Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 hi everyone! Happy new year!! My husband and i moved from new hampshire to new mexico about two years ago. we have a 5and a half year old daughter with charge and a 4month old daughter. we have been blessed many ways with darby's health and progress. The doctors gave her no chance and predicted a severe delay in development and even brain damage. Darby has avoided surgery and has just passed her kindergarten readiness test. she just had her eye exam and we did not get good news. she only has vision in one eye and it has gotten much worse. a year ago she was - 3.75 and is now -8. we have had to get a second op. before because like now the presc. does not match what we see her see. follow? darby has columbomas in both eyes. I know that makes it harder to get and accurate pres. the doc said to see how she responds to her new glasses. Have any of you dealt with any of this? On an other note the genetics of charge are confusing me. I read megs post and got a little depressed. i had two misc. in between our two girls. we have talked about trying for a third child but are afraid of winning the charge lottery again. i know that the risk for aother issues is there too so we do not know what we will do. what if we have another child with more severe challenges? would that be fair to the girls? could we handle it? I know that we have to make this dec. ourselves but any thoughts from you would be welcomed. Quote Link to comment Share on other sites More sharing options...
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