Barbara

[Guest guest]

Barbara,

I just had to jump in and say congrats on completing your rough draft! I am very impressed!

Hugs,

Jo

[Guest guest]

Barbra,

Is that the same kinda thing where they inject acohol into the nerve to

supposedly kill it so there won't be any pain . If so I had one on the right

side of my jaw in my mouth. What a disaster. I'm still numb in part of my face.

But the pain came back a few months later.

Laurie

[Guest guest]

Barbara,

I can imagine how upset you must be. Hard enough to have problems with the Cath, but who needs a jerk dealing with it?

I hope they were able to resuture it this AM.

Dr. doesn't guarantee vacations?? Is that what he said??? I'm sure HE never canceled a vacation due to pain and/or a Dr's lack of compassion. YEESH.

Jo

[Guest guest]

Welcome home,

Regale us with tales of your trip... please!!

I will live vicariously through your vacation. I've had an awful week and hope you had a great time.

Jo

[Guest guest]

Im sorry to hear of all the events leading up to your leaving for

your vacation and the delay in a much needed procedure, but Im glad

you enjoyed your trip to the best that you could. Glad to have you

back home though.

Hugs

Donna

[Guest guest]

Thanks, Donna. I guess we all get those crazy-making moments and just have to do our best to get by. Hope you're doing okay. BarbaraDonna wrote:

Im sorry to hear of all the events leading up to your leaving for your vacation and the delay in a much needed procedure, but Im glad you enjoyed your trip to the best that you could. Glad to have you back home though.HugsDonna

[Guest guest]

How do you get the computer to do this Lin? I like it alot and do not know how it is done or your blue people crying. If you have chance will you let me know? Take care and hope your day was good.

JoAnn

s Momma

Re: Barbara

Barbara, I am glad to hear that you had a good time. Get some rest and your pain under control.

Lin

[Guest guest]

Harrumph. I was being sincere. Seriously, I was. Pfffffft on all of ya.JoAnn & Russ Ford wrote:

I do not think the seriously Barbara wrote really was "seriously, sincere" in fact sure it wasamockin you!

JoAnn

Re: Barbara

- I see the doc on Wednesday. I still think that they are funky bites from heading out into the pasture to the chicken coop. Still 22 of them and nasty nasty itching. Will have him take a look at them on Wed. Thanks for the concern, though, seriously. BarbaraKM86@... wrote:

UMMMM Barbara

New meds, itchy spots === call the doc

Take care of yourself girl

In a message dated 9/27/2004 10:46:52 AM Eastern Daylight Time, RSD-CRPSofAmerica writes:

Got a mess of itchy places too. I finally marked them with a blue magic marker (don't laugh) so I could keep track of them. 22 of them and each is the size of a quarter at least. Itch like mad. I'm assuming it's from walking out to give the chickens my blessing so I want to keep a count on them to make sure that it's not an allergy reaction. Wicked itchy. K.....Done complaining. Love - B

[Guest guest]

Barbara,

I am glad that you are going to try and make it into work today. I hope you like the color of your office! LOL. Maybe they could come paint my office? It has been the most boring shade of white for the past nine years.. It's time..

Seriously, please try not to overdo, although that is much easier said than done.

Let us know how your day goes!

Hugs,

Jo

[Guest guest]

Jo - Color was lovely but my office was destroyed. SPent the day trying to put it back together but was hesitant after my first trip up a step stool to test the balance again. Long day, exhausted and going to bed. G"night all.jomal1@... wrote:

Barbara,

I am glad that you are going to try and make it into work today. I hope you like the color of your office! LOL. Maybe they could come paint my office? It has been the most boring shade of white for the past nine years.. It's time..

Seriously, please try not to overdo, although that is much easier said than done.

Let us know how your day goes!

Hugs,

Jo

[Guest guest]

Barbara,

does the Ritilan really help you with staying awake during the day from the other meds making you tired?

I'm wondering if it would help me where the Symbyax, Methadone and Actiq suckers all make me drowsy during the day......

It would benefit me with the ADD that I have too......but, I'm mainly wondering just if it would help me stay awake during the day.

I've been falling asleep during the day around 12-1pm, and Crystal gets home at 1:45pm.....and I'm scared that one of these days I'm not going to wake up in time to get her off the bus.

(although, if something would help my ADD and help me with my concentration, I'd be happy with that too!!!!)

