burning

[Guest guest]

Arline,

Would I have to order the test online myself or would a physician use the lab and do all the work?

thanks!

CarolSee what's free at AOL.com.

[Guest guest]

thanks ArlineSee what's free at AOL.com.

[Guest guest]

Carol,

You order it. This is your effort and not your

doctor's. He does his thing and you do yours, they

will send you a plastic container which is placed

under the toilet seat lid which will keep it in place.

You simply have a bowel movement in the container. You

then freeze it, fill out the medical questions, and

when you are ready to send it, call the mail carrier

that brought it to your door and they will pick it up

when you want. I have just left it in the door at

different timed. It is easy, efficient, and really

admirable. I always think about going to the local lab

where they extract blood in multiple vials and the

local blood taker I think was trained by the Roto

Rooter folks in the AFLCIO Hall. (no insult to the

AFLCIO at all. There are purposes for roto rooters and

purposes for gently extracting blood.) I don't even

have to leave the house.

Good Luck, Carol

Arline

--- Carolyn52192@... wrote:

> Arline,

>

>

> Would I have to order the test online myself or

> would a physician use the

> lab and do all the work?

> thanks!

>

> Carol

>

>

>

> ************************************** See what's

> free at http://www.aol.com.

>

__________________________________________________

[Guest guest]

Before I had vestibulitis, I ONLY had anal burning.....as long as I dont eat foods that I am sensitive to (mine are beef and eggs), I have NO burning. Kimmi

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Yahoo! Autos.

[Guest guest]

Hi,

Well the burning has started once again after a day of normalcy. Apparently the prednisone is not making a difference. Those with Vulvar vestibulitis, how many pain free days do you experience per week? Does anyone experience burning with urination? is this typical?

CSee what's free at AOL.com.

[Guest guest]

my pain is always there, but its only on contact pain, like sitting own in some possitions or intercourse, etc.Carolyn52192@... wrote: Hi, Well the burning has started once again after a day of normalcy. Apparently the prednisone is not making a difference. Those with Vulvar vestibulitis, how many pain free days do you experience per week? Does anyone experience burning with urination? is this typical?

CSee what's free at AOL.com.

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

[Guest guest]

Hi Dee,

It seems like it is when the urine hits the skin.

CSee what's free at AOL.com.

[Guest guest]

Thanks Carolyn...

That is very common hon to have that burning with urine going over the tissue... so it seems to me that you do need the tissue helped and restored. That's where the 2 hormone creams in my opinion can help the most hon as they feed and nourish that skin. It's tough but we're tougher, hang in there. ; )

Hugs

Dee~

[Guest guest]

I was a little shocked in his office thurday and did not get all the information I want, I will call him again to get more details. this is too odd though, today I feel fine. Thursday nite I was in horrific burning pain! I have to find out what this is

CGet a sneak peek of the all-new AOL.com.

[Guest guest]

Hi Carolyn

I guess I am curious about what the doc will do or say

if he does find out that if your bladder is paralyzed

(my word) when you have this insertion. =

And what is his next step if it is and what does it

mean and all that.

Docs only have a certain number of tricks, procedures,

etc. and bladder installation is one that urologists

have.

They aren't looking for causes and whatever he finds

the answer is it will be medication most likely.

Something causes the spasms, trigger points.

Doing this may tell you something, I can't imagine

what, but maybe you will find out something. I hope

so.

--- Carolyn52192@... wrote:

> I know I am sending alot of emails out recently, but

> I am totally confused

> and I needs some answers I was diagnosed with

> vestibulitis and the doctor did

> an internal exam pressing on areas and said that I

> have " neuropathic " pain

> and to pursue pt before elavil and neurotin. I had

> this searing burning pain

> radiating from front to back, which was my main

> issue, and after 2 pt

> sessions it seemed to have gone away and I was

> satisfied to stop at that point. So

> for 2 months no searing pain, although I did

> continue to have buring

> urination and thought it was the skin. Well

> recently the really bad burning

> returned, it seems internal but when I put lidocaine

> cream on my vestibule area it

> seems to help. So I can't even actually tell where

> the burning is coming from.

> When the gynocologist pressed my pelvic floor

> muscles it felt like the same

> burning I am experiencing. I have one tender spot

> on my vestibule area that

> stings with q-tip. I recently went to a new

> gynocologist - a

> urogynocologist- to get his opinion. He asked me

> what do you plan to do stay in pt the

> rest of your life?? something is causing these

> spasms, and he thinks its my

> bladder. He wants to do a procedure called

> instillation where he inserts

> numbing incredients to see if the spasms stop?? He

> pressed my bladder and it was

> tender but not extremely painful, I do not have

> urgency or frequency. Im so

> confused with this if any one can offer me any

> information. Especially the

> terrible burning, is that internally or externally?

> it feels for me it is

> internally, but when I used that lidocaine

> externally it helped for about 15

> minutes. I know I am rambling, just so disgusted

> right now. I was pain free for 2

> months and the other nite was miserable, I am

> wondering what caused this to

> return?

>

> C

>

>

>

> ************************************** Get a sneak

> peek of the all-new AOL at

> http://discover.aol.com/memed/aolcom30tour

>

________________________________________________________________________________\

____

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[Guest guest]

thanks Kristy, I just wonder if it is all nerve related tho, why did go away for 2 months? No discounting anything, just trying to figure this out. I need so many questions answered.

CarolGet a sneak peek of the all-new AOL.com.

[Guest guest]

Carolyn, I thought you said the urogyn said you have BV and yeast?

You need to treat those in order for burning to go away.Get a sneak peek of the all-new AOL.com.

