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RE: bm story and beyond

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Alas, no, Michele, no potty (except for pee) was needed upon arrival;

apparently that waited for today. I just aimed (instant communication is

grand) her house staff and learned that she is again wetting at the house;

didn't do it here for 2 1/2 weeks. This person is telling us something.

She's also asking for Andy and me over and over. More when I'm not so

worn out. But, I really need to run the whole ISL proposal by the group.

Andy and I met with the mother and young adult (autistic --- guess that's

not pc) tonight. I like both a lot --- the mother will definitely fight --- but

there's the whole language issue. cannot stay where she will wet

and wet and sleep all day. Can she come here without always having

staff that signs 24/7? We don't think so. I guess the next battle

commences tomorrow. At least now we have allies who understand the

language needs. Doesn't someone want to send me a " client " to fill this

new house. I promise lots of tender loving care, input from " experts, " and

just one hell of an attempt to make things great. Anyone in the midwest?

Oh, but I'm tired and rambling. Must post to our " Regional Center " great

helper and fold myself into bed.

Pam, I'll try to find time for a private post, though I'll only say that I

truly

NEED to talk, that tomorrow will be hellish because of scads of calls that

must be made, and I might hit you this weekend.

Ugh to all, and to all a good night. Martha

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ive been wondering the same thing where is she

>

> Martha-

> We haven't heard from Sheryl Doolittle in ages. Wonder what's up with

> ?? She's an adult in the Midwest...

>

> Michele W

>

>

>

>

> Membership of this email support groups does not constitute membership in

> the CHARGE Syndrome Foundation or CHARGE Syndrome Canada.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org - for CHARGE Syndrome Canada

> information and membership, please visit http://www.chargesyndrome.ca or

> email info@... .

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

> www.chargesyndrome.org or by calling 1-.

>

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