Thanks Barbara...

Tonia

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Tonia - I am so smack dab in the middle of medication changes that it would be very hard for me to say if the Ritalin is going to to be helpful....I've just recently started on it and we are just beginning to slowly increase it. The doc apparently successfully uses Ritalin or Provigil for his patients who have problems with the drowsiness and attentional difficulties that so often accompany having to take narcotics on a long-term basis. At this point I am incredibly fatigued and not doing well....to the extent that as of yesterday I have had to leave work. After nodding off at the wheel while driving several times this week, it's clear that I am currently unable to make the 50 minute drive to work. It will take some time, I know, (so hard for this woman to be patient) but they assure me that we will eventually get the medications adjusted. Just really hard on me right now. I would certainly raise, however, the

possibility with your doctor. BarbaraTonia wrote:

Barbara,

does the Ritilan really help you with staying awake during the day from the other meds making you tired?

I'm wondering if it would help me where the Symbyax, Methadone and Actiq suckers all make me drowsy during the day......

It would benefit me with the ADD that I have too......but, I'm mainly wondering just if it would help me stay awake during the day.

I've been falling asleep during the day around 12-1pm, and Crystal gets home at 1:45pm.....and I'm scared that one of these days I'm not going to wake up in time to get her off the bus.

(although, if something would help my ADD and help me with my concentration, I'd be happy with that too!!!!)

Thanks Barbara...

Tonia

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Barbara,

I can imagine how sad and scared you are... please, just take one minute at a

time.. in this life, all things are possible, and perhaps when you get the

right combo of meds, you'll feel more able to go back to work. You WILL go back

to work, keep believing that.

I wish I had the words to say. Know that I'm thinking about you and feel quite

confident that you will find a way to manage somehow. Take a leave of absence

for now... and plan on what you'll do when you do get back.

Hugs,

Jo

[Guest guest]

Thanks, Jo. I'm keeping these blurry eyes on just what is in front of me at the very moment. I just have to trust that everything will work out in time. So many folks here are really getting slammed right now....I really appreciate that you have made an effort to reach out to me even though your life isn't exactly a piece of cake either. It makes me feel cared about and valued and I really need that right now cuz all of this is making me feel kinda worthless. I remind myself that that's messed up thinking but it just keeps creeping back in. Again. thank you. I really appreciate the support that you, JoAnn, Tricia, Jai, and others that I have left out, are gently tossing my way right now. Barbara jomal1@... wrote:

Barbara,I can imagine how sad and scared you are... please, just take one minute at a time.. in this life, all things are possible, and perhaps when you get the right combo of meds, you'll feel more able to go back to work. You WILL go back to work, keep believing that.I wish I had the words to say. Know that I'm thinking about you and feel quite confident that you will find a way to manage somehow. Take a leave of absence for now... and plan on what you'll do when you do get back.Hugs,Jo

[Guest guest]

Barb,

Don't you dare feel worthless! You are such an incredible, wonderful, strong, and supportive person! You have been there for me since the beginning! No matter what is going on with you, you have always found the time along with Donna and Joann and many, many others to always show that you care! You out of all the people on this digest have ALWAYS responded to my messages and never think for a moment that I do not realize that! You are a very special person going through a real hard time right now. Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. So snap

out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always!

DawnBARBARA TORREY wrote:

Thanks, Jo. I'm keeping these blurry eyes on just what is in front of me at the very moment. I just have to trust that everything will work out in time. So many folks here are really getting slammed right now....I really appreciate that you have made an effort to reach out to me even though your life isn't exactly a piece of cake either. It makes me feel cared about and valued and I really need that right now cuz all of this is making me feel kinda worthless. I remind myself that that's messed up thinking but it just keeps creeping back in. Again. thank you. I really appreciate the support that you, JoAnn, Tricia, Jai, and others that I have left out, are gently tossing my way right now. Barbara jomal1@... wrote: Barbara,I can imagine how sad and scared you are... please, just take one minute at a time.. in this life, all things are possible, and perhaps when you get the right combo of meds, you'll feel more able to go back to work. You WILL go back to work, keep believing that.I wish I had the words to say. Know that I'm thinking about you and feel quite confident that you will find a way to manage somehow. Take a leave of absence for now... and plan on what you'll do when you do get back.Hugs,Jo

[Guest guest]

After nodding off at the wheel while driving several times this week, it's clear that I am currently unable to make the 50 minute drive to work. It will take some time, I know, (so hard for this woman to be patient) but they assure me that we will eventually get the medications adjusted. Just really hard on me right now. Barbara

Barbara,

I remember my last week at work, I kept nodding off at my desk and I would fall asleep, at my desk several times during the day. My sister was doing most of the driving by then ( we worked for the same company) and she would be talking to me and the next day I wouldn't remember what she talked about fortunatly she knew what to expect and and would gently remind me that I had mentioned it the other day.

