Re: Hello To ultimate cheeseburger

[Guest guest]

Dear Ultimate CheeseburgerYes!  Now there is a lot of positive interest and momentum in both PSC and UC research. Hold on !I could tell you my son's horror story from last year, but it wouldn't serve any purpose because there will always be someone who has it worse.What matters is that there is a lot of support out there and there are many who will care enough to help you through hard times.Life is more challenging with these diseases, but I hope that you will continue to look for the positive and good things that can happen each day.Are you taking enough Urso? The high dose is recommended at 30mg per Kg.   If you were 120 pounds that would mean you would be taking about 1,600 mg per day.  This might be something you could ask your Dr. about. If you need papers on this to show him they are in the file section.Have you tried taking fish oil capsules? A lot of us are taking them too.Never give up, together in the fight whatever it takes.Hold on ! Lee If someone out there has a history as bad as mine, please semd me a message.  I was originally diagnosed with UC in Sep. '03.  Took every drug available to slow the symptoms, including prednisone (bad side effects cancelled the use of prednisone).  Jun. '04 lost gallbladder; unrelenting high alkaline phosphatase levels and extreme URQ pain.  Feb. '05 diagnosed with PSC.  May '05, hospitalized for 9 days with bout of cholangitis.  Oct. '05 total abdominal colectomy with permanent ileostomy (dysplasia was found 5 months after the last good colonscopy).  Taking 1200 mg/daily of Urso.  Is there anything "positive" that I have to look forward to?