand having those antibiotics cause rosacea to come up is certainly

plausible. Maybe it's the action of the antibiotics doing the work

of the immune system that throws the immune system out of whack. I

had my first bout of strep when I was about 4, so if that's the case

my immune system has been out of whack for a long time. I read that

the propensity to contract strep is genetic. That's why if it's

going around, some people get it while others don't.

Take care!

Matija

> Wow--I sure am sorry you got such negative feedback! There sure is

no

> reason or excuse for that - this is a support group! And I sure

don't think

> your ideas are stupid! The medical profession does not know the

cause of

> rosacea and we are here trying to find some enlightenment--so how

could

> anyone discount a cause when medicine doesn't even know?

>

> Speaking from personal experience and seeing what others have

posted, I

> think it is a combination of genetics and I think a weakened immune

system

> is as good an explanation as any to act as a trigger. Stress

played a big

> role in making my own 10 year rosacea disease much worse! I think

stress

> does that to many illnesses. Also, many of us have had, or

currently have,

> an autoimmune disease.

>

> I like the explanation of my psychiatrist. He said anytime you have

> stress/illness in your life, your body will do one of two things.

Some

> people's immune system becomes weakened and others have highly

reactive

> immune systems (where your body will start reacting to

innocent/innocuous

> things as the enemy). I would think a strep infection could

certainly be a

> trigger for an illness that we are genetically predisposed to.

>

> Anyone that would privately post an insult is a COWARD and

shouldn't be in a

> support group! I'm sure the vast majority of people on this

website are

> decent human beings.

> All best,

> Patty

[Guest guest]

Wow.... I too after reading what mkfisher2 received, was left feeling

amazed and speechless. Especially after what this group just went

through dealing with the fallout from the webtv person.

MKFISHER2... Don't give up on this group, it is for the most part

comprised of some very caring and wonderful folks.

I find the Strep Throat connection very interesting, in my early

30's, I suddenly became prone to getting Strep. Over a period of just

under 18 months, I contracted Strep about 8 times. Lots of anti-

biotics involved.

Then boom, it stops as abruptly as it started and has never returned.

It also amazes me to read the posts and see just how many of us can

relate a history of experiencing the same associated conditions.

Migraines, chronic digestive disorders (acid re-flux, etc), various

allergies, various skin disorders (Seb. Derm, Psoriasis, etc ),

Shingles, Thyroid disorders, Depression and S-T-R-E-S-S.

Since joining the group a month ago, I've been keeping a journal on

the associated ailments folks have been reporting.

On the list above, I can answer " yes " to having experienced most of

them, or knowing of a family member having one of the conditions.

My cea made it's appearance about 2 years ago, after being

extremely stressed out (seems to be one of the most common

denominators reported on the group) continously for almost 4 years,

starting with a very painful break up of a 14 yr marriage, followed

by the death of my Father, 4 bouts of Corporate downsizings, all the

while making the adjustment of living by myself again.

Based on what I've read on the group, I have formed my own

conclusions that my cea and the other disorders are opportunistic

illnesses taking advantage of a weakened immune system brought on by

chronic stress and anxiety. As such, I'm taking some serious step to

manage the stress.

So not matter how trivial someone may think of the information shared

here, it's all important in the big picture of helping, and perhaps

some Physician reading all of it will one day track down a cure,

by " connecting the dots " .

I'll get off my soap box now...

Conrad

> When I posted my message on how I believed I contracted rosacea, I

> hoped to generate ideas how rosacea occurs. I hoped other people

on

> this support group would list how they believed they contracted

> rosacea. I would hope that we could put out some ideas so a

physician

> who might read our thoughts and might be able to find a cure for

> rosacea or at least more preventative action.

>

> Instead I received personel e-mails telling how stupid my beliefs

> were and/or explanations of disbelief that my ideas could have any

> merit.

>

> As I said before, I did not have rosacea before the first quarter

of

> 1999. I had two bouts of Strep throat and a severe case of the

flu.

> I am not saying that I believe Strep throat causes rosacea, but the

> weakening of my immune system could. For all I know, the mixture

of

> antibiotics that I took those first 3 months could have caused the

> rosacea. I DONT KNOW. I wanted to start some type of

brainstorming.

>

> I will give this board one more chance. But if I continue to

receive

> the same response I have received in the last week. I want off.