I will pray for you that you are able to go back to work soon. As I know that means a lot to you. How is the pain doing?

Lin

[Guest guest]

Lin - Between the catheter and the new pain meds, the pain from the RSD is being kept pretty low. The rest of my body feels pretty achy as it deals with the rebound effect of discontinuing the medications. Guess that the docs kept secret the little fact that going off the meds would kick up the myositis. One day at a time. Thanks for your note. Barbara wrote:

Barbara,

I remember my last week at work, I kept nodding off at my desk and I would fall asleep, at my desk several times during the day. My sister was doing most of the driving by then ( we worked for the same company) and she would be talking to me and the next day I wouldn't remember what she talked about fortunatly she knew what to expect and and would gently remind me that I had mentioned it the other day.

I will pray for you that you are able to go back to work soon. As I know that means a lot to you. How is the pain doing?

Lin

[Guest guest]

Thanks, Dawn....Your sweetness makes it easy to offer support to you. Although it's hard right now, I'm not done whooping this thing yet. Myabe we shoud start naming our flares like they do hurricanes. I'm calling this one Abigail. Barbara dawn lorenz wrote:

Barb,

Don't you dare feel worthless! You are such an incredible, wonderful, strong, and supportive person! You have been there for me since the beginning! No matter what is going on with you, you have always found the time along with Donna and Joann and many, many others to always show that you care! You out of all the people on this digest have ALWAYS responded to my messages and never think for a moment that I do not realize that! You are a very special person going through a real hard time right now. Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. S! o snap

out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always!

DawnBARBARA TORREY wrote:

Thanks, Jo. I'm keeping these blurry eyes on just what is in front of me at the very moment. I just have to trust that everything will work out in time. So many folks here are really getting slammed right now....I really appreciate that you have made an effort to reach out to me even though your life isn't exactly a piece of cake either. It makes me feel cared about and valued and I really need that right now cuz all of this is making me feel kinda worthless. I remind myself that that's messed up thinking but it just keeps creeping back in. Again. thank you. I really appreciate the support that you, JoAnn, Tricia, Jai, and others that I have left out, are gently tossing my way right now. Barbara jomal1@... wrote: Barbara,I can imagine how sad and scared you are... please, just take one minute at a time.. in this life, all things are possible, and perhaps when you get the right combo of meds, you'll feel more able to go back to work. You WILL go back to work, keep believing that.I wish I had the words to say. Know that I'm thinking about you and feel quite confident that you will find a way to manage somehow. Take a leave of absence for now... and plan on what you'll do when you do get back.Hugs,Jo

[Guest guest]

Barbara, Just wanted to tell you that you are one of the strongest people after all you have been thru. thank you for all the kind words you have said to me. I know how you feel about work, iworked 25 years and since january I cant any more and sometimes I feel so bad. there will be better days there has to be. You are ver loved by the people on the digest and I just pray for a Pain free and better days for you lol hugs PamBARBARA TORREY wrote:

----------------------

[Guest guest]

Well Barbara I hope that Abigail bites the dust soon! Feel better my friend and have a decent day. The weather here is beautiful and cannot wait to take the dog for a walk! Talk Soon and Love and Prayers!

DawnBARBARA TORREY wrote:

Thanks, Dawn....Your sweetness makes it easy to offer support to you. Although it's hard right now, I'm not done whooping this thing yet. Myabe we shoud start naming our flares like they do hurricanes. I'm calling this one Abigail. Barbara dawn lorenz wrote:

Barb,

Don't you dare feel worthless! You are such an incredible, wonderful, strong, and supportive person! You have been there for me since the beginning! No matter what is going on with you, you have always found the time along with Donna and Joann and many, many others to always show that you care! You out of all the people on this digest have ALWAYS responded to my messages and never think for a moment that I do not realize that! You are a very special person going through a real hard time right now. Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. S! o snap

out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always!

