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Re: One year SCD

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Congrats! We're almost there...looking forward to celebrating on Dec

10th for our 1-year. The diet has made a world of difference for our

younger daughter especially. I really think it's healing her

colitis. We've had definite jumps in language, eye contact, etc...as

well as the same regression points of 1 month, 3 motnhs, 5 months, 7

months, and 9 months. Yogurt has made a big difference for her, too,

I beleive. She started on yogurt at 3 weeks into the diet whereas my

other daughter had to wait several months when she first started the

diet. Best of luck in the 2nd year!

Rose (Mom to , 11, back on scd 1 month, and , 8, scd 9

months)

>

> Hi everyone -

> WE just passed the one year mark with our daughter. Yahoo!

> I'm wondering if there is anyone on the list who is roughly at the

> same point in the diet. I would love to compare notes on some of

the

> things we're seeing -- mostly positive.

> Please feel free to email me off list.

> And to the moms and dads struggling right now with the diet, I'd

like

> to say -- stick with it! We had serious regressions at the 21 day

> mark, 2-3 months, 5 months, 7 months and 9 months. They were so

> terrible that I almost gave up (especially the 9 month). We

started

> the goat's yogurt at 6 months and I think it's been a huge part of

> the healing. Also, just to give you all some perspective -- our

> daughter didn't really a trophy bm until 5 months into the diet.

But

> we did see behavioral improvements -- not every day, and they would

> disappear for a while with the regressions, but she came back from

> each regression better than she was before.

> Remember, these kids' guts have been deteriorating for years -- it

> makes sense that it will take longer than a few months to repair

the

> damage.

> Anyway, if there's anyone out there who would like to share your

> experiences at a year or more, I'd love to hear them!

> Best to all,

> Kate

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Have you used the ice cream maker from Lucy's kitchen? I just ordered it because

my son refuses to eat any yogurt-cow or goat. If you have, can you use the goat

yogurt to make frozen yogurt or do you have to use cow's milk?-Thanks-Michal

lbmenajovsky wrote:

Congrats! We're almost there...looking forward to celebrating on Dec

10th for our 1-year. The diet has made a world of difference for our

younger daughter especially. I really think it's healing her

colitis. We've had definite jumps in language, eye contact, etc...as

well as the same regression points of 1 month, 3 motnhs, 5 months, 7

months, and 9 months. Yogurt has made a big difference for her, too,

I beleive. She started on yogurt at 3 weeks into the diet whereas my

other daughter had to wait several months when she first started the

diet. Best of luck in the 2nd year!

Rose (Mom to , 11, back on scd 1 month, and , 8, scd 9

months)

>

> Hi everyone -

> WE just passed the one year mark with our daughter. Yahoo!

> I'm wondering if there is anyone on the list who is roughly at the

> same point in the diet. I would love to compare notes on some of

the

> things we're seeing -- mostly positive.

> Please feel free to email me off list.

> And to the moms and dads struggling right now with the diet, I'd

like

> to say -- stick with it! We had serious regressions at the 21 day

> mark, 2-3 months, 5 months, 7 months and 9 months. They were so

> terrible that I almost gave up (especially the 9 month). We

started

> the goat's yogurt at 6 months and I think it's been a huge part of

> the healing. Also, just to give you all some perspective -- our

> daughter didn't really a trophy bm until 5 months into the diet.

But

> we did see behavioral improvements -- not every day, and they would

> disappear for a while with the regressions, but she came back from

> each regression better than she was before.

> Remember, these kids' guts have been deteriorating for years -- it

> makes sense that it will take longer than a few months to repair

the

> damage.

> Anyway, if there's anyone out there who would like to share your

> experiences at a year or more, I'd love to hear them!

> Best to all,

> Kate

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

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Hi, Kate.

My son has been SCD since 4/24/04. For the last few weeks, his verbal stimming

has increased and his tactile stimming (running his fingers along surfaces),

which had been absent for more than a year, returned. Otherwise, he seems ok.

His progress has been slow, but steady * more noticeable to his DAN doctor, who

sees him monthly, than to us (unless we deliberately recall what he had been

doing a while ago).

Do you or anyone else have any ideas as to what is going on? The only new thing

is that he has started kindergarten. But we are (reasonably) certain that he

has not been given any illegal foods, as he has only three classmates * and

there are two teacher's aides. Plus, his teacher knew about the SCD before we

met her.

THANKS IN ADVANCE!

Debbie

mom to Jake (2/5/99; ASD)

>>> kmhohl@... 10/5/2004 1:58:34 PM >>>

Hi everyone -

WE just passed the one year mark with our daughter. Yahoo!

I'm wondering if there is anyone on the list who is roughly at the

same point in the diet. I would love to compare notes on some of the

things we're seeing -- mostly positive.

Please feel free to email me off list.

And to the moms and dads struggling right now with the diet, I'd like

to say -- stick with it! We had serious regressions at the 21 day

mark, 2-3 months, 5 months, 7 months and 9 months. They were so

terrible that I almost gave up (especially the 9 month). We started

the goat's yogurt at 6 months and I think it's been a huge part of

the healing. Also, just to give you all some perspective -- our

daughter didn't really a trophy bm until 5 months into the diet. But

we did see behavioral improvements -- not every day, and they would

disappear for a while with the regressions, but she came back from

each regression better than she was before.

