Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Thanks , My doctor has me on 1800mg of the Neurontin a day right now..my pharmacist said most of his customers who have RSD and are on Neurontin are pretty much at 3800mg a day..I just wish my doctor would put me on SOME kind of pain med..I see him again on the 7th and I'm gonna tell him that NO pain management clinic or center will take me because I'm on Medicaid and even Medicaid can't direct me to anyone..they only sent me a list of anesthesiologists and told me that's what pain management is listed under in their system and told me to just call the doctors on the list and see if they're still accepting Medicaid..well I did and none of them do...and my husband is of no help either.. he doesn't understand how come I can't do housework and have no energy at all and would rather stay curled up in the corner of the couch and I swear if he keeps banging my right arm I'm gonna hit him in the head with a baseball bat!! Lately he's been slapping me in the arm or banging my hand (not on purpose) and when I give him the LOOK, he tells me that he doesn't think of me as handicapped and not able to use my right hand and arm...and HE tells ME that MY memory is shot?? Well I'm gonna keep my fingers crossed that (my doctor) will FINALLY prescribe me something for pain after I tell him it's a no-go with pain management..if he doesn't, I don't know what to do...I really love him as my doctor..he's the only one who treats me as person, and a whole person at that..he doesn't rush me in and out of the office like most doctors do..as soon as I told him about the pain in my hip and leg, he ordered an x-ray and when they came back showing something on the bone, he had me go for an MRI which not only showed something there but also showed a pretty big cyst on my ovary which explains that constant pain..when I see him on the 7th, we're gonna have a nice talk about what that thing is on my hip bone..and the cyst too...hope your having a low pain day today.... Hugs, ~Chrissy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Barbara, Medicaid will pay 3 months back if you have medical bills when you first get approved for it...if you're already on it, it's a real b*tch to find doctors who take it as a form of insurance...yes it is insurance through NYS but doctors don't have to accept it and I sure don't have the $$ to pay out of pocket for any medical treatments...combined SSD/SSI is only $650 a month...when I had my EMG done at Kingston Hospital, Medicaid paid them only $15 out of over $700 and then the hospital sent ME a bill to pay the balance which is ILLEGAL for a hospital to do...if they accept Medicaid as insurance, they cannot bill the patient to pick up what Medicaid didn't pay and I won't be eligible for Medicare until I've been on SSD/SSI for 2 years...trust me, NYS really S*CKS when it comes to Medicaid and needing medical care..I don't get ballistic, I just get really depressed over it and then stay on the couch all day and do nothing..I wish I could go ballistic over it but I don't have it in me to do it.... Hugs, ~Chrissy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Chrissy , Also clinic's and hospitals that are non for profit have to by law take people who do not have ins. and are in medical need. A little secret. is if you ask the business office at some of these places you can have your bill reduced or cleared by filling out forms for them. Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 Hi , Don't remember if I have spoke to you before, but I refuse to take the neurontin. I also don't take a lot of drugs. I don't like the way they make me feel. There are time I am in so much pain that I am sick, but I wont take all those pills and be comotosed. That is how all the drugs made me feel. Shei chrissy hello. the can't remeber stuff is the way neurontin works. it may helpone thing but it sure does hurt many others. it is a sesure drug. forrsd people they put you on hig dosages. for seisure patent the max is1000 mg a day. this is to stop the fring of the brain. i thnk doctorsput rsd patients on it to stop the brain firing from the burning pain. idonot care for this drug. isee a lot of people have the same problem.no thank you i want a clear head and not a drug head that is havingproblems remembering . just my opion. welcome to the group. you willfind a lot of love and supprt here. i have had rsd for 11 years. fullbody. hugs cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 chrissy, I am glad you have a PT that will stick it out with you. Have you applied for free care at the hospitals...sometimes they can work with you to get you into the pain clinic through that. I am very sorry that the drs in your area are so consumed by being paid large sums of money instead of the wellbeing of people who are medicaid. Are you anyway able to drive to a bigger city that may have a hospital which does have a pain clinic in it..even if you have to travel 1 or 2 times a month there it may be worth it. Good luck..Hugs, GinnyChrissy wrote: Ginny, Every hospital from Albany to NYC that has pain management in them doesn't take Medicaid...NY is a wonderful state isn't it??? I've been going to PT 2-3x a week since last August and it doesn't help at all..when Gerry (my PT) gets done with me, I'm in even more pain and the last time he re-evaluated me, he said one or two of my fingers were actually getting worse...so hospital wise, all the ones within a 70 mile radius around where I live that have the pain clinics in them won't take the Medicaid because the doctors are independent from the clinic and it's up to the doctor whether they want to accept the Medicaid or not and they've all chosen not too...when I see on the 7th, he and I are going to have a nice LONG doctor/patient visit...I'd really hate to tell him that I'm gonna have to drop him as my caregiver if he won't give me pain meds... and I'd really hate to drop him...now my PT is working with my lawyer...he got paid until the Med-Pay ran out so since he's friends with my lawyer, he's working with me till my case is over...then he'll get paid what I owe him out of my settlement... Hugs, ~Chrissy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 To all yes i'm in the same situtation in new york. they want hugh sums to see any one here and if you dont have ins. they dont call you back.it is hard hugs PamGinny Barrientos wrote: chrissy, I am glad you have a PT that will stick it out with you. Have you applied for free care at the hospitals...sometimes they can work with you to get you into the pain clinic through that. I am very sorry that the drs in your area are so consumed by being paid large sums of money instead of the wellbeing