DawnBARBARA TORREY wrote:

Thanks, Jo. I'm keeping these blurry eyes on just what is in front of me at the very moment. I just have to trust that everything will work out in time. So many folks here are really getting slammed right now....I really appreciate that you have made an effort to reach out to me even though your life isn't exactly a piece of cake either. It makes me feel cared about and valued and I really need that right now cuz all of this is making me feel kinda worthless. I remind myself that that's messed up thinking but it just keeps creeping back in. Again. thank you. I really appreciate the support that you, JoAnn, Tricia, Jai, and others that I have left out, are gently tossing my way right now. Barbara jomal1@... wrote: Barbara,I can imagine how sad and scared you are... please, just take one minute at a time.. in this life, all things are possible, and perhaps when you get the right combo of meds, you'll feel more able to go back to work. You WILL go back to work, keep believing that.I wish I had the words to say. Know that I'm thinking about you and feel quite confident that you will find a way to manage somehow. Take a leave of absence for now... and plan on what you'll do when you do get back.Hugs,Jo

[Guest guest]

Dearest Barbara

I hope that this wonderful autumn day finds you feeling in higher

spirits. I am concerned for you and worry that your spirits are so

low. So much has been taken from you and I know this feels like

another hard hit on an already low spirit. I hope that there is some

way for you to be able to gain control over your situation.

In the meantime, know that we are here and support you and care about

your well being. Being told that theres one less thing in your life

you cant do is so disheartening, but brighter days are ahead for you

Im sure.

I always look for words of encouragement from you and Donna. You are

both very strong women that really know how to handle the worst

situations. I always tell myself that I wish I was strong like the

two of you, especially when I am having real down days!

Dawn

Thank you for the kind words, I try to be supportive within the group

and even on days that Im feeling my lowest I know that someone on

here could really use the support that I know somewhere in my soul I

am able to produce.

I give my all to the group because each and every one of you has

given me support when Im down or when Im scared or when Im angry and

Im deeply appreciative of that, more than words can ever say!

Each one of you has touched me in a way that even people I've known

all my life can never do. We all share a common, albeit horrible

similarity. I've never met a more compassionate, caring, supportive

and knowledgable group than those that reside on here. Thank you to

each and everyone of you!

Love

Donna

[Guest guest]

Thanks Barbara, I'll talk to my Psych when I see him in Nov, unless I call him before then.

I already know that he won't be able to prescribe Provigil for me because State Medicaid won't pay for it unless I go and do the Sleep test and have Sleep Apnea or something like that...and I sure in the heck can't afford it out of my pocket!

I hope they get your meds figured out quickly so that you can get back and forth to work without any problems.....I know what it's like to nod off while driving.....it freaks you out.

Tonia

-------Original Message-------

Tonia - I am so smack dab in the middle of medication changes that it would be very hard for me to say if the Ritalin is going to to be helpful....I've just recently started on it and we are just beginning to slowly increase it. The doc apparently successfully uses Ritalin or Provigil for his patients who have problems with the drowsiness and attentional difficulties that so often accompany having to take narcotics on a long-term basis. At this point I am incredibly fatigued and not doing well....to the extent that as of yesterday I have had to leave work. After nodding off at the wheel while driving several times this week, it's clear that I am currently unable to make the 50 minute drive to work. It will take some time, I know, (so hard for this woman to be patient) but they assure me that we will eventually get the medications adjusted. Just really hard on me right now. I would certainly raise, however, the possibility with your doctor. Barbara

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Barbara,

I've got to totally agree here! You are always here for others when they need the support.....now it's time for us to give you the support that you need. I know that the meds are messing you up, mainly because you aren't used to........

If you want to yell, scream, cuss or whatever, feel free to email me privately and do any of all you want....it wouldn't gother me at all!

Tonia

-------Original Message-------

Please know that you are always in my thoughts and prayers and you of all people are my strength. I always look for words of encouragement from you and Donna. You are both very strong women that really know how to handle the worst situations. I always tell myself that I wish I was strong like the two of you, especially when I am having real down days! I do not like hearing negative from you, because you are my positive. So snap out of it girl and show me your strength!!! I know you are hurting bad right now, but think positive, you are going to get the help you need and the pain is going to go bye, bye!!!!!! Just be patient my friend and know that my thoughts and prayers will always be with you!!! LOL Always!

Dawn

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