[Guest guest]

yes

I do believe that rosacea is an oppurtunistic

disorder

similiar to how a weakened plant will get attacked by bugs but the

heathier plants will not

and what I mean by that is when my skin is irritataed almost

anything can cause it to break out

once it has broken out it can take months to get it to calm down

wheras when it is calm and resilient

I can get away with alot (not alcohol or chocolate or lanolin )

I am certain that I gave myself rosacea by drinking coffee and alcohol

to excess (drinking no water)

in my twenties when I lived in an extremely hot enviroment and i

would get what I thought was

prickly heat

and what i now know leads to a flairup

I have never had strep throat or any other illness except bronchitis

when I was in highschool a full

decade before my rosacea appeared

I am 3 dayus into zinc oxide and the results are truly amazing

I am so happy for this group as it has given me back my face !!!

so thankyou everybody

I hope that each of you finds a treatment

I urge anyone who has not tried zinc for bumps to at least give it

a try

I was nervous about it so i just tried it on my chest

and could tell right away it was ok

nothging had ever felt so good on my skin

goodluck to you all

Conrad Aquino wrote:

> Wow.... I too after reading what mkfisher2 received, was left feeling

> amazed and speechless. Especially after what this group just went

> through dealing with the fallout from the webtv person.

>

> MKFISHER2... Don't give up on this group, it is for the most part

> comprised of some very caring and wonderful folks.

>

> I find the Strep Throat connection very interesting, in my early

> 30's, I suddenly became prone to getting Strep. Over a period of just

> under 18 months, I contracted Strep about 8 times. Lots of anti-

> biotics involved.

>

> Then boom, it stops as abruptly as it started and has never returned.

>

> It also amazes me to read the posts and see just how many of us can

> relate a history of experiencing the same associated conditions.

>

> Migraines, chronic digestive disorders (acid re-flux, etc), various

> allergies, various skin disorders (Seb. Derm, Psoriasis, etc ),

> Shingles, Thyroid disorders, Depression and S-T-R-E-S-S.

>

> Since joining the group a month ago, I've been keeping a journal on

> the associated ailments folks have been reporting.

>

> On the list above, I can answer " yes " to having experienced most of

> them, or knowing of a family member having one of the conditions.

>

> My cea made it's appearance about 2 years ago, after being

> extremely stressed out (seems to be one of the most common

> denominators reported on the group) continously for almost 4 years,

> starting with a very painful break up of a 14 yr marriage, followed

> by the death of my Father, 4 bouts of Corporate downsizings, all the

> while making the adjustment of living by myself again.

>

> Based on what I've read on the group, I have formed my own

> conclusions that my cea and the other disorders are opportunistic

> illnesses taking advantage of a weakened immune system brought on by

> chronic stress and anxiety. As such, I'm taking some serious step to

> manage the stress.

>

> So not matter how trivial someone may think of the information shared

> here, it's all important in the big picture of helping, and perhaps

> some Physician reading all of it will one day track down a cure,

> by " connecting the dots " .

>

> I'll get off my soap box now...

>

> Conrad

>

>

> > When I posted my message on how I believed I contracted rosacea, I

> > hoped to generate ideas how rosacea occurs. I hoped other people

> on

> > this support group would list how they believed they contracted

> > rosacea. I would hope that we could put out some ideas so a

> physician

> > who might read our thoughts and might be able to find a cure for

> > rosacea or at least more preventative action.

> >

> > Instead I received personel e-mails telling how stupid my beliefs

> > were and/or explanations of disbelief that my ideas could have any

> > merit.

> >

> > As I said before, I did not have rosacea before the first quarter

> of

> > 1999. I had two bouts of Strep throat and a severe case of the

> flu.

> > I am not saying that I believe Strep throat causes rosacea, but the

> > weakening of my immune system could. For all I know, the mixture

> of

> > antibiotics that I took those first 3 months could have caused the

> > rosacea. I DONT KNOW. I wanted to start some type of

> brainstorming.

> >

> > I will give this board one more chance. But if I continue to

> receive

> > the same response I have received in the last week. I want off.

>

> --------------------------------------------------------

> Please read the list highlights thoroughly before posting to the whole group.

see http://rosacea.ii.net/toc.html

>

> When replying, please delete all text at the end of your email that isn't

necessary for your message.

>

> To leave the list send an email to rosacea-support-unsubscribeegroups

[Guest guest]

In a message dated 6/17/00 2:12:36 PM Eastern Daylight Time,

mkfisher2@... writes:

<< As I said before, I did not have rosacea before the first quarter of

1999. I had two bouts of Strep throat and a severe case of the flu.

I am not saying that I believe Strep throat causes rosacea, but the

weakening of my immune system could. For all I know, the mixture of

antibiotics that I took those first 3 months could have caused the

rosacea. I DONT KNOW. I wanted to start some type of brainstorming.

>>

Hi,

It is my opinion that there are many different causes for cea. I

also believe that all the causes have one thing in common, and that is an

imbalance in our skin and/or body chemistry. I don't think your suspisions

about the antibiotics or weakened immune system are at all extreme. When no

one has the answers, it is good that we at least have questions, else there

will never be any answers.

Susie Q