Remember, these kids' guts have been deteriorating for years -- it

makes sense that it will take longer than a few months to repair the

damage.

Anyway, if there's anyone out there who would like to share your

experiences at a year or more, I'd love to hear them!

Best to all,

Kate

For information on the Specific Carbohydrate Diet, please read the book

_Breaking the Vicious Cycle_ by Elaine Gottschall and read the following

websites:

http://www.breakingtheviciouscycle.info

and

http://www.pecanbread.com

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I haven't made the ice cream...I did try just freezing a bit of the

yogurt on a plastic toy ice cream cone in the freezer...but her nose

knew...yougurt is yogurt, ain't no sugar treat happenin' there. In

the beginning with my younger daughter I mixed a little honey and

vanilla in it (til I found that honey is off the charts for a high

phenol food and quickly tapered it out). I was able to eventually

taper out the vanilla and now she eats 1/2 cup at a time

plain...happily (and me too, I used the same technique b/c I used to

hate the taste of yogurt, now I'm fine with it plain). My other

daughter is just starting on a tsp a day, and I just tell her " quick

bite " then she gets her beloved veggie pancake right after. I think

she's starting to get used to the taste. Someone said before that

you also lose a bit of the probiotic power if it's frozen...whether

that's true or not...?

Rose (Mom to , 11, asd, back on scd 1 month, and , 8,

asd, scd 9 months)

> >

> > Hi everyone -

> > WE just passed the one year mark with our daughter. Yahoo!

> > I'm wondering if there is anyone on the list who is roughly at

the

> > same point in the diet. I would love to compare notes on some of

> the

> > things we're seeing -- mostly positive.

> > Please feel free to email me off list.

> > And to the moms and dads struggling right now with the diet, I'd

> like

> > to say -- stick with it! We had serious regressions at the 21 day

> > mark, 2-3 months, 5 months, 7 months and 9 months. They were so

> > terrible that I almost gave up (especially the 9 month). We

> started

> > the goat's yogurt at 6 months and I think it's been a huge part

of

> > the healing. Also, just to give you all some perspective -- our

> > daughter didn't really a trophy bm until 5 months into the diet.

> But

> > we did see behavioral improvements -- not every day, and they

would

> > disappear for a while with the regressions, but she came back

from

> > each regression better than she was before.

> > Remember, these kids' guts have been deteriorating for years --

it

> > makes sense that it will take longer than a few months to repair

> the

> > damage.

> > Anyway, if there's anyone out there who would like to share your

> > experiences at a year or more, I'd love to hear them!

> > Best to all,

> > Kate

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

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Hi Debra -

We saw a return of pre-SCD behaviors at different points in the

diet. It looks like you might be hitting a five month regression.

For us it lasted about 10-12 days.

Hang in there!

Kate

> Hi, Kate.

>

> My son has been SCD since 4/24/04. For the last few weeks, his

verbal stimming has increased and his tactile stimming (running his

fingers along surfaces), which had been absent for more than a year,

returned. Otherwise, he seems ok. His progress has been slow, but

steady * more noticeable to his DAN doctor, who sees him monthly,

than to us (unless we deliberately recall what he had been doing a

while ago).

>

> Do you or anyone else have any ideas as to what is going on? The

only new thing is that he has started kindergarten. But we are

(reasonably) certain that he has not been given any illegal foods, as

he has only three classmates * and there are two teacher's aides.

Plus, his teacher knew about the SCD before we met her.

>

> THANKS IN ADVANCE!

>

> Debbie

> mom to Jake (2/5/99; ASD)

>

> >>> kmhohl@a... 10/5/2004 1:58:34 PM >>>

>

> Hi everyone -

> WE just passed the one year mark with our daughter. Yahoo!

> I'm wondering if there is anyone on the list who is roughly at the

> same point in the diet. I would love to compare notes on some of

the

> things we're seeing -- mostly positive.

> Please feel free to email me off list.

> And to the moms and dads struggling right now with the diet, I'd

like

> to say -- stick with it! We had serious regressions at the 21 day

> mark, 2-3 months, 5 months, 7 months and 9 months. They were so

> terrible that I almost gave up (especially the 9 month). We

started

> the goat's yogurt at 6 months and I think it's been a huge part of

> the healing. Also, just to give you all some perspective -- our

> daughter didn't really a trophy bm until 5 months into the diet.

But

> we did see behavioral improvements -- not every day, and they would

> disappear for a while with the regressions, but she came back from

> each regression better than she was before.

> Remember, these kids' guts have been deteriorating for years -- it

> makes sense that it will take longer than a few months to repair

the

> damage.

> Anyway, if there's anyone out there who would like to share your

> experiences at a year or more, I'd love to hear them!

> Best to all,

> Kate

>

>

>

>

>

>

>

>

> For information on the Specific Carbohydrate Diet, please read the

book _Breaking the Vicious Cycle_ by Elaine Gottschall and read the

following websites:

> http://www.breakingtheviciouscycle.info

> and

> http://www.pecanbread.com

>

>

>

>

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Hi ,

> Someone said before that

> you also lose a bit of the probiotic power if it's

frozen...whether that's true or not...?

Yes, freezing will kill at least some of the good bacteria.

Sheila 44 mos SCD, 20 yrs UC

mom of SCD 29 mos

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