[Guest guest]

Carolyn,

I do believe your situation in part is nerve related and one way

to find out is to see a neurologist that has experience with

nerve related issues in the vulvar area.

I think this urogyn is on to something. The reason he's

mentioning the installations is because there's a chance you

might have Interstitial Cystitis. It can cause burning and the

kind of symptoms you have but the way to find out for sure if IC

is the problem is to have a cystoscopy done under general

anesthesia.

IC can affect the pelvic floor.

Also, PT will not fix a nerve problem if it is solely nerve

related as is the case with me. Your doctor actually hit a

nerve like the PT did. That's why the burning.

Kristy

________________________________________________________________________________\

____

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[Guest guest]

>

> I know I am sending alot of emails out recently, but I am totally

confused

> and I needs some answers I was diagnosed with vestibulitis and

the doctor did

> an internal exam pressing on areas and said that I

have " neuropathic " pain

> and to pursue pt before elavil and neurotin. I had this searing

burning pain

> radiating from front to back, which was my main issue, and after 2

pt

> sessions it seemed to have gone away and I was satisfied to stop at

that point. So

> for 2 months no searing pain, although I did continue to have

buring

> urination and thought it was the skin. Well recently the really

bad burning

> returned, it seems internal but when I put lidocaine cream on my

vestibule area it

> seems to help. So I can't even actually tell where the burning is

coming from.

> When the gynocologist pressed my pelvic floor muscles it felt

like the same

> burning I am experiencing. I have one tender spot on my vestibule

area that

> stings with q-tip. I recently went to a new gynocologist - a

> urogynocologist- to get his opinion. He asked me what do you plan

to do stay in pt the

> rest of your life?? something is causing these spasms, and he

thinks its my

> bladder. He wants to do a procedure called instillation where he

inserts

> numbing incredients to see if the spasms stop?? He pressed my

bladder and it was

> tender but not extremely painful, I do not have urgency or

frequency. Im so

> confused with this if any one can offer me any information.

Especially the

> terrible burning, is that internally or externally? it feels for

me it is

> internally, but when I used that lidocaine externally it helped

for about 15

> minutes. I know I am rambling, just so disgusted right now. I was

pain free for 2

> months and the other nite was miserable, I am wondering what

caused this to

> return?

>

> C

>

The first thing that comes to my mind is this. No, you're not going

to stay in PT the rest of your life but what does that have to do

with needing it now? If someone had a wrenched back or a bad shoulder

or arm injury they'd go. PT might help a) you to figure out if it is

pelvic floor related and might be able to be discontinued after

you reach a point of feeling better. I don't think it was right of

your doc to have that type of attitude towards PT.

That being said, the installations may also help you figure out what

is going on. I don't know that much about them but I think you have

to have a few before they become useful for pain relief. You also

have to be catheterized for the procedure. My own personal choice and

this may not be yours, would be to try PT first and avoid anything

where I'm catheterized ( but I have a very sensitive urethral opening

from having it stretched when I had a cystoscope at 15). The doc went

in, looking around in the bladder, found nothing and said my 'narrow'

urethral opening was the problem. He stretched it, caused me pain and

then NO that wasn't the problem. Not to say your doc will stretch

yours as I don't think they commonly do any urethral stretching

anymore as it leaves scar tissue (I was 15 24 years ago). You may

very well benefit from installations or PT or both. I know it's

frustrating and confusing.

I will add this. My problems I think are bladder and vulvar related

because the lidocaine does NOT completely numb my pain EVER meaning

the pain is somewhat INSIDE where you pee from. If your pain was

completely numbed by the lidocaine I would think that bodes well for

your urethra anyway. I wish I had more advice - I would rule either

option out. Sometimes YOu have to try more than one thing. Hope this

helps.

[Guest guest]

>

> I was a little shocked in his office thurday and did not get all the

> information I want, I will call him again to get more details. this

is too odd

> though, today I feel fine. Thursday nite I was in horrific burning

pain! I have

> to find out what this is

>

> C

>

Also, have you ever been to the vulvarpainfoundation.org website? It

talks about how oxalates in our bodies and urine might cause alot of

different types of pain. Part of the treatment is staying away from

high oxalate foods that cause pain, taking calcium citrate and eating

an overall low oxalate diet. I wonder if you took a look at some of

the high ox foods if you might be able to trace your very painful days

to something you ate? This is a very hard thing to track, I warn you,

but something in your diet just might be the culprit.

Some really high oxalate foods that come to mind are sweet potato,

spinach, white potatoes (not as high as sweet), Olives, Many Bran type

cereals, Many types of Beans, Carrots, Celery and Chocolate. Those are

some major ones that come to mind. You can check out the website and

try to get more information. Just a thought and something to

consider. I know it's a lot to take in. There is a book you can buy

that outlines the oxalate content in many foods. The book is available

through the foundation or possibly at your library. They've tried to

donate books to libraries across the country. Feel free to ask me any

questions you might have or email me off the board.

[Guest guest]

Carol,

Yep, sometimes the pain and other symptoms can go away for a

while even if it's nerve related. I've had it happen to me on

several occasions where the pain quiets down and then it will

flare up again for a while.

And I know you are just trying to figure this out so I empathize

because I have had another part of my nerve situation flare up

again. When this particular part of the flare occurs time and

time again I have to go back to my baby wipes for a while. I

should just stick to them permanently as I had for years before

for whenever I have to urinate.

We're here to help support you hun as you try to figure out what

is going on. It took me a while to start putting the pieces of

this puzzle in to place so I really do empathize with what you

are going thru.

Kristy

________________________________________________________________________________\

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