of people who are medicaid. Are you anyway able to drive to a bigger city that may have a hospital which does have a pain clinic in it..even if you have to travel 1 or 2 times a month there it may be worth it. Good luck..Hugs, GinnyChrissy wrote: Ginny, Every hospital from Albany to NYC that has pain management in them doesn't take Medicaid...NY is a wonderful state isn't it??? I've been going to PT 2-3x a week since last August and it doesn't help at all..when Gerry (my PT) gets done with me, I'm in even more pain and the last time he re-evaluated me, he said one or two of my fingers were actually getting worse...so hospital wise, all the ones within a 70 mile radius around where I live that have the pain clinics in them won't take the Medicaid because the doctors are independent from the clinic and it's up to the doctor whether they want to accept the Medicaid or not and they've all chosen not too...when I see on the 7th, he and I are going to have a nice LONG doctor/patient visit...I'd really hate to tell him that I'm gonna have to drop him as my caregiver if he won't give me pain meds... and I'd really hate to drop him...now my PT is working with my lawyer...he got paid until the Med-Pay ran out so since he's friends with my lawyer, he's working with me till my case is over...then he'll get paid what I owe him out of my settlement... Hugs, ~Chrissy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 I think you are right about Neurontin I am being weaned off of it I am down to 300mg 3 times a day and feel I am remembering more things, like I used to get up and walk into another room and I couldn't remember what I was going for, it doesn't happen all that much, however my pain does seem to be a little more since the reduction, there are a couple of other ones that help with the nerve pain. I didn't like the feeling when I was on the Neurontin. As you all may of noticed I am somewhat behind that is because I have been having a flare I told someone that it was a minor flare, but I don't think that it is so minor afterall. So I am going to do my best to get caught up with all the emails I only have 94 so that is not too bad. Lin -- chrissy hello. the can't remeber stuff is the way neurontin works. it may helpone thing but it sure does hurt many others. it is a sesure drug. forrsd people they put you on hig dosages. for seisure patent the max is1000 mg a day. this is to stop the fring of the brain. i thnk doctorsput rsd patients on it to stop the brain firing from the burning pain. idonot care for this drug. isee a lot of people have the same problem.no thank you i want a clear head and not a drug head that is havingproblems remembering . just my opion. welcome to the group. you willfind a lot of love and supprt here. i have had rsd for 11 years. fullbody. hugs cathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2004 Report Share Posted September 27, 2004 he had me go for an MRI which not only showed something there but also showed a pretty big cyst on my ovary which explains that constant pain..when I see him on the 7th, we're gonna have a nice talk about what that thing is on my hip bone..and the cyst too...hope your having a low pain day today.... Hugs, ~Chrissy~ Chrissy, They found a big cyst on your ovary and didn't do anything about it! That is surprising since when I had a cyst the size of an orange, they said if it ruptured I could of go into shock. I am so sorry that you are not getting any support from your husband and that no one will take you on because of the medicaid. I hope that you get your answers and that your husband can be more supported. I hope you got some rest, Lin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Lin, When I went to the doctor last, my regular doc was on vacation for like 3 weeks so I had to see this other one who I've never seen before and I had to get some stitches out from a mole that took off so when this other doctor finished taking them out, I asked him about my MRI report and he really wasn't too helpful at all..I'd rather wait till I see on the 7th..he knows my case history and this other one doesn't..and if I know my regular doc, he'll have the cyst taken out ASAP... Hugs, ~Chrissy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 Chrissy That's fantastic news In a message dated 9/27/2004 11:30:29 PM Eastern Daylight Time, RSD-CRPSofAmerica writes: Date: Mon, 27 Sep 2004 22:27:30 -0400 (Eastern Daylight Time) Subject: WE WON!!!!!!!!!!!!!!!!!!!!!I went to my lawyers today to find out what was going on and he told me thatJudge Bradley totally thru out the defendants petition for dismissal andsaid he was giving my case a Summary Judgement which means there will be notrial, no jury, nothing!! He wants me to go see a pain management doctor todetermine the extent of the damage so he can come up with how much money hes awarding me with!! We won the case based on the fact that in NYS, if a dogbites a person no matter what the circumstance, the owner is liablePERIOD!!! And my lawyer said that if it DID go to trial, the judge said thatnothing the defense had could be used...their depositions, "supposedevidence", nothing!!! HAHAHAHAHAHAHAHA!!!!!!!!!!!!!!!!!!!!! I feel like alittle demon right now although when my lawyer told be in plain english thatwe won the case, I wasn't happy or anything like that...he asked me what wasup and I told him I was having a real bad flare up and it wasn't a decentpain day...sooo...now all I have to do is see a pain management doctor whichmy attorney said for me to get the referral from my regular doctor and he'sgonna get a loan for me to pay for it....well that's it for now...I justwanted to share my triumph with all of you..it's not a cure and it won'tmake my RSD go away but whatever amount I get will definitely help.....Hugs to all of you,~Chrissy~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2004 Report Share Posted September 28, 2004 and if I know my regular doc, he'll have the cyst taken out ASAP... Hugs, ~Chrissy~ I will keep you in my prayers, that nothing happens to it before your doctor gets back. Lin -- Re: chrissy Lin, When I went to the doctor last, my regular doc was on vacation for like 3 weeks so I had to see this other one who I've never seen before and I had to get some stitches out from a mole that took off so when this other doctor finished taking them out, I asked him about my MRI report and he really wasn't too helpful at all..I'd rather wait till I see on the 7th..he knows my case history and this other one doesn't..and if I know my regular doc, he'll have the cyst taken out ASAP... Hugs, ~Chrissy~ Quote Link to comment Share on other sites More sharing options...
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